Topic : Bipolar Disorder

Number of Replies: 6580
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Created on : Thursday, July 07, 2005, 08:57:16 am
Author : dataimport

Patients suffering from Bipolar disorder face many difficult challenges. Share your story and get support from those who understand.

 

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May 1, 2008, 3:49 pm PDT

Writing helps

Quote From: mustbecrazy

No wonder you are stressed out...who wouldn't be under your circumstances??

 

Are you in therapy in addition to your meds?  Therapy can certainly help you cope with the many burdens that you have.  However, if you don't feel that your meds are helping enough, talk with your pdoc about that...he/she can determine whether your meds need adjusted, changed, or added to...

 

I would be absoultely horrified if anybody touched my boys...did you file charges against the neighbor?  Your son might not be the only one he has molested.  Is your son in counseling?  At age 12(?) your son might just now start realizing the impact of your neighbor's actions...being molested yourself, you probably realize that it is a process...

 

I was molested when I was a kid, by one of my brothers...I never said a word...the older I got, the more it upset me, but I couldn't understand why something that had happened so long ago kept creeping up on me...by age 29, I ended up in the psych ward... and have had many visits there...I've had the bipolar patterns all my life, but I never realized that what I was feeling was outside of the "normal" realm.  I was a cutter for years...nobody knew...I always had an excuse for the cuts...we had cats, and the cuts were dismissed as cat scratches.  I'm on a good set of meds now, and that makes a huge difference. 

 

It does help to put what you are feeling in writing...there are a lot of caring people here...it's a good place to vent...please come back any time.

 

Becky

 It is good to keep a journal and write personal things if you don't want to post them here.  Wishing you the best. 
It also helped my doctor diagnose my condition because we found patterns in my behavior.
Hugs to you,
Marty
 
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May 1, 2008, 3:56 pm PDT

Help on the way, hopefully

Quote From: mustbecrazy

For the Social Security Disability Income, you need to get those doctor's records.  By law, they have to release them if you request them.  Try getting a copy of them for yourself.  Go to the office and sign a release form, and ask for a copy of your records.  It is the law that they have to give them to you upon request.  Then, you can take the records to the Social Security office yourself.  When you go to request the records, get an exact date when you can go pick them up...they probably won't be able to copy them on the spot.  If they still won't give them to you, threaten to get an attorney...sometimes just the threat is enough to inspire them to get off their tails and give you what you need....

 

Some people hire an attorney to help them get SSDI...but that does cost money.  I got mine on the first try, with no attorney involved.  Once you have all of the doctor's records and the other paperwork in order, your case can proceed.  If you get turned down, apply again...or you may choose to get an attorney.  I have fibromyalgia, but the bipolar disorder is what qualified me for the SSDI.

 

No wonder you're depressed...no vacation in 4 years...no break from caring for your mom.  Can you get a home nurse or other home care service to help out and let you work less hours for your mom? Inform your sisters that you are looking into getting a home nurse to help out...sometimes Medicare will help pay for this...inform your sisters that they will have to split with you any of the costs over what your mom's Medicare and Social Security income don't cover.  Stand your ground.  You can't go on like this...I'm not sure I could handle it...in your situation, I would have been over the edge a long time ago...you're a strong woman!!

 

To get home care, look in the phone book, and start making phone calls.  Get the costs, and find out how to get it covered by Medicare.  You need a break...you need to be working less hours...I can tell that from what you post...

 

I hope it all works out better for you in the future...please keep us posted...Becky

 We are looking for someone to come in so I can get a break for a while.  I did not know Medicare would cover this cost.  I'll have to check it out!  Thanks.

I have a lot of nursing  friends so we have started calling around.  Hopefully we can find someone soon so we can both get a break.  We agreed, we both need one-and not just a day here and there.

