Quote From: bmeansI'm the mom of a child who is as severely affected as the child described at the beginning of the show. While her medical condition is due to a chromosome abnormality, the limitations in her life are very similar. She is nearly seven years old and when she was three I asked her geneticist about the possibility of some sort of procedure to prevent her from maturing and going thru puberty. While he agreed with my rationale, he said there was no court in the land that would let me do that. So, here we are....if she lives long enough, we will be lifting, carrying, bathing, diapering and dressing an adult baby. How is that a good scenario for anyone? I have a horrible family history of painful endometriosis, but if she can't talk, how is she going to be able to tell me there is a problem? If she were to have ovarian cysts, how will we know? What do we do when she is grown and her daddy can't take her into the bathroom to change her diaper anymore because she can't go into the men's room and he can't go into the women's room?
I understand that there are a lot of people out there that have strong feelings against the decisions this family made, but to equate it to "cutting off my son's penis" is completely ignorant and unfair. Walk a mile in my shoes. I'm a firm believer that every doctor who is going to deal with children like mine should spend a week as their primary caregiver and see what life is really like when you haven't slept for two years because your child's brain won't let them sleep, or you can't go out together as a family because one of your kids will "humpty dumpty" on you. There is no such thing as a family outing in my house and as my Chloe gets older, it will only get worse.
Just stop and think about walking a mile in the other person's shoes before you take a hard line on one side or the other.
I posted a message yesterday, but it never appeared??
I was sitting here watching the show in tears because of this Dr.'s ignorant and insensitive comments and attitude. Pocket Pal??? Are you kidding?
I really felt like I needed to comment to you because I have a 5 year old disabled little girl named Chloe. She has hyrocephalus, cerebral palsy, cordically blind, tube fed, and is about on a 3-4 month old mental age. She is completly dependent and can do NOTHING for herself. I really don't think people can comprehend the challenges we are presented with every day....Lifting, bathing, dressing, and transporting. Chloe is only 5 and weighs close to 50 pounds, and getting bigger every day.
And these are issues that me and my husband deal with on a daily basis. Now I am feeling nervous and scared about even mentioning this "Ashley Treatment" to one of her doctors, because of the reaction I may get. I applaud ASHLEY'S parents, they were brave and did the best they could for their SPECIAL ANGEL. Chloe is my world, my whole life revolves around her and her needs. And I wouldn't change that for anything......
But I do believe Dr. Masterson owes all of us an apology...maybe she would like to get a glypse in the day of the life of one of us, walk in my shoes for I day. Maybe she would like to make the decisions and sacrifices we make all the time. Then let her say who is selfish and only trying to make their own life convient.
Stacey, LA
Have you ever wanted to talk to your doctor about pressing medical concerns, but were too afraid to speak up? Today, four physicians with four different specialties return to bust medical myths and teach you things you never knew about your body. First up, 45-year-old Pamela has a paralyzing fear of physicians. She was diagnosed with a terminal lung disease six years ago and hasn't set foot in a doctor's office since. Find out what happens when Dr. Phil creates a makeshift exam room backstage! Then, Denise and her husband, Steve, have been trying to get pregnant for three years. Steve says he’s tired of sex being a business deal, but Denise desperately wants a baby. Should she keep trying to conceive or just move on with her life? And, having four kids wreaked havoc on Casey's body, and now she wants cosmetic surgery. Her husband, Jonathan, says a tummy tuck is too expensive, and thinks Casey can get in shape by doing more sit-ups. See Dr. Phil’s surprise for her! Plus, a couple who say their 9- and 15-year-old sons are still not potty trained! Tell us what you think!
