Topic : Living with Chronic Pain

Quote From: sukie45

I have been living the summer from hell. I have fibromyalgia and I have lived from one flare to the next since early spring. My dr. is sympathetic and my husband also understands. I take every supplement that I read about that is suppose to help.

I had been working out at the gym five days a week with a mix of using the treadmill, the machines and free weights coupled with aquabics. I remember one week feeling really up and begining to "feel" my body as a good thing. the next Monday my knee gave out while on the treadmill. I found it difficult to use the machines and I kept dropping the free weights. My dr. told me to lay off the gym until I felt better but my aquabics were ok. The next week during an aquabics class I found myself fighting to breath and the chest pain was something else. Back to the dr. No more aquabics and more medications.

I started on the regeime I use when my fibro kicks in and eight weeks later I am still in pain, still running out of air and my whole leg hurts instead of my knee. As I said my Fr. is sympathetic but I feel really wierd going to the office almost every week, especially when I know that there is realatively little can be done for fibro.

I use meditation, playing my keyboard, painting, gardening, and prayer. I know there are people my age doing wonderful things but not me. I am depressed. I am fat. I am out of shape. I am out of hope.

Is there anyone else out there like me. What do you do? Please don't tell me to look on the bright side or any other moronically cherrie euphamisms.

By the way this is one of my good days.

Quote From: jb7ctx

I have a 5 y/o son who is Type 1 Diabetic and insulin dependant. I feel pain in my heart for him. Each day is a struggle for him. He has to have 3 shots of insulin a day. He is angry. He yells: " I dont want diabeties! I dont want no shot, it hurts! " I know he has to have these shots in order to live, but he doesnt understand that yet. I have done alot of research on diabeties. His life span is 10 years shorter than someone without it. He is at a higher risk for heart failure, kidney disease. He is subject to start having heart attacks and strokes in his late twenties, early thirties. His vision will eventually get poor. If his blood sugar gets too high or too low he is subject to go into a coma or even death. We/he have to take special care of his feet or he will lose them later on in life. He has some days where he will scream and hit the walls and cry if his sugar is too high or too low. All of this is tearing my heart up. I keep asking God, why? Why him? Why did he get this? I sometimes sit in my room and cry. My 5 y/o son came in one day and saw me crying and said: " I have diabeties, what's wrong with you "? I know he can live a healthy, productive life if we take good care of his diabeties. He was diagnosed in November, 2004 when he was 4 y/o. His blood sugar was over 600 when he went into the hospital. God saved him. When ever I feel depressed and have a problem, I think about my sons life and my problem is no longer a problem. We monitor him closely. We check his sugar 4-6 times a day. He is on a special diet. He starts kindergarten this year and I am worried about him going to school. I know he will be fine, but I cant help but worry. There is an old poem that really helps us in times of desparation. It is called: "footrints in the sand". I feel for everyone who has to live their life with some type of pain, but with the Grace of God, he will carry us all through it. Just wanted to share our story. God Bless you all. jb7ctx

Quote From: momof4gals

I have primary progressive multiple sclerosis. I took care of people with ms when I was a nurses aide but never realized how they felt until recently. I have a whole new understanding of what they were going through.

Heat effects me. Cold effects me. Medication helps but geeze, I get so tired of being tired! Then to add to it the medications don't take care of the problem. Sure they take the edge off but what I would give for just ONE day without a spasm, cramp, electrical shocks etc. Ahhhh, some day maybe it'll happen :)

People don't understand those with chronic pain. I didn't until these past months. People don't understand when we don't want to talk. Socialize. Laugh. People don't understand when we just don't have the patience. Some days I find I'm snappy, or have what others consider an attitude.

I used to get angry at others for making comments etc. But now I'm just thank ful they don't know what it's like. I don't wish chronic pain on anybody.

Quote From: sukie45

I have been living the summer from hell.  I have fibromyalgia and I have lived from one flare to the next since early spring.  My dr. is sympathetic and my husband also understands.  I take every supplement that I read about that is suppose to help. 

I had been working out at the gym five days a week with a mix of using the treadmill, the machines and free weights coupled with aquabics.  I remember one week feeling really up and begining to "feel" my body as a good thing.  the next Monday my knee gave out while on the treadmill.  I found it difficult to use the machines and I kept dropping the free weights.  My dr. told me to lay off the gym until I felt better but my aquabics were ok.  The next week during an aquabics class I found myself fighting to breath and the chest pain was something else.  Back to the dr.  No more aquabics and more medications.

I started on the regeime I use when my fibro kicks in and eight weeks later I am still in pain, still running out of air and my whole leg hurts instead of my knee.  As I said my Fr. is sympathetic but I  feel really wierd going to the office almost every week, especially when I know that there is realatively little can be done for fibro.

I use meditation, playing my keyboard, painting, gardening, and prayer.  I know there are people my age doing wonderful things but not me.  I am depressed.  I am fat.  I am out of shape.  I am out of hope.

Is there anyone else out there like me.  What do you do?  Please don't tell me to look on the bright side or any other  moronically cherrie euphamisms.

By the way this is one of my good days.

Quote From: sukie45

I have been living the summer from hell.  I have fibromyalgia and I have lived from one flare to the next since early spring.  My dr. is sympathetic and my husband also understands.  I take every supplement that I read about that is suppose to help. 

I had been working out at the gym five days a week with a mix of using the treadmill, the machines and free weights coupled with aquabics.  I remember one week feeling really up and begining to "feel" my body as a good thing.  the next Monday my knee gave out while on the treadmill.  I found it difficult to use the machines and I kept dropping the free weights.  My dr. told me to lay off the gym until I felt better but my aquabics were ok.  The next week during an aquabics class I found myself fighting to breath and the chest pain was something else.  Back to the dr.  No more aquabics and more medications.

