Hi,
I have many health problems, - spinal injury, bone disease, grand mal epilepsy, severe depression etc the list just goes on and on.
I live with chronic pain every day, a lot of it is my own fault because I don't take the medication like I should, but it's morphine and I am so afraid of getting addicted to it, so, I put up with the pain and this makes me so very tired and unable to do anything. I want my life back but it won't happen.
I have met with my new pain management specialist, he sounds great and has suggested 3 operations on my spine, they cut the nerves that go to the places where most of the pain is, so I would be free of pain, this procedure only lasts 8 months, so every 8 months I would need the operations again, they operate on the 3 sections on the spine, the cervical (neck) throracic (mid) and lumbar (bottom). The only problem is that I don't have private health insurance, and it's going to be very expensive and very hard to get it because I have pre existing injuries and when I do, IF I do get it, I have to be on it for a year before I can use it. The operations are major and that also scares me, but to be out of pain would be amazing because I have been like this for 10 years now and my life is so hard, my dear wonderful husband is my full time carer, he does so much for me. This won't help my epilepsy, but it should lift a lot of the depression because I would be able to do much more.
The problem!! IF the operations don't work, I won't feel anything, it could paralize me, I mean I have to use a walker to get around now and have lost 85% feeling in my left leg and 25% feeling from my right leg but I fight like hell to get around and live as normal as I possibly can.
I just feel that if I stay like I am, things will just progress to the point where I will be in a wheel chair because they can't cure my bone disease and my bones are brittle and very very weak and it doesn't take much to break them, even a seizure has broken my ribs and fingers as my seizures are very violent.
What choice do I have really? I either stay the way I am, or, spend more money which my health bills are so high now, I could get private insurance and get more help, or if I stay the way I am, I just have to sit most days because if I move around a lot I risk falling over and breaking bones or damaging my spine even more, I have sciatica aswell and that's very painful and my cervical section is all compacted, which means that it is mainly bone on bone and is so tightly compacted it's like I don't have a neck, you can't tell, but ct scans show it and the lumbar section, I have multiple disc prolapses in both the mid section and the lumbar section and one of the prolapses or discs are so close to the spinal chord that if it touches the spinal chord I will end up in a wheel chair so they won't operate or put a plate in because it's too risky, so to block the nerves is the only option.
I am SO SORRY about the long letter but I needed to share this with you. I can't sit up at a computer so I rely heavily on my laptop as it keeps me in touch with the world. I have studied psychology and help councel online, I help people with depression and people who have been abused, I love my work and it is wonderful to be able to help people from home on my laptop, I am good at it because I know and understand how these people feel. My initial spinal injury was caused by an attack, someone attacked me with a tyre lever on my spine and legs so I wouldn't be able to perform anymore, I used to be a music teacher, and I used to sing and play guitar and had a small band and I loved it, we mainly did charity work to help the local hospital raise money and the Policemans Ball, but we also had paid gigs to pay for the equipment, we used to play around 3 to 4 nights a week which gave me a good income and I was a single mother back then and it helped me emensley, because I could take care of my son through the day and my teaching meant that I was always home when my son was, I loved my life. Now I don't have a life, it's more of an existance.
Shelley xx