Topic : 08/19 Tired of Being a Mom

Number of Replies: 921
New Messages This Week: 3
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Created on : Thursday, March 20, 2008, 12:38:55 pm
Author : DrPhilBoard1
(Original Air Dare: 03/25/08) Motherhood isn't always about the good times, like baking brownies and having game night with the family. Dr. Phil talks to women who say they can’t cope with their children, and they’re running out of resources. Robyn adopted her 10-year-old daughter, Alyssa, six years ago from the Ukraine and says she actually has thoughts of sending the girl back. Robyn says that Alyssa hasn’t bonded with her and doesn’t know how to love anyone. She says her daughter screams, cries, yells and even threatened to kill herself! Robyn’s husband, Joe, can’t imagine living without his adoptive daughter and intends to stand by his commitment to the child. What's the real reason Robyn never bonded with Alyssa? Then, Cyndi says if she’d known her 12-year-old son, Alex, had autism and Down syndrome, she may not have brought him into the world. She says he hits himself, screams, grunts at the top of his lungs and wears two pairs of diapers at a time because he’s not potty trained. Her husband, Ulis, says he doesn’t find it difficult to care for Alex, but Cyndi says she’s exhausted and overwhelmed. Should the boy be institutionalized? Find out what Dr. Phil thinks. Plus, meet a mom with four kids who’s already left home twice. Now she’s scared she may leave again — this time for good. Talk about the show here.

Find out what happened on the show.


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March 25, 2008, 9:46 pm PDT

This is so sad

I am disturbed to about the story of the boy with Down Syndrome and Autism.  I have 2 sons with Autism.  They are 4 and 7 years old.  I love them with all my heart.  It hurts me that a mother would feel that she would have aborted her child, had she known about his disabilities.  I have very challenging days.  We had the feces smearing situation for several years that was referred to.  And the dynamics in our household can be very complicated when they BOTH have autism.  Neither of them are completely verbal.  My oldest is semiverbal.  And my youngest is starting to fade a PECS system and uses several word vocalizations to communicate his needs.  The noncompliance is very difficult.  It is very taxing on the primary caretaker.  But, my boys have given me so many blessings.  Before I meet them, I would have thought that I wouldn't be cut out for dealing with special needs.  But, there are so many things about my children that I absolutely cherish that typically are taken for granted.  Not a word goes unnoticed.  Every second of eye to eye gaze to absolutely relished.  I am so incredibly blessed by my boys. 

 

And as for the lady with 4 normal kids, BOO  HOO!  Grow up! 

 
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March 25, 2008, 9:50 pm PDT

Thank you!

Quote From: daburrs4

I hope to see more shows about adoption & reactive attachment disorder!  I am a mom of 5 grown children, and have fostered children for the past 5 years.  I currently have 3 adopted sons, and two foster sons.  Reactive Attachment is a gut wrenching, traumatizing disorder!  It is a monster and brings so much chaos into a family!  Parents need so much support and help parenting the RAD child!  They also need to be able to take a long break every few weeks to refresh themselves!  Only parents of a RAD's child can relate!

Thank you and Amen!

Robyn, mom of Alyssa

 

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March 25, 2008, 9:51 pm PDT

RAD kids

Can you imagine going to your kid's elementary school to tell them your child should never be unattended, especially with younger children? Because you've already experienced so much lying manipulation by your child, you already know the school is not going to believe you and their counselor and your child's teacher are going to want to recommend you, the parent, seek professional help for yourself. Your experience already has you prepared, because you bring a letter from your child's RAD experienced counselor that this child has already admitted that if a younger child had something your child wanted and thought he/she could get away with it, your seemingly sweet child would not only take it, but make sure their schoolmate was completely silenced forever so they could never tell.

You have already figured out that the only way for your spouse to understand what you go through, let alone the rest of your extended family, is to secretly videotape your child raging, kicking in the wall next to an electrical outlet, pointing a knife at you, and then, of course, the letter from the RAD counselor that this sweet child already has a detailed plan to kill everyone in the family.

How can anyone else know what you are going through when this child presents as the most caring, sweet, and intelligent kid around? They wonder why there is an alarm outside this child's bedroom door so you know if it is opened at night, so can get some sleep knowing everyone will still be okay in the morning.

