Topic : Living with Chronic Pain

I tell you what is sure is nice to talk to someone who really understands what i am going thru i too take a pain holiday just to see if i take them out of  need or out of i have to have it to keep going. My aunt gave up and died when she was 60 I don't plan on giving up i walk 2 miles a day at least. but now i have to fight ssi to get them to believe that i can;t get out and do a regular job and believe i loved drinving and i miss it. hope talk to you soon thomaslp take care

You are fabulous, Pickles...you forgot that one.

 

 

I Know exactly the boat you are in.  I too am a single mom and have been unable to work since April.  I have Fibromyalgia, degenerative disc disease, migraines and more. I had neck surgery in July but it hasn't helped much.  My fiance and I split a couple of months ago and since then my mom is having to help pay my bills since in only get $390 a month child support. Don't qualify for  medicaid.  The worry over how you are going to make it will drive you crazy.  Some days I am so depressed I don't want to get out of the bed and I have been having migraines every other day probably due to the stress.  I too feel guilty for my mom having to pay my bills because I will never be able to pay her back.  I have always had a great job, made good money and been very proud that I have never had to have anyone help me, I never thought I would be in this shape.  When I read your post it was like it was my life.  I know I am not alone, you aren't either.

Linda

Just wanted to pop in real quick.  Lots of MAJOR problems & trama/drama

going on...you don't want to know....trust me.   I don't even want to know !

Tanya light a candle FAST - Becky, Deb I need some of my Angels back ASAP.

Keep me in your prayers, I need all the help I can get right now

Big Hugs

Brenda

 

Ha, just read the last two pages and was so glad to see you up and going strong..

 

Had the computer at the doctors and then had to call and have them help me get my e-mail up and going, and with my time and their hours, was not working well at all.......................................

 

But, had to call in from work today and head to the doctors and then after I got back home and rested up, got on the phone and even under heavy muscle relaxers.. got my e-mail up and going.. My lower back it out big time and Ouch and %^^$& and moving very slow... I still had to hop on and check in with You ....

 

Wanted to jump in and yes I am taking avinza.. and you are so right, I have to have something for breakthrough pain.. it's just a must every day.. However, with my Oxy, that was not the case.......... But after the shock and getting use to it, it works okay,, not as good as my Oxy.. but it's getting the job done okay..

 

Well, just wanted to add my two cents and get a hello in at you also....

 

I will catch up more when I can sit longer.... All my love.. Diana.h......

                                         

I can't sleep again, it's this pain in my leg and back.

I too have degenerative disk disease, which is osteoarthritis (can't spell either) I have had back surgery and have no disks L5S1, L4-L5,  &  L3-L4 are almost gone,  They can't replace them because my disks have collapsed and they don't want to move my spinal cord because it is caught between 2 disks (like in a pocket), how that happened they can't explain.  The doc (back dude) says I should be paralyzed but I can walk some.  I also just had my right knee replaced and it never healed right and I really need that leg since I lost my left leg years ago due to a motor cycle accident.  I have COPD, asthma, arthritis in my hands elbows and shoulders, besides my back.  And I was just diagnosed with RLS (which is pretty stupid cause I knew I've had it for years, It's not one you can MISS when you got it) DOCTOR ARE GREAT AREN'T THEY...he could have paid me the $165 and I could have told him I had it!  I am also a diabetic,

I have ulcers that have started bleeding again and they really hurt.  I can't keep anything down between the ulcers and Acid reflux you'd think I'd be the skinny kid on the block but NOT MY LUCK.

I went to a food bank (Think Becky suggested that) but they couldn't give me food that I can eat, being a diabetic I can have only certain things.  the food banks go heavy on starch and sugar stuff and I can't eat that.

I applied for SSD, got turned down, got a lawyer and was accepted in about 5 months, I hope who ever is trying, has the luck I did.  It was 2 years before I could get Medicare but I got Disability right after I got an attorney.

I see my pain dude on Thursday...I hope he can do something, I feel like I'm dieing here..

Everything hurts

I take Methadone 4 times a day and have dilaudid for break-thru.  And now I am taking 90mg of cymbalta, it is helping a lot more than 60.

