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Topic : 08/25 Extreme Food Obsessions

Number of Replies: 371
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Created on : Friday, October 28, 2005, 02:17:57 pm
Author : DrPhilBoard1

(Original Air Date: 11/03/05) What if you were so obsessed with eating that it almost killed you, or craving food so badly that you yelled, kicked and screamed when you couldn't get enough. Nichelle's 6-year-old daughter has Prader-Willi Syndrome and constantly wants to eat. She once threw a fit so loud, the neighbors called the police. Can Nichelle learn to control her own temper when her daughter has a tantrum? Then, Dr. Phil follows up with Kathy, an anorexic whose condition was so severe, she weighed only 68 pounds. She spent three months in treatment, but her struggle is not over yet. Can her family learn the difference between supporting her and enabling her? Talk about the show here.

 

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November 2, 2005, 7:19 pm CST

wow

Quote From: nichelle81

OK, first of ALL... until recently I did not know what my daughter had. Second of all, your son is ONLY 21 months....you have NO clue what the future holds for you with a child who has that disorder. Savannah has terrible fits of rage, violent outbursts, and screams bloody murder when she doesnt get her way. DEAL WITH THAT!!! you havent seen anything yet. Im a 24 year old SINGLE mom with 2 spoiled little brats. I try to do the best I can. I DO spoil them sometimes because I love them, but its taking its toll! NO ONE who knows me will EVEN watch my one year old. (she was born a mamma's girl and a screamer!) IM ALL ALONE. I went to Dr. Phil for help because OBVIOULSY I felt I needed it!!! Can I get SOME credit?! People dont air their dirty laundry JUST BECAUSE! Do you think I want the whole world to think Im a jerk?! NO, but I DO Know I need help with dealing with my daughter. I cant handle it by myself. Dont come down on someone that had the nerve to even come forward! its a good thing! I HAD THE "BALLS" TO SAY ON NATIONAL TV WHAT EVERY OTHER FRUSTRATED PARENT IS THINKING, AND I WASNT SCARED!!!! be a jerk if you want, but i think I just opened up a whole can of worms...youll see. TUNE IN!!!! 

  

First of all I do feel for what you are dealing with. I am truly sorry you have been dealt this hand. It must be very hard in daily life. I do hope you can find help for not only your children but for you too. I know that it is hard to take what people say about your family; but again you asked for help and believe it or not most people think this is their way of helping:). Please remember these kids are a gift and can be taken at any time from this life we all take for grant-it. I work with a lot of children who have disabilities from Autism, to Emotionally Disturbed and even though these kids have disabilities they can teach us something everyday they are here with us. Good luck to you and your family.
 
November 2, 2005, 8:36 pm CST

11/03 Extreme Food Obsessions

Quote From: bitburg

Hi Nichelle, 

   I was able to see that you are from Michigan I just moved from their to Idaho. I want you to know their is a lot of services their for children with disablities. I also want you to know that my son who has cp and mental retardation. Is a joy to me and has taught me many life lessons. If I had it to do over again I wouldnt change a thing. If you need help with services in the Michigan area let me know. I will do my best to help you. I feel like not only are you struggling with your children, but might also be struggling with some of your own issues as well. So good luck in your theraphy and stick it out. It does work if you use what is recommended. 

First of all spanking with a belt is abuse. I am a therapist that have worked with individuals with Prader Willi. I am finding it very hard to beleive that your child was not diagnosed until recently, and where is her support system from school or her doctors. she should have a dietician and behavior specialist or have you not look for that level of help. It is clear that you need help- especially since you call your children brats. besides being a therapist i also have a child with diabetes and know that being a good parent involves monitoring and controlling food and following the proper protocals. I am hearbroken for your child because you have allowed her health to reach this crisis.
 
November 2, 2005, 8:43 pm CST

11/03 Extreme Food Obsessions

I truly hope that Dr. Phil is going into the fact that people with Prader Willi have many other complicated issues besides lack of hunger satiation, most have Mental Retardation and with the proper tratment plan there is no need for them to be unhealthy. This disorder is not an eating disorder and I quite frankly do not think it should be on a show as the opposite extreme of anorexia. I have been working with children with special needs for over 20 years and as much as I love Dr. Phil I am very concerned with the show preview I saw. I am also sickened by this mothers postings on the website about her "brats". Maybe she learn what birthcontrol is.
 
November 2, 2005, 8:50 pm CST

11/03 Extreme Food Obsessions

Quote From: joyceopp

 Nichelle:

I am sorry if my words upset you.  You need to understand that just because you feel that your situation is "the way PWS IS" does not make it so.  Your situation is tough, no question, but the way you have chosen as the adult to deal with it is abusive and wrong.  All I am saying is that there are many, many PWS families out there that deal with the situation without abusing their child.  It is NOT easy for them either, single or not and many of them are. 