This child is not a monster but a survivor. If these kids could get diagnosed early enough so that experienced RAD counseling could help the family survive intact, then our neighborhoods would be safer, and there would be more room in our jails.

If you suspect or know you are living this nightmare, find a RAD support group, find RAD counseling, circle the wagons, and do this before it is too late. As a parent who lived this, there is light at the end of the tunnel.

Know you are not alone, and know we have all done things we regretted before we found the right help.
 
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March 25, 2008, 10:03 pm PDT

Mom of special needs child from this show

Quote From: yoshiyoshi

I agree with you completely. We are in a society that suffers from mommy martyr syndrome. We have shows like this where all the mothers do is whine about the position they put themselves into. Unfortunetly, despite how well Dr. Phil did at explaining that the mothers don't have a right to play martryrs, there are parents who will see the title of this show, and feel it's approving of them having a victim mentality about being a parent.

 

You can't even ask a parent to move their children down a few tables, so you don't have to hear them scream or yell, without a diatribe about how hard their life is and you're not a parent so you have no right to adress them. This is a major problem with our society, we're tellng parents, especially mothers, that they are entitled to acting as if the rest of society is beneath them. Even at times their own children.

 

I think parents who joke about abandoning their children, should have their children taken from them. They're admitting their child is at risk, of them at a whim deciding they just don't want to do it anymore. They're kids, not virtual pets.

 

This mother doesn't understand why her son with Down Syndrome/Autism keeps saying "mean!" at her, well it's probably cause she is mean to him. She's not taking the time nor the effort to understand him. She sees the only way to interact with him is through discipline.

 

If this show had anything positive for it, it showed that the husbands were far better parents than their wives. Like that woman who kept saying I want to leave my family, fine, go. Give her children the opportunity to have a mother who cares. Not a mother who in public says she'd die for her kids, then in the next sentence talk about leaving them at school like sacks of flour.

 

Do these mothers think their children are unable to hear that they're not in this with full support. Do they think that they don't know their mommy cares about them with the same extent they would care about a object? Why do you think these kids are having problems, cause instead of being raised by their mothers, their mothers are on the phone playing martyr mommy with their friends.

 

Hikerchick, expect to get alot of angry posts here. As someone who tells parents alot of what they don't want to hear on bulletin boards, I know very well that it's expected that I'll be the target of alot of parent temper tantrums. What I'm saying is, alot of people probably won't agree with you. You are dealing with reality the best way you can. When you tell parents they have to buck up and live in the same world you and I live in, it's easier for them to attack what they don't want to deal with, than to deal with it.

I am the mother of the disabled child from this show.For those of you who do not get it let me explain.I love this child very much.I have had to fight with Dr.,s to get them to even look at my child when he was sick. I had a terrible time getting him diagnoised with autism because he already had a label of Downs syndrome.Dr's do not know how to recognize symptoms of autism in a child with Ds. I gave this child a voice and created a communication book so he could tell me he is thirsty/wants/needs.I live in torment every day because if my child is hurting,toothache,sick, etc,he cannot tell me.My son went through open heart surgery in 2003 and believe you me I was scared he would not make it.For someone to say I do not love or do not have a clue about taking care of a disabled person.You do not know me or what I am about.I wrote to this show because there are no resources were I am.The government won't help unless you make less than 15,000 a year for a family of (4). We struggle because I can only work on days he is in school.I gave up My career when my son was about 4 yrs old because no day care would keep him because he was not walking or potty trained.If a respite worker comes once most of the time they will never come again.Imagine changing a 12 yr old diaper while he is kicking and hitting you.They do not want to deal with him.I had a school teacher once tell me that my son may never learn his alphabet or how to write.I taught my son his alphabet and we are working on writing.I believed in my son with no one else did. This is the 1st year that my husband has been able to help get our son ready in the mornings.Every day of my sons life I have dealt with him throwing himself on the bed,or floor and by myself  trying to get him ready for school.We cannot afford someone to come in every day at $1,000 a week and help me with Alex.Insurance does not pay for behavior help. I have never wanted to put my son anywhere out of my sight for one moment where someone might abuse him.However physically I can no longer pull my son up if he throws himself on the floor.My body aches every day.My son did not learn the word mean from me.His loving sister was upset because he slapped her in the face and she said "Alex that was mean".So Alex now says mean when we make him do something he does not want to do.Such as going upstairs,taking a bath,having to leave the house,  or getting out of the car.Once I had to call the Fire and rescue for a lift assist.Why because my son would not get out of the car after 2 hours of sitting in the car.Whoever said you cannot know what my life is like by watching a ten minute segment of a show hit the nail on the head.I belong to a support group of parents of kids that are Down syndrome and autistic and it's a good thing because ,after reading insensitive post from people like you, I do need their support.People should not be so quick to judge.
 
