Topic : Living with Chronic Pain

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Created on : Thursday, July 07, 2005, 09:06:20 am
Author : dataimport
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July 11, 2008, 5:03 pm PDT

Living with Chronic Pain

Quote From: dianah

Hi there

 

Went to turn on the TV and nothing, think the wind has something to do with it..

 

So, next best thing to General Hospital, all of you...

 

Prof..  It should be 5 PM your time now.. Okay.. what is "aspiration"????

 

I was hoping they would have the results TODAY.. not Wed.. I think they should at least call the Dr ASAP and that way he could start you something TODAY....

 

I have to Laugh... I thought I was the worlds biggest baby... and now I find out, I'm in the running with YOU...

 

Prof, there was a HUGE reason I only had one child.. PAIN... ha ha ha... I had never, ever had stitches or IV until I was in labor.. I threw up the entire time.. If I have a headache or stub my toe.. I throw up.. My worst night mare is surgery.. for some reason, the thought of a Hysterectomy, makes me Sick.. that has to be the worst... they are yanking out vital organs from you, or sucking them out... No Thanks.......................................

 

That is why I have never allowed Pain Dr to do any needle crap stuff on me.. No Way....

 

And let me share with you.. the thought of them cutting on or opening my knee.. I could work myself up pretty good if I think about it....

 

So... I am really feeling for you right now.....

 

Oh, Poor Hank.. let me tell you.. I know this HURTS... he needs to Tape that toe to another one and fast. If not, it will heal funny... he needs to keep tape on it for at least a month.. and soak it and ice it.....

But, tape is the key to keeping it straight when it is healing....

 

Another thing I wanted to tell you.. I was reading when you have break-outs on your face.. You take Honey and put it on a band-aid and put over the sore and leave it on all night.. I have been doing this and it is helping.

 

The other afternoon, I just pulled my hair back and put it on all over and let it sit while I was watching TV . But there is something with the band-aid..??? Oh I know, keeps the honey from sticking to Everything.. ha ha ha....

 

Can't wait to hear how your afternoon goes today...

 

Has the fever broke at all????

 

We are having really high winds today.. I was going to BBQ.. but now, I'm going to just make a cheeseburger pie from Bisquick...

But, have to get on their site and find the recipe.. cause it's not on the two box's I have..............

 

Hubby and I ran around until noon today and I tired to take a nap.. but no luck....

 

It's only 71 degree's right now....

 

Okay.. I'll check back later on tonight...

 

Love Diana

 

 

 

hi --

 

OUCH!  no, it wasn't all that bad -- i mean, it hurt worse, but it already hurts so much, the difference turned out not to be a big deal.  (did that make sense?)

 

a physician's assistant did some lidocaine injections and then the radiologist came in to do the dye test (for placement) and, finally, the aspiration (pulling out fluid from around the joint with a spinal needle).  she wasn't sure that they got what they needed but they did the best they could.  there wasn't any visible pus, so she injected some saline around my shoulder prosthesis and pulled that back out.

 

it will take 5-7 days for the cultures to be grown and evaluated.

 

i will allow myself *one* vent, no, *two* --

 

1.  i told the nurse checking me in that i have crps/rsd and could she find out if they followed a special protocol?  in a heartbeat, i could see that she didn't know what CRPS was... but she refused to ask. 

so when i get into the procedure room, the PA frowns and looks at the nurse's notes, and says:  "what is CRPD?  and why do you have it in "all four ribs""?  is there something wrong with saying "i don't know"?  is it really better that she INVENT a disease and have it attacking me "in all four ribs"?  what the hell does that mean:  "in all four ribs"??????  who only has FOUR RIBS????

 

i think we should have a competition to name this new disease:  CRPD

C =

R =

P =

D =

 

2.  i have decided that the more ï say "please don't touch my legs," the more my legs will be touched -- with the excuse given being "i was just trying to help!"  -- several times during the procedure i had to move my right leg -- it was covered with sheets and charts and crap and was burning like crazy.  i would say first -- please don't touch my leg and BAM, the nurse would grab my foot, or my knee... "just trying to help."  hank told me that when i was in ICU i kicked the heck out of a couple of people... i almost added another victim this afternoon.

 

but that would have been... wrong...

 

so i am home, fever is 100.6 -- on top of tylenol and ibuprofen.  pain is 9/10 and i feel pretty bleak.  the stuff that they got out of me looked pretty clear -- if the infection isn't in there:

 

1.  something else is seriously wrong in there -- a fracture?

2.  WHERE IS THE INFECTION?

 

 

dr. go-to-guy's nurse mailed me my lab results (cumulative) -- and my white count has been jumping up every blood test since 12/07!  it is 17,l00 now. 

