Topic : 07/11 What’s Up, Doc?

It really is frustrating to see the messages that trash my wife and I because we sought out help for our boys.  To be accused of abusing our kids really is way out of line especially since the ones doing the accusing are usually making comments like we need "...a good A** whoopin'" or we "need to have or butts kicked." 

After spending countless hours with Dr.'s and counselors , not to mention thousands of dollars for appointments, we get the joy of being trashed by people who have NO CLUE what we have gone through. 

Do you honestly think that we went on the show to embarass ourselves and the kids? 

When I emailed Dr. Phil about this, the 3rd pediatrician that we had seen told us that they would outgrow the problem.  To my wife and I, that was completely unacceptable.  I figured maybe that someone from the show would email back some links and info to point us in a different direction.  Laxatives and pills, enemas and ignoring the problem (the suggestion of one Dr.) did nothing to help. 

When one of shows producers came to our house to interview us for the show, he told us that he thought that the boys were polite and well-adjusted young boys that had a problem that hopefully Dr. Phil could help us with. 

I know that I can sleep at night knowing that my wife and I have tried to help the kids get through this.

I am appauled to read some of the messages concerning this very delicate subject.  How ignorant can some people be?  Until you have walked in this couple's shoes, who are you to judge?  My son is 9 and is still wearing a pull-up.  He refuses to use the toliet and sometimes doesn't realize he's gone poop.  This has been going on for so long that I can't tell you exactly when it started.  I have taken him to Chidren's Hospital where they performed a go-litely which is basically a 24 hr enima to clean him out.  He got so "backed up" that he wasnt even having regular bowel movements rather just leakage.  After that the Dr.'s put him on laxities and Gycolax to keep his bowels clear.  That lasted for about 3 months and we were back to the same old problem.  I then took him back to Children 's and requested a, and I am going to spell this wrong, barrium enima because I thought may be something was just misfiring.  That test came back negative.  So now that I had gottent the medical questions out of the way, I thought it may be psychological.  He was being treated by 2 different doctors for that.  He has a tendency to shut down and then have these outburst.  He was never diagnosed with this particular problem, but it can only make me wonder if this is not the case. 

My sympathy goes out to all the parents struggling with this disorder.  I know too well the emotional drain it can put on someone.  And how frustrating it can be.  Before taking him to the doctors I felt so embarrassed.  He will be in the 4th grade and I am hoping that this is something that will just "go away".  It's a constant struggle to make him sit on the toliet after dinner.  I am a single mother so to have him do it after every meal doesn't happen. 

I just wanted to share my story with you. 

I am appauled to read some of the messages concerning this very delicate subject.  How ignorant can some people be?  Until you have walked in this couple's shoes, who are you to judge?  My son is 9 and is still wearing a pull-up.  He refuses to use the toliet and sometimes doesn't realize he's gone poop.  This has been going on for so long that I can't tell you exactly when it started.  I have taken him to Chidren's Hospital where they performed a go-litely which is basically a 24 hr enima to clean him out.  He got so "backed up" that he wasnt even having regular bowel movements rather just leakage.  After that the Dr.'s put him on laxities and Gycolax to keep his bowels clear.  That lasted for about 3 months and we were back to the same old problem.  I then took him back to Children 's and requested a, and I am going to spell this wrong, barrium enima because I thought may be something was just misfiring.  That test came back negative.  So now that I had gottent the medical questions out of the way, I thought it may be psychological.  He was being treated by 2 different doctors for that.  He has a tendency to shut down and then have these outburst.  He was never diagnosed with this particular problem, but it can only make me wonder if this is not the case. 

My sympathy goes out to all the parents struggling with this disorder.  I know too well the emotional drain it can put on someone.  And how frustrating it can be.  Before taking him to the doctors I felt so embarrassed.  He will be in the 4th grade and I am hoping that this is something that will just "go away".  It's a constant struggle to make him sit on the toliet after dinner.  I am a single mother so to have him do it after every meal doesn't happen. 

I just wanted to share my story with you. 

I completely agree with you.  My son has been on those same hormone injections just so he would be in the 'normal range'.  Doctors are advocates for that sort of thing but go the other way and you better watch out!  I think Dr. Phil and the producers need to seriously re-think this Dr. Masterson or whatever her name is.  There are numerous other caring and compassionate OB's out there willing to assist and not to apt to judge.

Just out of curiosity, is there any hope of future improvement for your child or is this permanent?  I know any good parent would agree with me when I say I would do anything for my child.  And, as hard as it has been, I wouldn't trade one single second to be with my son.  I have devoted my life to his well being and I couldn't be more proud of how he has handled his difficulties.  But, no parent deserves this and shame on anyone who wants to point the finger and judge them for their decisions.  My heart goes out to you! 

   Hello, I was really upset for Pamela because she was told by Dr. Stork, on national T.V. along with other viewers ,that sarcoidosis goes into remission. That is a total misconception. I have the disease in my lungs and in my central and peripheral nervous systems.

The NIH did a two year access study a few years ago, and the report said that it does NOT go into remission. Please see http://AutoimmunityResearch.org/access-2yr.htm

Maybe her lungs are OK now, but the disease will attack somewhere else later. The disease is caused from cwd bacteria that evade the immune system.

Pam and every other sarcoidosis sufferer deserves to know about the science behind their disease. Please look at www.marshallprotocol.com. It has saved my life.

LeAnne  from Augusta, Ga.