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March 25, 2008, 10:09 pm PDT

Disabilities can bring blessings

I am a mom of 4, 3 of whom have significant disabilities that require an incredible amount of care.  My husband is active duty military so there long periods of time where it is just me with the kids while he is deployed.  Watching the mom with the son who has Down Syndrome & Autism made me really upset.  Is it hard being a mom?  Absolutely!  Is it even more challenging parenting a child with a disability?  Most definitely!  The struggles and challenges faced daily dealing with the special needs of children who have disabilities can be draining physically, emotionally, financially & relationally.  It impacts every area of your life in ways you never imagined before you were there.  I know this first hand.  It is easy to feel depressed, angry, isolated, misunderstood and completely overwhelmed.  However, there are things that come about from parenting a special needs child that many people overlook.    In my journey I have realized how many little things many of us take for granted.  When my son who has Aspergers (an autism spectrum disorder) and struggles to form & maintain relationships gave me a real hug on his own,  got invited to spend the night at a  friend's house, and made it through 5 days at a church camp with no supports...well the tears flowed and my heart swelled with unbelievable pride.  When I hear my 13 year old daughter who has genetic disorder advocate for herself at school for accomodations she needs, educate others about her disability, and see how she lives her life with incredible confidence, faith & strength, it makes me so proud to be her mom. When my 8 year old with a seizure disorder & severe asthma lays in the bed during one of his frequent hospital stays and does goofy stuff just to make me laugh and tells me not to worry, that he will be fine, I chuckle and wonder what my life would be like without his big blue eyes, huge smile and hilarious laugh!   We have learned to cherish the small moments that had our kids not faced the challenges they have, we may let slip by unnoticed.  Do I get exhausted being a mom to multiple kids with disabilities? Without a doubt.  There are sleepless nights, hospitalizations, medical tests, unending appointments with more specialists than we knew existed, tens of thousands of miles driven each  year just to get to the doctors we need, navigating through special ed, insurance and fighting to get the services my kids need.  There are nights spent crying wondering how we are going to make utility payments and put gas in the car because of the expense of services that aren't covered by insurance and meds that they have to have but cost more than we can afford.  We sometimes the question the fairness of having 3 of our 4 kids having disabilities.  But have I ever wished I hadn't had them - NEVER.  If a doctor could have told us during pregnancy that they would have disabilities, it wouldn't have changed anything.  They are our children, our flesh and blood, a piece of us.  If someone asked me 15 years ago if I would be able to handle a child with significant disabilities, I don't think I would've said I could.  But we don't get to choose all of our circumstances in life.  Sometimes you end up with things you never planned on, but you get to make a decision - you can either let it make you a bitter person or a better person.  That you have complete control over.    So what do you do to pull yourself out of that pit you can find yourself in?  Get educated - get out there and do the research.  Learn about your child's diagnosis.  Make a point to find what services & resources are available to you in your community and state.  Get in contact with the Parent Training & Information Center in your area/state. 

Each state is home to at least one parent center. Parent centers serve families of children and young adults from birth to age 22 with all disabilities: physical, cognitive, emotional, and learning. They help families obtain appropriate education and services for their children with disabilities; work to improve education results for all children; train and inform parents and professionals on a variety of topics; resolve problems between families and schools or other agencies; and connect children with disabilities to community resources that address their needs.  Learn how to be an effective advocate for your child and teach them how to become an advocate for themselves.  Get hooked up with a support group for parents of children with disabilities where you can go and develop relationshiops with other families who are experiencing similar circumstances.  Take time to get away and focus time on yourself and with your spouse, even if it's just 30 minutes or an hour to have coffee or lunch.  Make a point to find your child's strengths and help them develop those as opposed to constantly focusing on the areas they are lacking in. 