 

thank you for checking in on me --  i am going to get the heating pad -- my neck, above where she stuck me, is aching to high heaven.

 

have a good one... i hope you'll get good sleep tonight.

love,

prof

 
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July 11, 2008, 5:15 pm PDT

hank's toe

oh -- hank won't do *anything* for it for some reason.  nothing. i guess he is being a tough guy. 

 

he is beginning to have "sympathy" stress symptoms -- his neck is cricked, he has pulled his back, his intestines are acting up...

 

he needs a break.

 
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July 11, 2008, 6:57 pm PDT

Hi Prof

Quote From: profderien

hi --

 

OUCH!  no, it wasn't all that bad -- i mean, it hurt worse, but it already hurts so much, the difference turned out not to be a big deal.  (did that make sense?)

 

a physician's assistant did some lidocaine injections and then the radiologist came in to do the dye test (for placement) and, finally, the aspiration (pulling out fluid from around the joint with a spinal needle).  she wasn't sure that they got what they needed but they did the best they could.  there wasn't any visible pus, so she injected some saline around my shoulder prosthesis and pulled that back out.

 

it will take 5-7 days for the cultures to be grown and evaluated.

 

i will allow myself *one* vent, no, *two* --

 

1.  i told the nurse checking me in that i have crps/rsd and could she find out if they followed a special protocol?  in a heartbeat, i could see that she didn't know what CRPS was... but she refused to ask. 

so when i get into the procedure room, the PA frowns and looks at the nurse's notes, and says:  "what is CRPD?  and why do you have it in "all four ribs""?  is there something wrong with saying "i don't know"?  is it really better that she INVENT a disease and have it attacking me "in all four ribs"?  what the hell does that mean:  "in all four ribs"??????  who only has FOUR RIBS????

 

i think we should have a competition to name this new disease:  CRPD

C =

R =

P =

D =

 

2.  i have decided that the more ï say "please don't touch my legs," the more my legs will be touched -- with the excuse given being "i was just trying to help!"  -- several times during the procedure i had to move my right leg -- it was covered with sheets and charts and crap and was burning like crazy.  i would say first -- please don't touch my leg and BAM, the nurse would grab my foot, or my knee... "just trying to help."  hank told me that when i was in ICU i kicked the heck out of a couple of people... i almost added another victim this afternoon.

 

but that would have been... wrong...

 

so i am home, fever is 100.6 -- on top of tylenol and ibuprofen.  pain is 9/10 and i feel pretty bleak.  the stuff that they got out of me looked pretty clear -- if the infection isn't in there:

 

1.  something else is seriously wrong in there -- a fracture?

2.  WHERE IS THE INFECTION?

 

 

dr. go-to-guy's nurse mailed me my lab results (cumulative) -- and my white count has been jumping up every blood test since 12/07!  it is 17,l00 now. 

 

thank you for checking in on me --  i am going to get the heating pad -- my neck, above where she stuck me, is aching to high heaven.

 

have a good one... i hope you'll get good sleep tonight.

love,

prof

I am so sorry that you are going through such an ordeal. Seems that summer is not good to us at the moment. I've had all of you on my mind -- haven't felt up to responding.  Went to my "Happy Pill" Doc yesterday (neurologist who loves to hand out the meds).  That seems to be his answer to everything and I was hurting so bad, I was willing to take him up on all of his prescription pad offers. 

i believe that the nurse you saw really MIGHT have CRPD (Can't Really Predict Dumbness!)  Medical personnel just throwing something down on paper to fill out her stupid form. UNbelievable but unfortunately so common. Isn't it incredibly scary??  I sure hope something comes out of these tests so that you will know what's going on -- I came to the conclusion through all of this that perhaps we are all so logical about things that we want to know WHY to everything.  I have driven myself crazy wanting to know what is causing this and what is causing that and WHY< WHY< WHY...I think I need to just realize that sometimes there just is not a specific logical explanation and leave it at that. I want to research and find out what could be causing things --- I'm just making myself crazy over it.

Well, enough of my drug induced rambling -- Please take care of yourself and thanks for keeping us posted on how you're doing -- We all worry, as you know, when we don't know the condition of those who are flaring, so to speak.  I'm the worst offender for disappearing.  Sometimes it's just too depressing.

I'll post more this weekend after some rest -- I truly hope you start feeling better and that your fever will come down and you can get things in check.

All the best --- love and hugs,

Debbie
 
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July 11, 2008, 7:02 pm PDT

Hankster's Toe

Quote From: profderien

oh -- hank won't do *anything* for it for some reason.  nothing. i guess he is being a tough guy. 

