Topic : When a Family Member Gets Sick

I was diagnosed with MS January 2002. All I have had as support are my 3 children. My mom, 2 sisters and brother do not come around me. I have had a stroke and lost my right side and speech while I was working. There are times when I have to be in a wheel chair. I have migraines that are really bad. I have to have botox in the back of my  head to help keep them under control. My lungs have shrunk, my bladder has shrunk, I have lower disc disesase, I am facing a hip replacement and a knee replacement. I have COPD and asthma. Right now I have no taste or smell due to the MS and no feeling in my right foot. My ex husband attacked me the end of 2007 and I had to have rotator cuff surgery. I need to have the other shoulder operated on. My children have been here for me and my 16 year old daughter has got to the point where she tells people off when it comes to her mom. I was in the hospital for 9 days when I was diagnosed and my mom only came the hospital one time. She was listed as the next of kin and who to call in case of an emergency. I know since I have been diagnosed my views toward life have changed. I value each and every day. I thank God for all my blessings and my children. It really hurts me how my family has acted and reacted to me getting sick. There has been no support there what so ever. Also up until I was approved for disability they didn't think I was sick. They call MS an orphan disease. I was bed ridden for 3 months when I had my first attack and not one of my family members came to see me. I also have tried to shelter to some extent my kids. I do not want them to see everything I go through. One night my temperture dropped. I had this happen before. My daughter was there this particular time. She had placed 6 blankets on me and I was still shivering. She helped me walk to the shower and turned on the water hot. My body was jerking so hard I could barely stand up. I at one point told her I was going to colapse. She told me that I was going to be ok. She talked me through it. Here I had been so worried about sheltering my kids. That night she was an angel. She helped me back to bed and stayed with me till the shivering stopped. All the times I have sat with them when they have been sick I never thought it would be so soon they would have to be here for me and do the same.

Father stated in front of me and the counsler that he dosn't care if his son died today or 10 years from now. His son is 23 has some health problems hasn't been dx yet. Cataplexy?  I'm filing for divorce to day. Things  have been said in the past I hope I can get a restraning order

MY SON IS VERY SICK, HE JUST GOT OUT OF THE HOSPITAL, THIS TIME HE WAS ONLY THERE A MONTH. THE SPECIALIST HE SAW AT THE HOSPITAL COULD NOT FIGURE OUT WHAT IS WRONG WITH HIM, SO THEY DISCHARGED HIM AFTER A MONTH. I HAVE A VIDEO THAT SHOWS HOW HIM ILL IN THE HOSPITAL, HE EATS...THEN HAS SEVERE PAIN...THEN GETS DIZZY...SOMETIMES FAINTS....THEN BECOMES CONFUSED AND HAS AN "ALTERED MENTAL STATUS" WHERE HE DOESN'T KNPW WHO HE IS, HOW OLD HE IS, WHERE HE IS, WHO I AM. NOTHING. I HAVE IT ON VIDEO!!! A 6 YR OLD CANT FAKE THAT!!! HOW CAN THEY NOT FIGURE THIS OUT!!!!! THIS POOR KID HAS BEEN THROUGH SO MUCH!!!! THE VIDEO IS POSTED ON YOUTUBE.COM THE VIDEO IS TITLED "WHAT'S WRONG WITH MY LITTLE ALEXANDER?" PLEASE ANYONE, PLEASE WATCH THE VIDEO, READ THE INFO, AND HELP MY BABY.  IM DOWN TO ASKING STRANGERS FOR HELP. BUT PLEASE GO TO YOUTUBE.COM AND IN THE SEARCH BOX TYPE IN "WHAT'S WRONG WITH MY LITTLE ALEXANDER?"

My Mom has been sick for over a year.  They found two reasons but cannot find the reason that she is sleeping most of the day and all night.  If she don't she will get dizzy and sometimes pass out.  It is kind hard for her because she has no insuranc and when she goes to the hospital it is another bill. She is trying to get on disability (we are praying) because she cannot even do the simplest thing without getting tired.  She use to be a very vibrent woman full of fun but now she down to sleep all the time.  I get lonely sometimes.  I try not to tell her because she the tries to stay up.

My mom knocks herself down all the time because we are living on my disability.  I try to stop that but she just keeps on doing that.  She is forgetting she helped me when I was sick with my bipolar all those years. 

On top of that I have chronic illnesses.  My short term memory is shot due to ECTs (so many words electirc shock therapy) and my APS (antiphophlipid antibody syndrome) when my blood levels are not right.  I also have fibromyalgia.  I'm also sick with a ear problem and a lung problem.  I fear me being too sick to take care of her.  I need to be aware at all times with her one minute she could be talking to you the next she could be passed out.

ANYONE ELSE FEEL THIS WAY about worrying if you get too sick to take care of your family?  This is my only outlet to let these feelings out.  Thak God for this message board.

 

God Bless and De-stress

 

Volunteer4God

It was too late for him, he suffered a ton.  He was diagnosed with end stage COPD.  I recently lost him due to the End Stage COPD.  We were planning on getting married and I pushed everything up due to the wedding being on the 20th of June.  I got the license done on Monday and wed after 2hrs I got hom, he passed away, Thrusday would have been the day for us getting married.  HE left behind not only myself but a beautiful baby girl.  He told the doctors he can't die due to us.  Stopping smoking wasn't going to help, the damage was too much.  He was in the hosp for weeks at a time or he will go back in the next morning. 

  It was stressful on me and my family but with him being gone, I can't live without him, miss him terriably and want him back.  Even if you stop smoking it could still kill you one way or the other.  I just with they band cigeretts people could live longer without them.

                                 Cathy

 

Hi I got touched by your story. I have experienced similar pain in my family.
My prayers go out to you and your mom.

Blessings