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Topic : Living with Chronic Pain

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Created on : Thursday, July 07, 2005, 09:06:20 am
Author : dataimport
Do you or someone you love suffer from chronic pain? Share support with others here.

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October 10, 2006, 6:45 am PDT

Living with Chronic Pain

Quote From: mustbecrazy

My husband takes Zelnorm for the diabetic stomache paralysis, to get the stomache and intestines moving.  He takes another drug on top of that  too.  The two drugs together usually work pretty well.  (I won't go into detail without his permission).  It doesn't have instant effects on him, but he's a regular visitor, if you know what I mean.  His problem is more with bloating, although before the meds, he also suffered frequent...ummm...blockage.  (ok so I did go into detail without permission.)

 

When he first went on it, the pharmacist gave him a funny look and said that Zelnorm is for women.  Excuse me, but the doctor prescribed it to HIM.

 

Flushing?  My husband has episodes of flushing (I don't mean the toilet...well that too, but not in this case).  We thought that the flushing was due to the niacin he is on for cholesterol control (along with a bunch of other meds).

 

I have IBS but frequent trips to the bathroom already keep me away from the mall...don't need an accelerant.  I take metamucil to slow that down, along with cholestyramine for cholesterol control AND bowel control...the combo treats both sides of the syndrome, but I still have to stay close to the bathroom until noon every day...talk about "regular".  Oh sh*#!...potty talk.

 

Hey prof, you go girl!  We have a Bowflex at home that makes a pretty good clothes rack.  I did go walking today to get the mail...2 blocks to the post office and two blocks back.  I stopped along the way to pick up small rocks for my youngest son's class to paint into little mice...their class will be studying "nature in the city", which is kind of funny, since we live in the middle of nowhere...certainly nowhere close to a big city. (still the same ol' mice, just more of them). 

 

Have a good evening,  Becky

Thanks help with the Zelnorm.

So when do I get a cute slim figure like the women on the Zelnorm commercials ??

After my first experience with it yesterday, I am hesitant to take it today.  I will keep

a clear bath down the hallway...kitty cats BEWARE !

 

Have wonderful day and happy Mouse Painting. 

 I know you could get sticks to glue to the rocks and make Emus too - lol

 

Brenda

 
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October 10, 2006, 7:09 am PDT

Living with Chronic Pain

Quote From: tired73

Hello, I've been reading some of your alls discussions and I would like to talk a little bit about my husband. He has herniated discs in his back, degenerative disc disease a tarlov cyst on his spine he has pain constantly even with the medicine that he is taking he has pain. He isn't able to work he has already been denied 2 times on his SSI and going before the judge for the 3rd time, they say that he is still able to walk and move his arms so therefore he is able to do some type of work. When he is walking sometimes his legs give out on him and he goes down he had a motorcycle accident a few yrs. back and he busted up his right shoulder so it hurts him also. He has pain and numbness in back and down both legs but more on the right.We are having alot of problems because he says he isn't able to go anywhere and do anything because he hurts all the time and if he walks or stands for very long it makes it worse he hates being around people he has panic attacks,which he is on medicine for, he is also on depression medicine but it's not helping he is very depressed and in pain alot and it is affecting our relationship. We argue alot because I want him to do things with me and our daughter and he's saying he cant and we also dont have sex hardly ever anymore because he hurts too bad. I'm upset all the time and I'm also on depression meds and nerve medication it just seems like everything with our life is falling apart. We have been together 3 yrs. but married only 2 with a 2 yr. old daughter. I just cant see our life getting any better. We dont communicate he says he is too down in the dumps and trying to deal with his problems to even think about mine yet.Does anyone have any suggestions? I was reading about someone having fibromyalgia what is that exactly and how do they diagnose it? See his mother has it, he has told me.But if things dont get better I dont know what may happen. Please help

Dear, tires 73

I'm not sure if you have read my story but I also suffer with back pain and I have had 4 back surgeries with in the last 6 years.  I know what your husband is going through.  I have Deg. disc disease, Scheuermann's kyphosis, spondylolisthesis.  I can understand about the depression on both you and your husband.  I'm not married but before i had my first surgery my boyfriend of 3 years left me because he could not handle it.  Now my fiance of 2 years is so great with all of this it has taken so work but he's most of the time very understanding.  The sexual part of your life there are so many different things that you can do.  try to do some looking on the web for sex and back pain.  they have different ideas that can make it more comfortable for him. 

I understand about the money part of this I'm fighting with my insurance company from my work, I have been unable to work sense 3-06 and will not be able to ever work again.  my next step is also SS disability. 

