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Topic : Living with Chronic Pain

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Created on : Thursday, July 07, 2005, 09:06:20 am
Author : dataimport
Do you or someone you love suffer from chronic pain? Share support with others here.

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dianah
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May 13, 2006, 12:21 am PDT

Living with Chronic Pain

HI there 

  

Wanted to Send a Huge THANK YOU to you girls who were holding my hand tonight. 

  

Of course could not sleep, thinking about Cindy and hopped on here and made my night to know you are holding my hand while I am dealing with this.. 

  

What is it called when a spouse is taking care of you and they get burned out???? what is that called?????? 

  

I am sitting here talking out load to myself and trying to think what this is called,, besides burn out... 

  

Wow, a lot of post today and so happy to see Zippy is back on and also our jmill is back.. 

  

Wondering were Pickles is tonight and how she is feeling... 

  

Again, thanks for being here for me.. 

  

Sending a hug and hope and all my love.. Dianah 

  

  
 
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woofer1211
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May 13, 2006, 6:58 am PDT

DEAREST DIANAH

Quote From: dianah

HI there 

  

Wanted to Send a Huge THANK YOU to you girls who were holding my hand tonight. 

  

Of course could not sleep, thinking about Cindy and hopped on here and made my night to know you are holding my hand while I am dealing with this.. 

  

What is it called when a spouse is taking care of you and they get burned out???? what is that called?????? 

  

I am sitting here talking out load to myself and trying to think what this is called,, besides burn out... 

  

Wow, a lot of post today and so happy to see Zippy is back on and also our jmill is back.. 

  

Wondering were Pickles is tonight and how she is feeling... 

  

Again, thanks for being here for me.. 

  

Sending a hug and hope and all my love.. Dianah 

  

  

Hey darlin, I am so sorry to hear about your friend. I havent been able to check in for a few days. It took me awhile to read all the new post, then I got to yours and had to take a min. to reread what you were saying. I know you have been dealing with this for some time , previous posts. What a very special and dear friend you are. Never doubt about what you have done and how you have been there for her. I know when I have tried to be there for someone and it goes from bad to worse, I start to question, " what if I had only done more or what did I miss that would have helped more". You, my friend, have done all that could be done on your part. Just know that I have such admaration for you and love you bunches. I hope that you rested well and have a much better day today.                      Cheryl Lynn 
 
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straycat
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May 13, 2006, 9:46 am PDT

Living with Chronic Pain

Quote From: profderien

dear dianah -- 

  

you've done more for your friend than most would do to help another.  you were *there* for her and even if she doesn't know what you've done for her, she will when she gets better.  it is great that they will rule out physical illness as a source for her mental state -- great that they will evaluate and treat her -- and it is equally great that you take a break from her.  everyone here knows the ill effects of stress on pain... take 15 minutes to do something luxuriant for yourself... 

  

prof 

 Dianah you did the very best you could do, many people would have never even stayed with her at the hosp. God bless you,   Alice
 
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profderien
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May 13, 2006, 10:33 am PDT

d'ann

Quote From: sudonia

Hello, I have posted a couple of times just to vent and acknowledge all of you out there who suffer daily with pain the way I do. I will be going to a new doctor and I will see what he says. I went to a pain management doc over in MS, but he wanted to do 3 facet joint injections when I have had them before and they didn't work. I have herniated discs and degenerative issues now. I was glad to cancel the injections and I hope that this new doc doesn't freak out on my medication which I have been taking the same dose for 2 years and allows me to get up and around. Witout it, I am in so much pain I can't get out of the bed, and then even the bed hurts. I even have my heels hurt if I am lying on my back. It feels like I have bruised hips if I lay on one side too long. I did get a new matteress and it has helped, but these cold, rainy days can be something else and make everything hurt. I really feel for all of you who hurt everyday. I know what you are going through, and I am happy to have this place to talk to each other, though your stories make me cry. I wonder how I will be when I am 50, 60, 70? I am only in my 30's and some days feel like I have the body of an invalid. I really don't know what all is really wrong back there, but it gets worse and worse. It is like knives just stabbing me, or just wedged in my spine and lower left side of my back. I keep reading all the posts for some clue to something that hasn't been found yet. I will check this board everyday. Thanks for listening! 

