Quote From: hopeforall2001Hi,this is HOPE [KIMBERLY and I thankyou for your surport and sharing with me with your struggles as well. Yes it is discusting that they can afford a exspensive cell and computers and dont have the most important things they should by law have. I would love to go and find this guy but I would probley get myself in trouble. Anyway we have reached out to our community and asked for help with a heavy heart because some are wondering where there going to sleep or where there next meal is coming from so its very hard.
We have done so much to raise this money but were having no luck and it worry's me and We have waited a longtime to have some luck and now I feel were cheated again because of our economy it really stinks.
I wanted to say Im sorry it took a longtime to get back to you I haven't been doing well at all.My burning and bone pain is awfull.I wish I never made it then live like this and traumatise my daughter and make my husband so tired.Our family is just the 3 of us and we were doing well until the accident.
It really angers me to have my life altered in such a way as ours has been and it really isnt fair.I hope your feeling better and again Thankyou so much for your thoughts and caring!
I wish to go on dr phil show to get awareness out but its quit tuff to do! How does anyone do that? I would really be happy to get his help! I love the show its my fav and never missed one! take care!
LOVE,
HOPE FOR ALL 2001
Im really sorry I never checked back to see if I had any replies and Im sorry! Thankyou for your kind thoughts ! I didnt look back because i didnt think anyone would write back because they dont know what my disease is about. But I shouldnt have done that here you guys replyed and I do Thankyou again.
I dont know whats going to happen to me because I cant seem to get anyone to pick up my story or help me and my family. Im suffering in a body that is attacking itself and the severe burning has consumed my whole body and im in severe distress from all the pain.
I look like a dirt bag half the time because I dont feel pretty with this horrific disease that has put everything in front of me and I cant have any of it because of how serious my disease is.
Im living in a life of hell and theres not a damn thing I can do about it and if there is I probley already have tryed it.
I keep writing to our congress and senators, groups, I think my story is all over the internet trying to get someone to help me and I rarely get a response.But I still keep trying.
Theres not one day that I havent tryed to get answers with this non curable disease and with no answers or anyone caring about my story enough to call or email me to help makes me feel like my life is going to hell because no one wants to help me.
I dont want to live like this and have my daughter and my husband of 20 years to see what this is doing to me anymore and there so sad and there hearts are breaking and my daughter said a while back how can these people not help my mommy I dont want her to die!
This of course plays in my mind over and over with other things as well.When I see all the shows and people storys on tv,news,papers,ect I want to know why isnt my life important enough to save too and I have been fighting so hard and i continue to here nothing and that scares me!
I have been suffering horribly for almost 9 years now! Im literally scared to death for my life I dont want to suffer to the end too!
SOMEONE PLEASE TELL ME WHAT IM SUPPOSED TO DO? IM IN NEED OF SERIOUS HELP OR IM GOING TO DIE AS THE YEARS GO BY THIS DISEASE GETS MUCH WORSE AND IT WILL GO TO MY ORGANS ITS THE ONLY PLACE LEFT TO GO SO IT WILL PROBLEY KILL ME ! IM SCARED TO DEATH I DONT WANT TO DIE!
HOPE FOR ALL 2006!