Can i ask how old you and your husband are?  Me I'm 43 years old today!!  and my fiance is 38.

I have 2 son's my oldest is 20, my youngest is 16 and I have a 2 year old grandson.  My oldest has already had back surgery also!!! 

So yes I can really understand!!

Please write back hopefully I can make it alittle better by having someone to talk to!!

Chilly

 

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October 10, 2006, 8:06 am PDT

Me too

Quote From: sukie45

I have been living the summer from hell.  I have fibromyalgia and I have lived from one flare to the next since early spring.  My dr. is sympathetic and my husband also understands.  I take every supplement that I read about that is suppose to help. 

I had been working out at the gym five days a week with a mix of using the treadmill, the machines and free weights coupled with aquabics.  I remember one week feeling really up and begining to "feel" my body as a good thing.  the next Monday my knee gave out while on the treadmill.  I found it difficult to use the machines and I kept dropping the free weights.  My dr. told me to lay off the gym until I felt better but my aquabics were ok.  The next week during an aquabics class I found myself fighting to breath and the chest pain was something else.  Back to the dr.  No more aquabics and more medications.

I started on the regeime I use when my fibro kicks in and eight weeks later I am still in pain, still running out of air and my whole leg hurts instead of my knee.  As I said my Fr. is sympathetic but I  feel really wierd going to the office almost every week, especially when I know that there is realatively little can be done for fibro.

I use meditation, playing my keyboard, painting, gardening, and prayer.  I know there are people my age doing wonderful things but not me.  I am depressed.  I am fat.  I am out of shape.  I am out of hope.

Is there anyone else out there like me.  What do you do?  Please don't tell me to look on the bright side or any other  moronically cherrie euphamisms.

By the way this is one of my good days.

I know exactly what you are going through, I have Fibromyalgia too. I find it hard to get through the day sometimes the pain is so bad. When I was first diagnosed 2 years ago all I wanted to do was eat and sleep. One morning I woke up and realized I was fat, I started dieting and lost a lot of weight, but now I keep turning to food(Carbs) for my comfort. I have trouble excercising because the pain gets worse. Anyway Im gonna quit complaining now. I am A mother of 3 and a wife. This is one of my bad days
 
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October 10, 2006, 8:43 am PDT

for sukie

I, too have fibromyalgia, and also asthma.  Since you are getting out of breath easily, have you been to an asthma/allergy specialist, or a pulmonologist?  Between the asthma and the fibromyalgia, I have to keep the exercise light...if I can get motivated at all.  I have lost 50 pounds in the last year...have slowed on the loss lately, since my last surgery, but at least I haven't gained any of it back.  For the asthma, I use a steroid inhaler plus a rescue inhaler (Xopenex, because I can't take albuterol because of my heart arrhythmia).  Well, I just thought you'd like this bit of info.

 

Good Morning to all on the board...my husband says hi...he laughed when I said I told about his experience with Zelorm (posting from last night).  I keep him up to date on everybody...tell some of the funny highlights.  My kids are interested too...I don't let them read the postings, but they always ask how pickles is doing.  How's the weather in South Africa?  We've got cold crisp nights and nice sunny fall days...72 degrees farenheit.  The apple growers are trying to get the rest of their crops harvested before the nighttime temps get down to 28 degrees.  We live in a small town, 30-45 minutes from shopping and doctors, surrounded by apple and fruit orchards.  The best wine in the world comes from the Yakima Valley...or so the locals say.  The Yakima Valley is also the world's second largest producer of hops (ingredient in beer). (Washington State).  Our town is so small and quiet, and that's just the way we like it.  My husband is on the cuty council for our little town.  (not a big-time politician...just doing his civic duty)

 

Well, everybody have a cheery day........Becky 

 
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October 10, 2006, 8:55 am PDT

for tired73

My firbromyalgia was diagnosed by the rhumatologist, with a pressure point test...there are also a lot of symptoms that go along with it.  Try checking out one or more of the many web sites about fibromyalgia.

 

My husband has had nerve conduction studies done because of the diabetic neuropathy...not the most pleasant thing in the world, but it could be much much worse.  No lasting pain caused by the procedure.

 

Brenda...the emu idea sounds cute...I'll try it!!