  

D'Ann 

hi d'ann -- 

  

it's nice to meet you, although it would be better to meet elsewhere -- not surrounded by chronic pain. 

  

i can relate to what must be the signature sign of neuropathic pain -- because i hear and read people using these same words, over and over: -- and i use them myself:  

  

it is like knives stabbing... or pain like an electric shock... and usually, to accompany the stabbing, burning pain -- there is a deep ache added on -- from the bones involved as well? 

  

how did i do?  i was just trying to imagine your pain -- if that is at all possible. 

  

i think you are in the same predicament  that i found myself in about 2 years back-- needing a pain management doctor willing to use a prescription pad -- as well as complementary stuff -- physical therapy, relaxation, joint injections...  after my first joint replacement, i finally added intentional exercise --  i did t'ai chi until my balance went kaput and the bones in my feet began to break! i have replaced that with a stationary dual action bike.  it is really important to keep moving.  even when it hurts like hell.   

  

i will be thinking of you and your first meeting with the new doc -- hope it goes well.  do what you can in the interim and don't think about the long-term... think about today, right now. 

  

thanks for listening, as well! 

profderien 
 
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spicylady
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May 13, 2006, 10:59 am PDT

ouch

Dang I Know exctacly how some of you feel. My body aches every day no pain relife ever.  I have tried so many meds. nothing helps.  Just sort of lets ya get up and do a few things. I am only in my early forties. But feel like 90. So my things are wrong with my body. I have always been very active. Swam with an Olypic Team played all kinds of sports. Then one day at work I fall. Next I am in a world of hurt. Everyday is a nightmare. Feel like sinking into the darkness. With every bone and muscle in pain. I wonder how anyone can life like this. I am at the point I feel like giving up. The nueropathy is enough to send one over the deep end. I am really doubting my sanity.
 
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pickles
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May 13, 2006, 2:01 pm PDT

Living with Chronic Pain

Quote From: dianah

Just checking in. 

 

Had a busy day in the kitchen, made a turtle cake and then just a choc cake, which I made cupcake with the choc... 

 

Had a surprise party for a friend and it turned out great, she was surprised and had a good turn out and she made out like a bandit on her presents.. I got her this really cool journal book, I liked it so much, I got myself one also.. 

 

I had my right side wisdom teeth pulled. When I was 18 I had the left side pulled. But my dentist wanted them out so they did not cause problems with my other teeth, HA, the only thing on my body that is any good, my teeth.. so wanted to get them out.. Doing great today.. just sore on my jaw and throat.. so that's good news,, kinda funny, but I love going to the dentist and getting my teeth cleaned, always have like to go.. 

 

I am so glad that the bank is being nice and that has to be a huge weight off of you.. there is nothing worse than someone being nasty with you. You already feel bad with out their help!!!! 

 

Have to see how the weather is in the morning and might go fishing... 

 

Too funny about you seeing snow once in your life. And then me, have been in the snow all my life... 

 

Wishing you a great Thursday... 

 

Sending you a hug and all my love... Dianah 

Hi there, Dianah, 

Gee it's Saturday night here now 10:40pm (just put in 12 hours work today) and thought I would call it a day now. Haven't been on the site for a day or so, so will have to take time out to catch up on all the news. 

Hope you didn't make the cake from an actual turtle (lol). Never heard of it before - mind you I'm not a cake eater. Once in a blue moon I'll have a piece but otherwise rather prefer savoury things. Glad to hear that the surprise party went off well. It's so nice to do something like that to someone. 

Hope that your jaw is doing fine now and no pain - you endure so much to have that on top of it. When I want my teeth cleaned - just pop in steradent for the night and they come out brilliant white in the morning (ha ha). When I was 44 was the last time I went to the dentist for a problem. Very painful on the left side at the back - man that was pain! Affected my ears and I was crying with the pain (not a cry baby usually) but eventually they found out it was a piece of the root from the wisdom tooth that had gone septic - had to have it cut out, my the pain! and that was after 27 years. 

Well the shoulder pain is really sore sore sore after my mishap on Thursday. But I just take stopain and an anti inflammotary at night. I find this helps me sleep but there's work to be done and it takes my mind of the pain until I get up from my desk and do other things then I feel it. 