I take a lot of meds but I am sure some of you put me to shame... I take the pain stuff, then diabetic stuff (including pills and insulin) and accolate for asthma and klonopin for my anxiety

an triazapam for sleep.  I think the only two things that really work is the dilaudid and the cymbalta.  Go figure

Today I woke with a stiff neck and sinus trouble, God I hope I don't get another sinus infection.

Now that all that is out of the way...

Hows my cousin doing?

And what is this that I am reading about old people...what is there a bet going on and I didn't get my square?  I'm probably older than all of you, even if I act like I'm two!  I'm 55 so you see I should know stuff, but I don't know nothing at all.  That's why I come here, to learn all the stuff I don't know.

If ya want to know how to survive on the Chicago streets with just a pair of jeans, 2 sweat shirts 1 blanket, a pair of tennis shoes and a  pocket knife, I your go to person... I did that for 5 years.

But ask me how to bake a pie or make a cake and I can stare at you for ever and know nothing about it.  Never made on in my life.

So, I come here to learn

It's a great place with great friends with no expectation or pressure and I really need that safe feeling right now, cause my world is spinning, and you folks keep me on track.

Things were really happening over the long weekend, clear up to yesterday, but I read and reread your messages and I got through it, it was and is tuff but I made it!

Now. lets head out for Xmas stupidity!  Can't wait for that

You know all the warmth and love my kids don't give me... all the presents they expect to get for their kids from me, (Not this year) all the tap dancing they THINK they will be doing on my HEAD.  Not this year.Ok so I'm slow to learn, but I ain't stupid!

This will be a big change for me this year, because I am taking back my life...and I am living it for me!  Not those LITTLE knuckleheads!

There I said it!

My Turn to Live !

Thanks every body

 

dear brenda --

 

what is happening -- or has happened? 

 

be well,

and kick  major booty if you have to...

prof

I needed your post yesterday........sam I am and the carpet the tub and the sheets........your funny......you could have gotten some people really talking yesterday......with alot of advice...hmm how to keep the tub looking white........i know you better than that .......you could probably give me advice on how to keep mine white... kids don't clean tub out when done yup thats my duty too.......had a temper outburst from son this morning didn't want to go to school so I told him I would just call truancy officer........well long story short he is in school.......shoulder bothering me alot today..........yes weather is unusually warm for this time of year here........it is in 60's and its nov.....should have snow........end of the week suppose to have a blizzard......not so dizzy yesterday.....but real tired........how did it go today with the paper work..........well I guess I am going to go look for a good poem for today.........

Love to you all including sam I am

God Bless

Tanya

I hope everything works out ok I will send you my angels and yes the candle is burning bright......

God Bless

Love Tanya

hi there, pk!

 

you will have to fill me in on the knee replacement surgery -- the good, the bad, and the (already) ugly.  the painstudydude says that another hip or knee replacement *is* possible so long as i have a sympathetic block done first.  ya di di da!

 

you are so right about food banks -- the starches are what make people feel "full" -- we do the same thing to prison populations and school kids.  (that useful factoid just leapt onto the page -- coffee, coffee, where are you?) 

 

don't give up though -- call some local churches to see if they have or can tell you where there is a food "pantry."  explain your dietary limitations and they should be able to fill a bag that you can use.  i think it is great, by the way, that you are being so conscientious about your blood sugars...

 

cough.  someone around here is not eating well.  achoo.  i don't know why i started to ignore my limitations -- i know that part of me is angry that the steroids are attacking every fibre of my being... literally.  still, i do know better.  i threw out my monitor about a month or so back.  don't want to use it, don't need to use it.  i know that diet and exercise are my good buddies.  now that i have conquered exercise, and love it, i need to get past all these delicious things that are in my fridge.  when the pain keeps me up at night, i boldly go where no one has eaten before...

 

i was on klonopin for years as a seizure med for myoclonic epilepsy... and then, very suddenly, it didn't work any longer.  weaning off of it was a major difficulty...i thought i would be stuck on 2 mg forever.  i hope it works for your anxiety -- that probably influences the pain also.

 

please, please, please tell me that you don't smoke with a diagnosis of copd!  if you do, just go ahead and lie, please...

 

alright, cuz, girlfriend -- move around as much as you can to loosen up the neck -- and please don't have a sinus infection.  if you do, don't mess around with it... you know what to do!

 

over and out -- we are off to the VERY LAST VIST AT THE STUDY CENTER -- hooray!

love,

prof