Topic : How I Fought My Illness

I have been fighting with these illnesses amongst others for 7 years straight now.  I'm 30 today.  Please, if you have been suffering with these illnesses, get some support.  I go to Immune Support.com and get tons of support there.  It has been an extremely positive way for me to deal with these illnesses.  We are presently starting a letter campaign to bring more awareness to these illnesses.  Please, if you haven't already, take advantage of the information and support Immune Support offers.  it is a free service to us, and we make many friends and share tons of information.  You won't remember how you got along without the support after becoming a member.  They have chat rooms and message boards available to get support and answers to how people cope daily. 

Yours truly, 

Kristie : ) 

fyte4acure 

Hi Kristi, I too have been struggling my way through with CFS and FM for over 12 yrs now, acutely I might add.  I used to go to that same chat site but was booted permanently for giving out my email address, which is unfortunate considering I'm a support person locally and listed with the CFIDS Asso. of America.  I did find that room fun and helpful during my time there.  It still strikes me odd that 'we' are still so invalidated as an ill group of people not only by most physicians, but by friends and family as well in many cases.  "Invisible Illness" is most difficult to deal with as an individual, and we need all the help and support we can get.  By the way, the CFIDS Chronicle this month is dedicated to research on us, finally.  We truly need all the help and support we can get.  I hope you're doing well at present.  I wish you well.... 

Sincerely, jkpeachy 

It has just occured to me that I posted in this area a very negative post and now realize this was a place for positive not negative posts. 

Please accept my apology! 

Joey 

Hello everyone, 

This is my first post to the board but I have been a member for a few years now.   I am engaged to a wonderful man (who has his issues but is still wonderful) anyway, I am VERY VERY concerned for his well being and his LIFE!!!!. 

Ryan has SEVERE SLEEP APNEA among other heath issues (over weight, high blood pressure, depression and anxiety to name a few).  He stops breathing on average 50-100 times a night from the sleep apnea.  I am terrified that he will stop one of these times and not start again. 

He has to sleep straight up at times so he does not stop breathing but it is very difficult because he had hip surgery (which left him with no range of motion or strength) as a teen and is unable to walk, stand, or barely move because of that issue.  Which brings me to being over weight to a dangerous degree.  Not being able to move or exercise is a huge part of it.  Depression has taken over (he has days he doesn't even want to deal with it anymore but does for me and his mom), he is not able to get a good or even a decent nights sleep and is tired all the time. 

He has no insurance as he is unable to work due to the hip issue, weight, fatigue and depression/anxiety.  I have gone every avenue that I can think of to get him help and am now considering  going  to the Dr. in his place to get him what he needs.   He has to have a C-PAP machine..............  He Desperately needs one. 

I am disabled due to a horrific auto accident in 2001 (I won't even get into my own issues and health problems in this post as it would be too overwhelming) and do not have the resources to get him the machine (they are anywhere from $3000- $5000.)  Who the heck could afford that, what is wrong with people. 

I need help and don't no where to turn...........  Ryan is my whole world and if something was to happen to him I would not know what I would do......  I have not wrote to Dr. Phil as I know there are so many other people that need his help too and some to a more severe degree but Ryan's life is in danger and sadly the people that love him are the only ones that care.  He can't even get the meds he needs and the blood pressure meds if not taken can cause a heart attack if not kill him 

Due to being overweight to the degree he is he can not even get quality health care at an emergency room as they all say the same thing "you will not fit in this machine"  "Your weight is keeping us from helping you get the help you need."  "We can't help you because you have no insurance and no way to pay for tests, meds etc. "  What the hell is that................. I guess money is more important than a human life these days....... 

  He needs help losing the weight and can not do it on his own....  Gastric Bypass is not even an option because no one will even let him in the door to get help because he has NO MONEY, NO JOB, and NO ASSETS FOR CREDIT..... 

I will end this post as it is becoming a large book.  Thanks for listening and I would love to get any suggestions/ideas any of you may have. 

Thanks, 

Joey (female) 

Just want to help... 

In my groin area, it is smaller,  Lower back pain  right side,, Kidneys.  Have to get to Doc. 

Can make my own penicillin off of Coffee Grinds,  Will take six months, have to be Crystal pure white. and hard.. And  Look out  P.U. 

Avian Flu Is mutating too.  The More outbreak in one area,Its up to 15, In one area. and the The environment changes, Will transfer to humans  to humans soon.   

Take care.  John 

Faith, 

I am sorry to hear about your nefew.  I do not know a whole lot about this illness.  I can say that fibromyalgia and any other illness with unknown causes can be extremely stressful.  The unknown can create a lot of confusion, frustration, and helplessness.  Symptoms of what he has is very similar to symptoms of MS and fibromyalgia.  Maybe you can join a chat group regarding one of these and share your story.  I'm sure they would listen.  I chat on Immune Support.com   They have moderators who know a lot about fibromyalgia and other diseases.  There is also a message board in this site.  I hope you get the answers you need and he needs.  How old is your nefew?  How is he coping?  How are his parents coping? 

Yours truly, 

Kristie  

fyte4acure : )