 

I feel for these mom's who seem to be in despair and feel overwhelmed by dealing with their children's conditions.  You are grieving the loss of the child you thought you would have, the life you pictured, and it's been replaced by a completely different reality.   But realize that these kids need you.  They depend on you.  And though you may feel inadequate at times to provide them with everything that they need, you can do it.  Don't be afraid to ask for help when  you need it.  There is help out there...it rarely finds you on its own - you may have to do some digging to find where to access the services you need, but they are there and it is worth the effort.  Our children are a blessing from the Lord and I am so thankful for the lessons I am learning through parenting my special needs children and for the person I am becoming because of what I deal with every day.  Through my experiences I have found a passion I didn't know I had - working in special education & disability rights advocacy.  I believe so much is perspective...take time to enjoy just hanging out with your child and find a way to connect with them.  These kids didn't choose to have a disability, they didn't choose for their life to be the way it is, they aren't making your life miserable on purpose.  Step up, stop feeling sorry for yourself, and make the choice to make the best out of the cards you were dealt.  You do not have control over your child's disability, but you do have control over how much power you let it have over you.

 
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March 25, 2008, 10:13 pm PDT

to the 18 yr old

Quote From: mony89

hi im 18 y o female im living my life so well because dad and mam are so great they leave me do what ever i want that how should be all the familys.

untill u have kids u will not know what it is like to raise children they are  a wonder to have no mater what the problem is these moms are at thier wits end and not sure what to do.

but will tell u this tho i was once told you never can spoil a child with to much lovin and im not talking about giving them what they want either hope dr phil will know for my mother told me this when i was raising mine and it took me along time to understand what she ment till a friend said that disaplin goes with that hand in hand

 
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March 25, 2008, 10:14 pm PDT

A little harsh

Quote From: momto2auties

I am disturbed to about the story of the boy with Down Syndrome and Autism.  I have 2 sons with Autism.  They are 4 and 7 years old.  I love them with all my heart.  It hurts me that a mother would feel that she would have aborted her child, had she known about his disabilities.  I have very challenging days.  We had the feces smearing situation for several years that was referred to.  And the dynamics in our household can be very complicated when they BOTH have autism.  Neither of them are completely verbal.  My oldest is semiverbal.  And my youngest is starting to fade a PECS system and uses several word vocalizations to communicate his needs.  The noncompliance is very difficult.  It is very taxing on the primary caretaker.  But, my boys have given me so many blessings.  Before I meet them, I would have thought that I wouldn't be cut out for dealing with special needs.  But, there are so many things about my children that I absolutely cherish that typically are taken for granted.  Not a word goes unnoticed.  Every second of eye to eye gaze to absolutely relished.  I am so incredibly blessed by my boys. 

 

And as for the lady with 4 normal kids, BOO  HOO!  Grow up! 

     First of all, I would like to say that it takes a special person to raise a special needs child.  I teach preschoolers, and have had several autistic children come through our class, and I know why God gave me "normal" children.  I can't imagine dealing with them on a daily basis.  I am not a strong enough person.  On the other hand, I don't think another mother's trials should be trivialized because her children are "normal".  I understand that she should feel thankful and blessed, but I do think that there is room for compassion for all.  We, as mothers, have a common bond.  We are all very much the same.  Our children and the way we deal with them is what makes us different.  We should be able to reach out to one another for direction and support, and maybe even a slap on the back of the head when we are being a bit ridiculous. 

I agree that she needs to be more mature about the situation, and find some resources that are right for her and her family.  If she feels guilty about leaving them, then she shouldn't complain about wanting to leave them. 

I do see her point a little.  I have four children, and it can be very stressful.  But it was me, and only me, that got me here.  So, I don't really have room to complain.  I am grateful for my healthy children, and I pray for strength and endurance.  Just because my children aren't special needs, doesn't mean that I can't get tired, as well.  :) 

I pray blessings your way, as I said, it takes someone very special to care for a special needs child.  God must have saw something wonderful in you to give you this task!
 