I started on the regeime I use when my fibro kicks in and eight weeks later I am still in pain, still running out of air and my whole leg hurts instead of my knee.  As I said my Fr. is sympathetic but I  feel really wierd going to the office almost every week, especially when I know that there is realatively little can be done for fibro.

I use meditation, playing my keyboard, painting, gardening, and prayer.  I know there are people my age doing wonderful things but not me.  I am depressed.  I am fat.  I am out of shape.  I am out of hope.

Is there anyone else out there like me.  What do you do?  Please don't tell me to look on the bright side or any other  moronically cherrie euphamisms.

By the way this is one of my good days.

Quote From: sukie45

I have been living the summer from hell.  I have fibromyalgia and I have lived from one flare to the next since early spring.  My dr. is sympathetic and my husband also understands.  I take every supplement that I read about that is suppose to help. 

I had been working out at the gym five days a week with a mix of using the treadmill, the machines and free weights coupled with aquabics.  I remember one week feeling really up and begining to "feel" my body as a good thing.  the next Monday my knee gave out while on the treadmill.  I found it difficult to use the machines and I kept dropping the free weights.  My dr. told me to lay off the gym until I felt better but my aquabics were ok.  The next week during an aquabics class I found myself fighting to breath and the chest pain was something else.  Back to the dr.  No more aquabics and more medications.

I started on the regeime I use when my fibro kicks in and eight weeks later I am still in pain, still running out of air and my whole leg hurts instead of my knee.  As I said my Fr. is sympathetic but I  feel really wierd going to the office almost every week, especially when I know that there is realatively little can be done for fibro.

I use meditation, playing my keyboard, painting, gardening, and prayer.  I know there are people my age doing wonderful things but not me.  I am depressed.  I am fat.  I am out of shape.  I am out of hope.

Is there anyone else out there like me.  What do you do?  Please don't tell me to look on the bright side or any other  moronically cherrie euphamisms.

By the way this is one of my good days.

Quote From: ceders2

Just wanted to write and say that I do understand what your son is going through as I am also Diabetic. I have been since Sept 2000. I am now 35 years of age and am quite healthy.

One thing my Specialist told me afew years ago was that as long as you can keep your blood sugars under good control there is much less chance of having health problems later on in life. And I do have very good control of my sugars.

When I last saw my Specialist which was only two weeks ago he told me that I was one of his easier patients because I DO keep my sugars under good control.

3 years ago I became pregnant and had to go on insulin fulltime, before being pregnant I was on tablets only, but after finding out that I was pregnant I had to stop taking them as they could have harmed the baby. I was then on insulin until after I had my little girl. I had to give myself 4 needles per day and check my sugars sometimes up to 8 times a day. I had to keep my sugars very low all the time so that my baby didn't end up being too big. And in keep my sugars very low I had alot of Hypos's. And yes Hypo's can be just as bad as having too higher sugars for any one but especially pregnant women.

My baby girl was born fine and after spending 24 hours in Newborn Care to check her sugars she was fine no problems there. After I had Stephanie I was able to go back to tablets and I only have night time insulin.  She is now 3 and doing great, as for me I'm doing fine as well. This coming September I will have had Diabetes for 5 years and so far no other health problems and I hope to keep it that way for many years to come.

In time your son will come to see having diabetes as just part of his life. I have a friend who has lived with diabetes since she was four and yes she does health problems but these are due to her not looking after herself as a teenager.  She told me herself that if she had taken better care during her teen years then she wouldn't have half the problems she's got now.

I hope that this has helped in some way. Just know that your son will be ok and he will live for many years to come and will be a very happy and healthy child as look as he looks after himself. Please TAKE CARE. LOVE KELLY.

Quote From: ceders2

Just wanted to write and say that I do understand what your son is going through as I am also Diabetic. I have been since Sept 2000. I am now 35 years of age and am quite healthy.

One thing my Specialist told me afew years ago was that as long as you can keep your blood sugars under good control there is much less chance of having health problems later on in life. And I do have very good control of my sugars.

When I last saw my Specialist which was only two weeks ago he told me that I was one of his easier patients because I DO keep my sugars under good control.

3 years ago I became pregnant and had to go on insulin fulltime, before being pregnant I was on tablets only, but after finding out that I was pregnant I had to stop taking them as they could have harmed the baby. I was then on insulin until after I had my little girl. I had to give myself 4 needles per day and check my sugars sometimes up to 8 times a day. I had to keep my sugars very low all the time so that my baby didn't end up being too big. And in keep my sugars very low I had alot of Hypos's. And yes Hypo's can be just as bad as having too higher sugars for any one but especially pregnant women.

My baby girl was born fine and after spending 24 hours in Newborn Care to check her sugars she was fine no problems there. After I had Stephanie I was able to go back to tablets and I only have night time insulin.  She is now 3 and doing great, as for me I'm doing fine as well. This coming September I will have had Diabetes for 5 years and so far no other health problems and I hope to keep it that way for many years to come.

In time your son will come to see having diabetes as just part of his life. I have a friend who has lived with diabetes since she was four and yes she does health problems but these are due to her not looking after herself as a teenager.  She told me herself that if she had taken better care during her teen years then she wouldn't have half the problems she's got now.

I hope that this has helped in some way. Just know that your son will be ok and he will live for many years to come and will be a very happy and healthy child as look as he looks after himself. Please TAKE CARE. LOVE KELLY.