I had a pleasant surprise on Friday - so desparate for money to pay the bills that I really was so down. I prayed and prayed and 2½ hours after that my prayer was answered. Just amazing how it worked. I was working but all of a sudden got up, had a shower, did my hair, and even put mascara on (I never use the stuff but just felt I should put it on), sat down to carry on working and there was a knock at the door. One of my old clients came to me for me to do a big job for him. 

So it also shows that it doesn't pay to be nasty to people.  

Our weather this week has been lovely outside but inside (because of the tiles) it's freezing I have to have the heater on. 

We've had a few uninvited guests in our back yard again. Thought it had stopped but it's back. The hubby has put booby traps by the wall that they usuall come over but noww they come over the back gate. We've had so many that it doesn't worry me too uch. My son and I have sat and watched them - they know they have to tip toe because of our dogs. But sometimes they have surprised us and managed to break into three of our cars. My son's, my hubby's old old car that there is nothing left to steal and of course mine. My other son seems to have been the only lucky one in our family. For some reson they don't like his car, and they are all Opels. 

Anyway I hope the rest of your saturday is funtastic - I am now going to read a few messages and then go to bed - taken my pills. 

You take care of yourself now 

Hugs and hugs and love............Pickles 

Yep snow once in all my life - uncanny that. Maybe one day I'll get to se it again. 
 
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spicylady
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May 13, 2006, 2:10 pm PDT

keep the faith

Quote From: jb7ctx

One night a man had a dream. He dreamed he was walking along the beach with the Lord. Across the sky flashed scenes from his life. For each scene he noticed two sets of footprints in the sand-one belonging to him and the other to the Lord. When the last scene had flashed before him, he looked back at the footprints and noticed that many times along the path there was only one set of footprints in the sand. He also noted that this happened during the lowest and saddest times in his life. This really bothered him and he questioned the Lord. "Lord, you said that once I decided to follow you, you would walk all the way, but I noticed that during the most troublesome times of my life, there was only one set of footprints. I dont understand why, when I need you most, you deserted me". The Lord replied: "my precious, precious child, I love you and would never leave you. During your times of trial and suffering when you saw only one set of footprints, it was then that I carried you......"

Man do I know about hating diabetes. I have had it for 19 yrs. It has invaded many of my family members. There will be a cure one day. In the meantime we work hard to keep control. Sometimes it just gets uncontrolled due to even a small sniffle.  injuries take forever to heal. Sugar is everywhere. It is so hard for me let alone a small child.  

  Why I was a pastry chef I don't know. I cannot eat the delights I make. Or I should say made. Pain has stopped my life in it's tracks. I will send some prayers your way for your son:)  

  What you can.t do God will.   
 
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pickles
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May 13, 2006, 2:19 pm PDT

Living with Chronic Pain

Quote From: dianah

Hi  

  

I have had one of the worse days of my life.. this afternoon my friend had the Sheriffs called on her and they took her to the hospital and she was checked in under the Law and can not leave for at least 48 hours.. 

  

She had a total break down and it was bad. I have never ever dealt with something so hard and I spent two hours with her in the ER this afternoon and I was physically sick, walked out the doors for a cig and was pucking my guts out.. 

  

I had to leave, I could not stand there and see her like this.  She is totally gone. And I am so scared that she may not make it back.. The doctor was working on blood test and a CAT Scan to make sure nothing was wrong and he was sure he would not find anything, but it's a have to do thing.. 

  

They have a room ready for her up on the 5th floor, the physic ward and I know she will be safe there.. 

  

The old Diana would have been able to handle this, but this broke down Diana, had to leave. I just could not take it. She is so far gone and I just could not deal with it.. 

  

Well, thanks for letting me un-load here.. 

  

Dianah 

Dianah, 

Just found this posting, you are a STAR. Hang in there girl what you did especially in your condition I take my hat off to you. You are one of a kind. 

Please don't worry to much just as long as your friend can know that you are there with all your love and support will be best for her. 

Pickles 
 
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pickles
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May 13, 2006, 2:37 pm PDT

Living with Chronic Pain

Quote From: profderien

pickles -- 

  

good morning -- thursday morning, 10:30 --  

  

you know, i am not using the correct term for the pain-killer induced headaches but darned if i can remember it.  cluster? REBOUND!  the name makes perfect sense -- take something for the headache and the pain just rebounds -- rendering the medicine useless. 