 

he is beginning to have "sympathy" stress symptoms -- his neck is cricked, he has pulled his back, his intestines are acting up...

 

he needs a break.

 I hope Hank's toe is not giving him too much pain- that is so hard because you can't really do much for toes, I don't believe. Sounds like those kitties might have to start pitching in and helping you guys, huh?!?

They surely sense that you all are feeling bad -- they can always figure out when people are sick.  All the best for a quickly healing toe.
 
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July 11, 2008, 7:09 pm PDT

Dear Diana,

Quote From: dianah

Hi there

 

Went to turn on the TV and nothing, think the wind has something to do with it..

 

So, next best thing to General Hospital, all of you...

 

Prof..  It should be 5 PM your time now.. Okay.. what is "aspiration"????

 

I was hoping they would have the results TODAY.. not Wed.. I think they should at least call the Dr ASAP and that way he could start you something TODAY....

 

I have to Laugh... I thought I was the worlds biggest baby... and now I find out, I'm in the running with YOU...

 

Prof, there was a HUGE reason I only had one child.. PAIN... ha ha ha... I had never, ever had stitches or IV until I was in labor.. I threw up the entire time.. If I have a headache or stub my toe.. I throw up.. My worst night mare is surgery.. for some reason, the thought of a Hysterectomy, makes me Sick.. that has to be the worst... they are yanking out vital organs from you, or sucking them out... No Thanks.......................................

 

That is why I have never allowed Pain Dr to do any needle crap stuff on me.. No Way....

 

And let me share with you.. the thought of them cutting on or opening my knee.. I could work myself up pretty good if I think about it....

 

So... I am really feeling for you right now.....

 

Oh, Poor Hank.. let me tell you.. I know this HURTS... he needs to Tape that toe to another one and fast. If not, it will heal funny... he needs to keep tape on it for at least a month.. and soak it and ice it.....

But, tape is the key to keeping it straight when it is healing....

 

Another thing I wanted to tell you.. I was reading when you have break-outs on your face.. You take Honey and put it on a band-aid and put over the sore and leave it on all night.. I have been doing this and it is helping.

 

The other afternoon, I just pulled my hair back and put it on all over and let it sit while I was watching TV . But there is something with the band-aid..??? Oh I know, keeps the honey from sticking to Everything.. ha ha ha....

 

Can't wait to hear how your afternoon goes today...

 

Has the fever broke at all????

 

We are having really high winds today.. I was going to BBQ.. but now, I'm going to just make a cheeseburger pie from Bisquick...

But, have to get on their site and find the recipe.. cause it's not on the two box's I have..............

 

Hubby and I ran around until noon today and I tired to take a nap.. but no luck....

 

It's only 71 degree's right now....

 

Okay.. I'll check back later on tonight...

 

Love Diana

 

 

 

I hope you are feeling better by now - I've been so neglectful in my posting but wanted to thank you for being so sweet and always 'checking' on me.  It means a lot and gives more support than you know.
You asked about my mom awhile back - thank you - great memory!!

She is actually doing remarkably well considering she's 81. She is able to walk with a cane instead of the walker that she was on just after her stroke.  My brother has moved in with her, God love him.  I do the grocery shopping on Saturdays for them, pick up meds, banking, bill paying, etc.  My brother has so much on him now and can only work when I am with her.  She can't be left alone - she has fallen several times. Didn't get hurt, thank goodness.  Occassionally, a friend or neighbor will come by to give him a break but my mom is really funny about anyone helpnig her except us.  My sister has been practically non-existent since my mom came home.  She only lives 1 1/2 hours from here, her children are grown, and she is divorced. But incredibly self-centered so only does what she wants to do and then she acts as though she is Queen Elizabeth bestowing herself upon us lucky peasants!!!!  She's always been that way. My brother is very caring and thank God for him.  So he and I just plug along as best we can. 

The hubby situation got much worse for awhile and then I just stopped concentrating on it. Decided to concentrate on me and make his problems HIS problems. Things have turned around a bit but I still don't know where all of this will go in the end.  It's a shame really but when someone is an alcoholic, booze is most important in their lives.  It's such a waste - he really can be a very good person.

Well, I'll update you more when it's not so late - boy, as I showing my age - late is now 10:00 pm (really, it was 8:00!!)  You take good care of yourself - I'm sorry you haven't been feeling well.

All the best - love, hugs, kiss on the cheek, my friend...

Good night,

Debbie
 
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July 11, 2008, 7:13 pm PDT

Sims...