As for disability-I have tried to go through the department of rehabilitation services to get financial aid to go back to school, but it takes FOREVER!  I have ten years experience in Medical Transcription, but now places are requiring a diploma.  I really don't want full disability-I think for my own well-being I should work some as long as I can.  With the arthritis and back problems I just don't want to give up.  I'm only 48 and with orthopedic problems, if you don't use it, you lose it. I love retail work but can no longer do that because no one will allow a cashier to sit on a stool.  You have to stock shelves across the store in the meantime (which is pretty counter-productive if you ask me!)

I'm writing my first book, but that is just a pipe dream until I can find a publisher, so I really am not depending on that as an income source. But I'm going to try it.  It's almost complete, and I think this is the best work I've done.  I've published poems (won my first essay contest at age 12.)  Who knows-that might become my job!  I told my husband if this does sell, I'm taking a year off, and probably will write another!

Thanks for all your help.  You people are the greatest!
Hugs,
Marty
 
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May 1, 2008, 4:12 pm PDT

book

Quote From: marthapax

 We are looking for someone to come in so I can get a break for a while.  I did not know Medicare would cover this cost.  I'll have to check it out!  Thanks.

I have a lot of nursing  friends so we have started calling around.  Hopefully we can find someone soon so we can both get a break.  We agreed, we both need one-and not just a day here and there.

As for disability-I have tried to go through the department of rehabilitation services to get financial aid to go back to school, but it takes FOREVER!  I have ten years experience in Medical Transcription, but now places are requiring a diploma.  I really don't want full disability-I think for my own well-being I should work some as long as I can.  With the arthritis and back problems I just don't want to give up.  I'm only 48 and with orthopedic problems, if you don't use it, you lose it. I love retail work but can no longer do that because no one will allow a cashier to sit on a stool.  You have to stock shelves across the store in the meantime (which is pretty counter-productive if you ask me!)

I'm writing my first book, but that is just a pipe dream until I can find a publisher, so I really am not depending on that as an income source. But I'm going to try it.  It's almost complete, and I think this is the best work I've done.  I've published poems (won my first essay contest at age 12.)  Who knows-that might become my job!  I told my husband if this does sell, I'm taking a year off, and probably will write another!

Thanks for all your help.  You people are the greatest!
Hugs,
Marty

What kind of book is it?  That's great that you are writing...good luck on getting it published!!

 

As far as Medicare covering the in-home care, I think there are certain requirements as to the diagnosis and needs...but it's worth a shot...you definitely need help with your mom!!

 

Becky

 
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May 2, 2008, 3:32 am PDT

HI

Quote From: mustbecrazy

What kind of book is it?  That's great that you are writing...good luck on getting it published!!

 

As far as Medicare covering the in-home care, I think there are certain requirements as to the diagnosis and needs...but it's worth a shot...you definitely need help with your mom!!

 

Becky

 The book is pretty much based on some of the things I dealt with as a child living with an alcoholic/mentally ill parent.  It is not a pity-pot sympathy-seeking "Mommie Dearest" type of thing, but how I overcame the bitterness, hatred and unforgiveness, and how my life has changed since letting go and detaching, and since I stopped being my own worst enemy, and how I managed to break the cycle of abuse with my own children.

Maybe it will just be a dollar-store bargain bin book, but it will be mine. 

As for Medicare paying for assistance for us, I don't know if they will cover it since she is not strictly homebound (we take her out to the doctor, hairdresser, movies, restaurants, etc.) But we will see.