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March 25, 2008, 10:16 pm PDT

tired of being a mom

for those that has never been a parent never say any thing till you are one and for those that are a parent we don't all parent the same way these parents are reaching out for help of some kind so try and understand that if they come to dr phil for help the the man help them
 
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March 25, 2008, 10:22 pm PDT

Bless you

Quote From: specedadvocate

I am a mom of 4, 3 of whom have significant disabilities that require an incredible amount of care.  My husband is active duty military so there long periods of time where it is just me with the kids while he is deployed.  Watching the mom with the son who has Down Syndrome & Autism made me really upset.  Is it hard being a mom?  Absolutely!  Is it even more challenging parenting a child with a disability?  Most definitely!  The struggles and challenges faced daily dealing with the special needs of children who have disabilities can be draining physically, emotionally, financially & relationally.  It impacts every area of your life in ways you never imagined before you were there.  I know this first hand.  It is easy to feel depressed, angry, isolated, misunderstood and completely overwhelmed.  However, there are things that come about from parenting a special needs child that many people overlook.    In my journey I have realized how many little things many of us take for granted.  When my son who has Aspergers (an autism spectrum disorder) and struggles to form & maintain relationships gave me a real hug on his own,  got invited to spend the night at a  friend's house, and made it through 5 days at a church camp with no supports...well the tears flowed and my heart swelled with unbelievable pride.  When I hear my 13 year old daughter who has genetic disorder advocate for herself at school for accomodations she needs, educate others about her disability, and see how she lives her life with incredible confidence, faith & strength, it makes me so proud to be her mom. When my 8 year old with a seizure disorder & severe asthma lays in the bed during one of his frequent hospital stays and does goofy stuff just to make me laugh and tells me not to worry, that he will be fine, I chuckle and wonder what my life would be like without his big blue eyes, huge smile and hilarious laugh!   We have learned to cherish the small moments that had our kids not faced the challenges they have, we may let slip by unnoticed.  Do I get exhausted being a mom to multiple kids with disabilities? Without a doubt.  There are sleepless nights, hospitalizations, medical tests, unending appointments with more specialists than we knew existed, tens of thousands of miles driven each  year just to get to the doctors we need, navigating through special ed, insurance and fighting to get the services my kids need.  There are nights spent crying wondering how we are going to make utility payments and put gas in the car because of the expense of services that aren't covered by insurance and meds that they have to have but cost more than we can afford.  We sometimes the question the fairness of having 3 of our 4 kids having disabilities.  But have I ever wished I hadn't had them - NEVER.  If a doctor could have told us during pregnancy that they would have disabilities, it wouldn't have changed anything.  They are our children, our flesh and blood, a piece of us.  If someone asked me 15 years ago if I would be able to handle a child with significant disabilities, I don't think I would've said I could.  But we don't get to choose all of our circumstances in life.  Sometimes you end up with things you never planned on, but you get to make a decision - you can either let it make you a bitter person or a better person.  That you have complete control over.    So what do you do to pull yourself out of that pit you can find yourself in?  Get educated - get out there and do the research.  Learn about your child's diagnosis.  Make a point to find what services & resources are available to you in your community and state.  Get in contact with the Parent Training & Information Center in your area/state. 

Each state is home to at least one parent center. Parent centers serve families of children and young adults from birth to age 22 with all disabilities: physical, cognitive, emotional, and learning. They help families obtain appropriate education and services for their children with disabilities; work to improve education results for all children; train and inform parents and professionals on a variety of topics; resolve problems between families and schools or other agencies; and connect children with disabilities to community resources that address their needs.  Learn how to be an effective advocate for your child and teach them how to become an advocate for themselves.  Get hooked up with a support group for parents of children with disabilities where you can go and develop relationshiops with other families who are experiencing similar circumstances.  Take time to get away and focus time on yourself and with your spouse, even if it's just 30 minutes or an hour to have coffee or lunch.  Make a point to find your child's strengths and help them develop those as opposed to constantly focusing on the areas they are lacking in. 