 

Becky

 
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October 10, 2006, 9:20 am PDT

Living with chronic pain

Quote From: cheledee

I know exactly what you are going through, I have Fibromyalgia too. I find it hard to get through the day sometimes the pain is so bad. When I was first diagnosed 2 years ago all I wanted to do was eat and sleep. One morning I woke up and realized I was fat, I started dieting and lost a lot of weight, but now I keep turning to food(Carbs) for my comfort. I have trouble excercising because the pain gets worse. Anyway Im gonna quit complaining now. I am A mother of 3 and a wife. This is one of my bad days

I too have Fibro.  I am 42 and found out I had Fibro when I was 35. 

My most pain is in my neck and shoulders.  I have headaches mostly everyday.

When I overwork on the farm, I pay dearly with pain a couple of days later.

My favorite thing is riding horse, and somedays it kills, but I will not let that stop me.

I also loved playing volleyball, but had to quite that because I would hurt so bad.

I do take pain medication when needed, and some times have to go to the hospital

for my headaches.

For exercise I have found swiming is the best thing.  I too ran 4 miles daily, and had to

quite. 

It is a very hard thing to live with, Chronic Fatige is also with me, and it's not fun.

I baby myself and try and take good care of my self.

I have two daughters 19 & 22, and I have been married for 23 years.

Today I have been up since 4:00am with a migraine.  I know have an upset stomach

from my pain medication.  Throughout the day I hope I feel better.

Take Care

 
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October 10, 2006, 9:31 am PDT

how is everyone

Just wanted to say hello ......prayers with you all god bless
 
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October 10, 2006, 9:34 am PDT

Living with chronic pain.

I was diagnosed with RA when I was 44 years old.  I'm 63 now.  It's been a long 20 years.  I was a working dress maker when I was young.  My hands went first.  After that, I was lucky to be up moving around after 1pm.  Usually  I ended up on my back, because I couldn't move any more.  I spend many years this way.  One of my Doctors suggested pain management.  About 6 years ago, I decided that I had to do something.  I went to a pain specialist.  In the begining I was worried that I would have to take medication every day for the rest of my life.  But I have to take other medication, everyday, anyway.  There's no way I could live without my estrogen.  So what was one more pill?  My grown up children were worried about the effectiveness of this plan.   But now, 6 years down the road, they have their mother back.  I am able to take care of most of my housekeeping chores myself.  I'm able to go with my kids on family vacations,  AND actually keep up with them.   I HAVE MY LIFE BACK.  I didn't realize how much I was missing until I went on this program.  I certanily don't recommend this for everyone, but for me it works.
 
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October 10, 2006, 9:58 am PDT

belly laughter

Quote From: dianah

Prof.. I can not beleive you dropped the lap-top and it fell on your right foot.. ohmygoodness!!!!! and Ouch and I am sure a few of the other words were taking place... And your Mr was right there to help.. that is so sweet..........

 

So, how are the piggys doing now???

 

Well, up-date.. today went Great!! They were very kind and easy on me and the day just flew by so fast....

Even made it home and took the dog for a walk and got dinner and lunches made and then, hit the couch and did not move until just now...

 

So, just heading down the ZZzzzz land now..

 

Prof, sending you an easy hug and hope Tue will be kind to you..

 

All my love......... Diana  .h................

 

i think i speak for everyone -- way to go!  awesome! and then there is the parental response:  don't overdo it,  listen to your body, etcetera.  oops, there is that "don't overdo it" twice in one paragraph...

 

still:

 

awesome!  awesome!   even when i was relatively well, dinner and lunches were not a priority -- of course not -- just the two of us. 

***********************************************************************************************

ah... we should put together a book of stories about being drug tested and how we came to break our various bones...

 

yep... even as the computer was on its way down, i thought of you!  frank wrapped it in so much stuff that i don't even know how it is doing.  it can wiggle -- so it's not broken, i guess. 

 

i don't know if i have ever confessed my reaction to being injured -- I LAUGH!  belly laughter, and then, the giggles.  imagine if you will -- falling down and banging one's head against the substantial dining room table.  i didn't even call for help... just lay there laughing my heart out... along comes mr. man, who totally freaks... so i downgrade it to a fit of giggles.  tears of laughter pour out of my eyes.  by the time i return my tray to its upright  locked position.

 

here's to a marvelous second work day:  KICK BOOTY .  but above all -- put yourself first, don't let the pain get ahead of you.

 

love,

jealous prof                                       

 
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October 10, 2006, 10:06 am PDT

kind thoughts

greetings to all -- especially to all the new people -- liven us up!

 

i just need your kind thoughts -- throw them out into the universe (prayers are also appreciated... we are going to the gym for our first two days in a row attempt.

 

oy!

 

a very sore prof

 

 

 
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