Hugs,
Marty



 
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May 2, 2008, 12:45 pm PDT

Understanding Suicide

Here is chapter seven of "You Me and Apollo: Hope Beyond Bipolar Disorder"

 

Chapter 7 – “The Moon’s Bay”

 

I don’t want to write this chapter, but I feel it is important.  In the 1940s, before the advent of modern medicine, more than 40% of people with Bipolar eventually committed suicide.  Even today, the number of those who lose their lives to this disease is staggering.  All of us who have this Bipolar know “the dark hour.”  We are alone.  We are afraid.  We feel that the whole weight of the world rests upon us and we cannot carry it one step further.  In that hour, above all other times, we must know that this is not what the world is truly like.  The foreboding thoughts are not what we really think.  The terrible weight and craving for darkness are not our thoughts.  They are the products of changes in the frontal lobe of our brains, in the rate of neuron growth, in the shedding of the myelin sheath around our nerve cells.  We are, in that dark hour, locked in a false prison built of thoughts produced by this disease – a disease that has
 alteredthe very function of our brains.  If we die in that hour, the disease wins.

 

My darkest hour came on a beach in California.  I’d taken one of my famous road trips, all the way from Kansas to the coast in three days, then spent a week cruising northern California.  This time was different.  I had been back and forth between depression and mixed episodes for six months.  Although I beat around the California countryside for a week, my intent was clear.  In the back of the car was a rifle I’d purchased especially for this occasion. I’d even bought an old junker car and left my more expensive one at home to be sold to cover the bills.   I don’t know what day it was when I found the bay.  It is somewhere North of Mendocino; a beautiful horseshoe bay with high cliff walls and a narrow outlet to the sea.  I played around on the beach for a few hours.  There were large lava rocks scattered here and there and a small scoop of a cave off to the right.  I decided this would be the place.

 

I went into Mendocino and fiddled around that afternoon.  I was wearing an Other and I’m not sure what I was doing.  I know I ate dinner at a restaurant attached to a hotel.  I remember this because I had a flimsy internal debate about whether or not to skip the whole suicide thing and get a hotel room.  I didn’t have the money, not that it would have made a difference.


It was fairly late at night when I went back to the bay.  I set myself up on a large rock, rifle in hand, suicide note in pocket.  I didn’t know about Apollo 13 then, so the significance of the bright moon shining directly overhead was lost on me.  It was only a day or two from full.  I could see kelp tops underwater.  It was that bright.

 

I began to cry almost at once.  I cried because the soul that is me was rebelling against the urge to die that was not me, an urge created by my disease.  As I cried, the tears changed.  From somewhere inside, a sense of determination appeared.  I told myself, in spite of everything, I wasn’t going to die.  I gave myself permission to live.  My tears of fear and sorrow became tears of relief and also grief for the part of life I’d already lost to the illness.  Gradually, there came anger.   If I didn’t want to die what the hell was I doing on a beach in California with a gun?  What was driving this?  Although I would not get into treatment until the next time I got seriously depressed, this was my first moment of awakening; a separation between me and the disease.   This was the moment that gave me the power to seek help.

 

I don’t remember falling asleep, but I woke up on that rock several hours later.  It was cold and lava rocks are not very comfortable.  My right ankle hurt where I had been lying on my foot.  The moon was laying low over the sea and her reflection was like a sidewalk out to her.  I didn’t take that walk.  I tore up the note, got in the car and started driving.  I slept the rest of the night on a roadside somewhere else and had an uncooked frozen pizza for breakfast.

 

I don’t know why I got the sudden will to live.  Higher power?  So I could later bring my daughter into the world?  A little extra Vasoactive Peptide in the Cerebellum?  I don’t know.  What I do know is that I’m alive.  It’s not my fault that I have this disease and I’ll be damned if I’m going to let it kill me, or anyone else I can keep away from it.

 

I know that the real me has never wanted to kill himself.  My suicidal thoughts were caused by a disease.  Having pneumonia will make you cough.  Having Bipolar makes you think about death.  It’s not you.  It’s the disease.

 

A lot of folks who are on the edge of suicide end up calling local law enforcement in order to prevent themselves from carrying thorough with ending their lives.  Paramedics and police officers know the mental health supports that are available and can help you.  If you are standing at the dark doorway and can’t wait to call your doctor, local mental health clinic or a religious figure, put down this book and call 911 or the local emergency phone number.  I want you to live.  I can’t bear to think that you would get this close to hope and not make it.  If you need help, go get it right now.