Quote From: simonecornelia

Dear Becca,

 

Cybermama sims, love the name.

 

I am glad you value that time with your daddy even when it was a rocky past. Everybody disurves a second chance and i hope he (or you, not meaning harm) does not mess up this time, so good for you.

 

I gave my parents both an other chance, with my father it worked out for a couple of years, because he passed away when he was 49, so i do value that time i had with him, also after a rocky past, even a storm-past. But my mother messed up again, and now she is alone and unhappy but i don't care anymore. She may have hurt me but hurting my children was too much, if you understand what i am saying.

 

So, my cyberdaughter, enjoy every minute, they are pressious*. Have indeed a very good weekend and be careful with fire-works, ok?

 

Love, sims

 

I am just checking in with you to say hi and see how you're doing. hope you are well. Seems all of us are having some issues these days.  It's good to see you here again - we have missed you!!

You take good care of yourself, my friend, and I'll check in with you again soon.

love and hugs to you,

Debbie
 
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July 12, 2008, 8:05 am PDT

Prof.. Good Sat Morning (I Hope)

Quote From: profderien

hi --

 

OUCH!  no, it wasn't all that bad -- i mean, it hurt worse, but it already hurts so much, the difference turned out not to be a big deal.  (did that make sense?)

 

a physician's assistant did some lidocaine injections and then the radiologist came in to do the dye test (for placement) and, finally, the aspiration (pulling out fluid from around the joint with a spinal needle).  she wasn't sure that they got what they needed but they did the best they could.  there wasn't any visible pus, so she injected some saline around my shoulder prosthesis and pulled that back out.

 

it will take 5-7 days for the cultures to be grown and evaluated.

 

i will allow myself *one* vent, no, *two* --

 

1.  i told the nurse checking me in that i have crps/rsd and could she find out if they followed a special protocol?  in a heartbeat, i could see that she didn't know what CRPS was... but she refused to ask. 

so when i get into the procedure room, the PA frowns and looks at the nurse's notes, and says:  "what is CRPD?  and why do you have it in "all four ribs""?  is there something wrong with saying "i don't know"?  is it really better that she INVENT a disease and have it attacking me "in all four ribs"?  what the hell does that mean:  "in all four ribs"??????  who only has FOUR RIBS????

 

i think we should have a competition to name this new disease:  CRPD

C =

R =

P =

D =

 

2.  i have decided that the more ï say "please don't touch my legs," the more my legs will be touched -- with the excuse given being "i was just trying to help!"  -- several times during the procedure i had to move my right leg -- it was covered with sheets and charts and crap and was burning like crazy.  i would say first -- please don't touch my leg and BAM, the nurse would grab my foot, or my knee... "just trying to help."  hank told me that when i was in ICU i kicked the heck out of a couple of people... i almost added another victim this afternoon.

 

but that would have been... wrong...

 

so i am home, fever is 100.6 -- on top of tylenol and ibuprofen.  pain is 9/10 and i feel pretty bleak.  the stuff that they got out of me looked pretty clear -- if the infection isn't in there:

 

1.  something else is seriously wrong in there -- a fracture?

2.  WHERE IS THE INFECTION?

 

 

dr. go-to-guy's nurse mailed me my lab results (cumulative) -- and my white count has been jumping up every blood test since 12/07!  it is 17,l00 now. 

 

thank you for checking in on me --  i am going to get the heating pad -- my neck, above where she stuck me, is aching to high heaven.

 

have a good one... i hope you'll get good sleep tonight.

love,

prof

Hi there

 

I am so hoping that you slept last night... After your week, and yesterday alone.. Sleep would be the kindest thing on your mind and body.....

 

Not enough coffee in me yet to come up with a new name.. but give me a few days..( Loved Debbie's response...)

 

Oh, I would have needed to be knocked out on what they did to you.. I am so Proud of You for doing it to it and being so brave.....

 

Do you remember when you took the "tumble" here a while back?? did you fall on this shoulder side??

My brain is running 100 MPH here..

 

Okay.. 5 to 7 days for this to process... the waiting game....

 

Your day and week, just shows how the entire "system" is at a total "loss" in the health care. And what amazes me, now thinking about it...

 

Depression is just Now becoming a huge "awareness" . And what follows this is Mental Illness, That people do suffer...

Thinking back.. in the 70's.. was the thought that a person who suffered was just having kick backs from the drug error in the 60's???

 I think everyone who heard this word.. would think of that movie.."one flew over the coo-ck-coo-ck nest.

 

And now, we can talk about it, read about it and it's even Public announcements for depression day......

