Topic : 04/01 The Superbug

2 of my daughters had MRSP, one worse than the other.  What was frustrating was ER docs who didn't know what it was.  Then when we had a for sure diagnosis finding a medicine that would help.  My one had 5 or 6 different episodes, the ones on her faces the worst.  Most doctors (Kaiser) didn't believe us, one told us not to share shavers, I said "she doesn't shave her face!". 

I called the CDC when we noticed she would get the start of a sore but it didn't turn into the big sore with the eruption of puss. I thought this was significant, meaning she was making some sort of anti-body.  They weren't in the least bit interested.  All this suffering and we thought maybe it could help other kids.

She hasn't had an eruption in over a year now and we are very thankful.

Thanks for listening.

ms_deb

2 of my daughters had MRSA, one worse than the other.  What was frustrating was ER docs who didn't know what it was.  Then when we had a for sure diagnosis finding a medicine that would help.  My one had 5 or 6 different episodes, the ones on her faces the worst.  Most doctors (Kaiser) didn't believe us, one told us not to share shavers, I said "she doesn't shave her face!". 

I called the CDC when we noticed she would get the start of a sore but it didn't turn into the big sore with the eruption of puss. I thought this was significant, meaning she was making some sort of anti-body.  They weren't in the least bit interested.  All this suffering and we thought maybe it could help other kids.

She hasn't had an eruption in over a year now and we are very thankful.

Thanks for listening.

ms_deb

The Rooms In Loma Linda Hosp. ARE either ISO/ or non Iso (Isolation)

Over 45% of the rooms are ISO. patients.....

My 30 year old twin boys have a condition the doctor referred to as hidradenitis suppurativa.  It is very similar to Stephanie's condition.  Nicholas contracted this debilitating disease about 7 years ago.  It started as a small abscess at the base of his spine.  The surgeon merely sewed up the hole.  A few months later it migrated to his groin and he has had several emergency operations that left holes the size of a tennis ball that needed to heal from the inside out.  Needless to say he was on his back for at least a week.  A couple weeks ago, a lump the size of an egg appeared on his left jaw.  Powerful antibiotics and pain pills seemed to help and the lump has now shrunk to the size of a dollar coin, but we don’t know where it will show up next. Lately, flare ups have been surfacing every 6 to 8 weeks. 

Jason’s experience wasn’t as severe at first, but over the last couple years the flare ups have become extremely painful. He has several lumps under both arms.  He’s had the lumps removed, only to return and multiply within a couple months.  You can literally see raised sinus like tracks trailing down his abdomen to his waist.  More abscesses have now appeared on his groin and now he has them on his neck.  The surgeon wants to remove both arm pits and replace with graphs from his thighs.  We are seeking a second opinion of course.  It's difficult to know when to accept a doctor's diagnosis, but with such radical surgery I believe this warrants a second and possibly third opinion.  He is waiting to see a dermatologist and plastic surgeon.  We live in rural New Brunswick ... most specialists are2 to 3 hours away and have a wait list of 1 to 3 years.

After seeing your show I’m wondering if this is a type of superbug.