 

I feel for these mom's who seem to be in despair and feel overwhelmed by dealing with their children's conditions.  You are grieving the loss of the child you thought you would have, the life you pictured, and it's been replaced by a completely different reality.   But realize that these kids need you.  They depend on you.  And though you may feel inadequate at times to provide them with everything that they need, you can do it.  Don't be afraid to ask for help when  you need it.  There is help out there...it rarely finds you on its own - you may have to do some digging to find where to access the services you need, but they are there and it is worth the effort.  Our children are a blessing from the Lord and I am so thankful for the lessons I am learning through parenting my special needs children and for the person I am becoming because of what I deal with every day.  Through my experiences I have found a passion I didn't know I had - working in special education & disability rights advocacy.  I believe so much is perspective...take time to enjoy just hanging out with your child and find a way to connect with them.  These kids didn't choose to have a disability, they didn't choose for their life to be the way it is, they aren't making your life miserable on purpose.  Step up, stop feeling sorry for yourself, and make the choice to make the best out of the cards you were dealt.  You do not have control over your child's disability, but you do have control over how much power you let it have over you.

     Thank you for your loving approach to this.  It gives me hope that there are mothers out there who can find joy and love in your role as a mother of children with special needs!
 
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March 25, 2008, 10:22 pm PDT

I agree!!!

Quote From: hikerchick

As the mother of a son with down syndrome, I am disgusted at this womans attitude.  I am hoping that the discription of her situation and attitude is more dramatic than what it really is..  Heh, my response to her is  "Deal with it, he is your son,"  Anyone who states that they wish their child had been aborted ought to be slapped.  Perfect or imperfect. Oh well.  How can you even look at him after making such comments? 

 

Having a child with special needs is very challenging.  There have been many trials over the  years since the birth of my son.  Not once have I wished that he had been aborted. As a matter of fact, when the doctor wanted to talk to me about "options" the idea was so far form my mind that I didn't even kno what it was that he was asking me at the time.

 

I have given up my career and my husband and I gave up our previous lifestyles to care for our child. We used to be very involved in our jobs and worked long hours, we went out all the time and we spent money because we had it.   Of course, a lot of that changed but it wasn't just becuase our son has down syndrome.   We both still work, have hobbies and do things that we like to do.  What's this lady's problem?

 

Do I have bad days?  Yes, but do. I have a lot of them. I get frustrated a lot and to be truthful, a lot of my frustration comes more from other people than with the challenges with him.  The thought that this child might be "institutionalized" frightens me and it makes me want to find these people.  There should never be any thoughts of doing this to your child just because YOU can't handle it. I would NEVER in a million years consider doing that to my son. NEVER.

 

Get help. There are services available and it's YOUR own fault for not obtaining it.   No child ought to be disowned because you didn't do what you were supposed to.  I'm guessing that the attitude that these people had was bad from the start.  Seems very selfish.

 

There are a thousand places to get support from other families who are in the same situation that you are. Of course on the other hand, if you're going to be like this then maybe it's in your childs best interest to go and be with other people who are willing to care for him and work with him.   

 

Some people have the attitude that  just because he had down snydrome he was a lost cause.  Shame on you.  Due to the efforts of my husband, myself and our team of early intervention therapists, teachers etc, he is going to attend school and have a full life.  He enjoys his life.  When I look at him and see him smile and do things that he was never supposed to do, I smile and I know he was worth it.

 

There were times when I had 4 early intervention therapists in my home a week.  We gave up a lot of our time so that he could have the services and it paid off!!   He did a lot of things before "they" said that he would.

 

I don't even know if I am going to watch this episode. I'm angry just reading the preview. I can't imagine what the freak out will be like it I sit down to watch.  *chuckles*

I am also the mother of a disabled child.  My son has Cerebral Palsy and is Autistic and I agree with everything you said.  I could not imagine one moment without my son in my life and can't  imagine life without him now.  He is such a blessing even with all the struggles that we have went through and still have to go.  I was told what a great school that Mississippi has for children like my son and against my better judgement did have him put in residentual care for 8 months.  It was a disaster for all of us and believe me as long as I live and breathe he will never leave home again.  Like you say thaere is always a way to cope and life isn't easy for anyone.  Anybody that thinks it is is living in a fantasy world.
 

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