 

So, now we have the "chronic illness.. How long has it taken to even print the word Fibromalgia?? And even have a "drug" that might help.. Same with arthritis.. it's taken Years for this to even be acknowledged and talked about...

 

Then a person will say "Pain Management Doctor" and the first thing that comes to someone's mind is Hyipocondract  or drug addict. or weak or crazy....

And of course, the word Chronic Pain is right along with this....

 

So then.. just start to add illness's like... CRPD... and were right back to CRAZY....................................

 

Then you take a person who "looks" okay.. and add chronic pain and everyone is like, well, you walk and talk.. what the hell is wrong with you.......

 

Okay.. now my turn... (did this make since) ?????? HA HA HA.........

 

I was asleep by 11 and slept all night long.. YEAH......

 

Oh... I thought my Fuzz Bucket was a goner yesterday...

 

Thur night, I could not find her to come in.. then Fri morning.. no Fuzz.. so I told hubby something has happened..

SO when we got home yesterday afternoon, we were on the search for her.. Well.. we found her, but she has a Sore Front Leg/Paw.....

Something happened to her....

 

So.. she slept all afternoon and night and was just up for a little while and back to bed... Oh, I was making myself sick....

 

I hope the heat pad helped last night....

 

Check in when you feel up to it......

 

Love Diana

 

 

 

 

 

 

 

 
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July 12, 2008, 8:19 am PDT

Hi Debbie

Good Sat Morning To You

 

It made my Day to have a note from you... Yahoooooo....

 

I am so glad your Mom is doing better. And bless your Brother's Heart for stepping up to the plate. This is such a huge problem and that he has dropped everything to be there for Mom, is wonderful....

 

And of course, you too... Between, home, work and then adding more to it... Bless Your Heart also...........

 

Also.. way to go with Hubby... That's awesome that you have made such a huge change in your thought process and not letting it get you down.. That has to be a huge weight off your shoulders to let this go and to move forward.

Ha, you are not letting this "beat you down"... YOU GO GIRL................................

 

I think if it was not for my knee problems, I would be okay here. Of course, the summer is always the best three months for my body all year long.... loves the heat......

 

I hope the weekend has some kind time for you after all your running and chores and house stuff... I think we forget to take time- out for US.....

 

Sending you a Special HUG for today...

 

I have missed you.....

 

All My Love and Hope.         Diana

 
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July 12, 2008, 8:26 am PDT

On my Last Cup of Coffee....

Wanted to say HI to Becca and Sims...........

 

Not sure what today is going to bring.. Still in my PJ's and on my last cup of coffee..

 

Hubby wanted me to get up at 4 this morning and go with him to "look" at deer.. NOPE was my answer..

 

So, woke up and here he was.. I guess 4 AM was not looking so great to him....

 

Think we are waiting on a call back from our 4-wheeler guy.. he did some trade work for us and need to get it picked up.. he's 68 miles away...

So.. I would go on a road trip if he calls back... But my guess, he's off this weekend.....

 

Our high yesterday was 71.... and calling for low 80's this weekend.. SO that is great// Right now it's 62.

 

Okay.. wanted to say hi to EVERYONE and I hope today will be a good day for ALL OF US.......................

 

HUG HUG HUG and HOPE HOPE HOPE...

 

Love Dianah

 
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July 13, 2008, 6:19 am PDT

Sunday Morning, Coffee Anyone????

I hope the "silence" on the board is due to busy and not PAIN..

 

I am not being a very nice person, the knee pain is making me a total Bitch.. It' the every-time you move your thoughts are.. just cut it off....

So, I'm really going to "try" today.. to shut my big mouth and not be so mean...

 

I will see the knee Dr on Wed morning.. Then we have our Garden Walk on Thur.. The thought of missing this would just make me sick.. I love this day..

 

Then Wed night, I have to be at the race track at 5:30 and take three chairs with me.. They are having a Special Race and Hubby wants to go after he gets home from work and a friend also wants to go.

And this is okay.. get my chair nice and set up and I'm ready to sit for the night....

 

Then... have to work in my "work" all week also... But.. will have my helper.. so that is the big help...

 

It's 50 degrees right now. And no wind.. It blew all day yesterday..

 

I put a pork loin on the grill last night and sliced potato's and Brussels sprouts.. also made a low fat coconut pie.. So at least our tummy's were happy...

 

PROF... Hey, Deadwood is back on. They are starting from the Start. Last night, Wild Bill was buried.

So, that will be my Sat night thing to watch now... Funny, this entire show, we missed last time, so glad they are playing it again..

 

Well, have some tree's to water this morning and not sure what the day is going to bring.

 

Happy Sunday... Love Dianah

 

 

 

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