 
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May 2, 2008, 2:46 pm PDT

I liked this part of the chapter:

"I know that the real me has never wanted to kill himself.  My suicidal thoughts were caused by a disease.  Having pneumonia will make you cough.  Having Bipolar makes you think about death.  It’s not you.  It’s the disease."

 

My son took his own life and I KNOW it was simply a terrible symptom of the disorder.  It's a sad reality that we all have to struggle with this aspect of the illness.

 
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May 2, 2008, 9:15 pm PDT

The Moon's Bay

What eloquent words...they gave me chills...because they are so true...
 
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May 5, 2008, 3:42 am PDT

Calling for help

 I used to work for a suicide hotline, and some people would actually say, first thing, that they were "sorry for bothering me."  I would tell them it certainly wasn't a bother to me, and that I was glad they called before they carried out their plan.  I guess some do think they're bothering everyone-well, they're not.  Just about everyone knows what it is like to be on that very edge, and though we don't know what their problems are, we all agree on one thing-we know what it is like to want to die. 
Hugs to everyone here on a mean old Monday morning.
Marty
 
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May 5, 2008, 6:22 am PDT

hi

Quote From: marthapax

 I used to work for a suicide hotline, and some people would actually say, first thing, that they were "sorry for bothering me."  I would tell them it certainly wasn't a bother to me, and that I was glad they called before they carried out their plan.  I guess some do think they're bothering everyone-well, they're not.  Just about everyone knows what it is like to be on that very edge, and though we don't know what their problems are, we all agree on one thing-we know what it is like to want to die. 
Hugs to everyone here on a mean old Monday morning.
Marty

How true your statements are.  I thought my kids and everyone who loved me would be better off it I died.  I went so far as to make a counseling appt. for them after I was gone.  My plan to slice the inside of my elbows failed only because my son walked in on me.  How bad is that????  Now that my kids are adults they tell me how awful it would make them feel if I would have died.  And that they might never have forgiven me.  How selfish I was but it was the only thing I could think of to do was die.  My depression was so deeply set in my core at that time.  Thank God for medicines that work for me.....finally.

 

Susan

 
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May 5, 2008, 10:06 am PDT

SPIRALING IN A BAD WAY........

My daughters 16th birthday was the other day. All she got was our gas getting shut off. Now we have no heat, we can't shower and I can't cook. Sweet 16 huh. I feel like my life is doomed. I feel like there is no hope. God hates me and that's all there is. I was put on this earth to provide a loser and I really just need to get drunk, good thing I can't afford to. Don't worry, I'm not going to attempt suicide, I'm sure I'd screw that up too.  I've been sitting here fantasizing though about killing my ex and all the ways I could get away with it. (If I was really going to do it, I wouldn't be confessing, just so you know). I've been fantasizing about robbing a bank and all the ways I could get away with it (see the previous parentheses). My house is a disaster, my finances are a disaster, I'm filthy and I have a headache. I don't understand why something can't just go right. No matter what I do, everything is wrong. Now my children are paying the price. Yesterday I was ready to give up and send them to their father, who is the cause of most of this. That's exactly what he wants. I couldn't even look at them without crying. I didn't say anything but they must've known because they gathered around me and tried to make me feel better. They made sure I knew how much they loved me and that they know this isn't my fault and they think I'm a really great mom. They vowed to stick with me no matter what their dad throws at me. They would rather be poor with me than rich with him. It's not fair, they shouldn't have to make that choice, they shouldn't have to make me feel better. I got  a job the other day and I quit the same day. It was in the evening and I just couldn't do it. My kids get out of school at 3 and go to bed at 9. This job had me working 3-11. I would never get to see them. I broke down at work at the thought of not being with my kids. I just don't know what to do. I know that this isn't working though. Sorry to bring everybody down but I have no one I can talk to about this.
 

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