  

if you think things aren't right, that should be your compass, no?  i hope getting in early won't be an issue... 'cause intuition shouldn't be ignored. in my humble opinion... 

  

i am beginning to sort through various pains.  the pain in my sternum is back -- i can't believe it.  what can i possibly have done to re-fracture my breast-bone?  the pain in my left knee is eclipsing the pain in the right.  now i can appreciate what the orthopedic surgeon told me -- i went to him with complaints about the right -- he x-rayed and MRIed them both... and told me the left is much worse.  darned if he isn't right.   

  

there are things i need to learn and i wonder if there isn't a prevailing wisdom here on the "living with chronic pain" SuperBoard!  i have had this conversation with my go-to wonder-doc and he just listens -- which is good but not terribly helpful. 

  

at issue is when should i seek medical help, when should i go get diagnostic testing, when should i bug a doctor, and what is an emergency?  for instance -- i went to see the new orthopedic surgeon and he did x-rays -- they were kind of informative -- the progression of my bone disease was clear and there was a consolidation that he assumed to be due to rsd/crps.  i was pretty pushy about wanting a clearer picture, so he ordered the MRIs.  plus he gave me a shot in the joint.  the MRIs confermed an advanced stage of osteonecrosis/avascular necrosis as well as weird "dense" changes that he and the radiologist decided were due to the rsd/crps. 

  

it felt like an emergency!  it seemed, at the time, incredibly important!  

  

another actual scenario:  i "break" my toes and metatarsals FREQUENTLY.  one night, though, the injury was so awfully painful that i called and woke whoever was on-call for my go-to doctor's parteners...  for a hurt big toe.  by then, i should have learned that any pain is going to be perceived erroneously by my brain. 

  

anywhoooooo. 

  

we don't drink anymore, either. for new year's eve, we had a marvelous bottle of carbonated pear nectar.  yum. 

  

your picture is delightlul -- just as i imagined! 

  

if i said "don't work too hard," you'd just roll your eyes.  don't work too hard! 

smooches, 

profderien 

Hi Profs, 

Oh my dear you seem to be in a real nasty situation here with all the pain everywhere. My heart goes out to you. Can they not do an op on the knees. I have heard that the knees usually are the safetst ops. I injured my shoulder on Thursday - don't know if I said anything about it - but am really paying for it. Just reaching over to my printer to take paper out I get this burning stabbing pain up my arm from the elbow. Wow! and I have to pretend there's no pain when the family are around. But really try heating pads, I'm going to get one as soon as a bit of meney comes in. 

I have osteoathritis and osteopprorisus in hands knees and back. This cold weather is just not on. 

Just short notes as I have taken my pills (worked a full 12 hours today - a big job to get done by Mon). 

Yeah you're right the eyes actually nearly rolled right out the sockets - "don't work to hard" - that doesn't  feature in my vocabulary. 

Well heres hoping that you will be feeling much better next when I come on here 

Love and hugs 

Pickles 
 
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dianah
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May 13, 2006, 5:22 pm PDT

Living with Chronic Pain

Quote From: woofer1211

Hey darlin, I am so sorry to hear about your friend. I havent been able to check in for a few days. It took me awhile to read all the new post, then I got to yours and had to take a min. to reread what you were saying. I know you have been dealing with this for some time , previous posts. What a very special and dear friend you are. Never doubt about what you have done and how you have been there for her. I know when I have tried to be there for someone and it goes from bad to worse, I start to question, " what if I had only done more or what did I miss that would have helped more". You, my friend, have done all that could be done on your part. Just know that I have such admaration for you and love you bunches. I hope that you rested well and have a much better day today.                      Cheryl Lynn 

Hey You..  

 

I was wondering were you have been and "missing you"... so glad to see you and thanks for hopping on and talking to me.. 

 

I feel 110 % better today and even have got some things done around the house and decided to take a break and check in on the board.. And there you were.. Made my day girl!!!!! 

 

The sun has been out, but that wind has been on the go all day and made it cold, so I have a pot of chicken and carrots and celery going and will add some dumplings pretty soon and then my tummy will be very happy... 

 

Again, you made my day and sending you a big hug and all my love.. Dianah 
 
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