The only reason we are concerned is because your kids need you to be the grownup and handle the situations responsibly and our children with PWS do NOT need PWS to be portrayed by a family that is totally out of control when we spend every waking minute trying to handle our indidividual situations with maturity and control.

I am sorry, but you are NOT the right person to portray the "typical" PWS family at this time.  I do think that you can be and hopefully with Dr. PHil's help you to be an in control adult when dealing with your own situation.

As one PWS mom to another, I applaud you for getting help and wish you the BEST of LUCK with learning to control your temper and anger. 

Joyce
I agree joyce it is truly too bad that the first info. many people will get about PWS will be from this seemingly ignorant, immature child who happens to have given birth twice. I can only hope that Dr. Phil yanks a knot in this mother tail, and saves her children.
 
November 2, 2005, 8:58 pm CST

I'm sorry

hey nichelle, 

   im sorry for what i wrote earlier it was a mistake too confuse the situation you have too understand what i seen on the preveiw made me upset now i know it is hard too be a mom i am a new mom but understabd what i seen really upset me. I hope you get all the help you need for you and your daughter becasue you both need it i hope you did not get too upset for that im am trully sorry please get help for savannahs sake god bless 

 
November 2, 2005, 11:25 pm CST

PWS

 Hello from Alberta, Canada.  I'm 23 years old, and my 19 year old sister has PWS.  I recognize her symptoms in some of your posts; temper tantrums, inappropriate behaviour, mental disabilites, and insatiable hunger.  I have two other siblings, a sister who is 21, and a brother who is 16.  We've grown up with a locked fridge and pantry, and we know what its like to have others stare at you when your sister is behaving innapropriately in a public place.  Keeping this in mind, we love and treasure our sister.  Taking care of a child with this condition takes incredible amounts of effort and devotion.  We have had home-aids in the house on a regular basis working with my sister to help her, and to give my parents a much needed break.  My mother has gone through countless hours of meetings with government agencies to get my sister all the help she needs, financial and otherwise.  My father has served as president of the Prader Willi Syndrome Association of Alberta.  In the event that my sister outlives my parents, my sister and I will become her guardians.  Now that she's an adult, she lives in a group home with two other handicapped girls, with round-the-clock supervision.  Even with her mental disabilities, my sister has an incredible memory for dates, she can tell you if a certain day will be a Monday, Tuesday, or Wednesday, several weeks into the future.  When it comes to deciding the proper method of dealing with behavioural issues relating to PWS, it is very difficult.  There is very little reasoning with people with PWS, when my sister sets her mind on something, its very hard to change it.  All the yelling in the world doesn't help.  Sometimes you just have to ride out the temper tantrums, use time outs, etc.  Hitting doesn't help, because they will probably just scream louder.  There are several organizations out there that can help, there are several Prader Willi Syndrome Associations accross Canada and the United States.  It is always interesting to hear stories of other's dealings with PWS.  I will be watching Thursday's show with great interest.  My parents have always figured that there must be some reason that God brought such a special person into our family.
 
November 3, 2005, 4:46 am CST

11/03 Extreme Food Obsessions

Quote From: pedsotr

I agree joyce it is truly too bad that the first info. many people will get about PWS will be from this seemingly ignorant, immature child who happens to have given birth twice. I can only hope that Dr. Phil yanks a knot in this mother tail, and saves her children.
Have you watched the show yet? Lets not jump to conclusions.. I too was upset that this mom called her children brats... she needs help, not only for her child but for herself  and her entire family to understand. She is also I'm sure  having a million mixed emotions. I don't agree with her tactics but she did come forward to get help. Maybe Dr. Phil wanted her case to come forward first because of the severity of it so if there are any other mothers that are dealing the same way as this mom they would come forward and get help too. When you see that everything is just peachy, sometimes it makes you feel worse about your uncontrolled situation and you don't get help because of the embarrassment. Please look at all angles and don't lash out when you haven't seen the show. We have only seen clippings and usually they are the worst to get us interested... it sure did didn't it???  I'm not saying that I disagree with the fact that the mom is WRONG, but she did do something RIGHT in looking for help and answers. Mothers of PWS children need SUPPORT, lets stand behind them right or wrong and help by giving constructive criticism rather than knocking them down when they have made bad decisions. We all make bad decisions at some point, some worse than others but we need to be forgiving and helpful so it doesn't happen any more. I went into a rage when I first saw the clips from the show also... It gives you a horrible feeling in your stomach but lets pull together and help this mom so she can take care of her child appropriately with the love and care Savanah deserves.
 
November 3, 2005, 5:15 am CST

Prader-Willi

Back in college, I worked as a "relief house-parent" in a group home for Prader-Willi "kids."   In a nutshell, my husband and I would arrive at 3 pm Friday afternoon and stay until Monday morning.  We prepared meals (according to each client's diet plan), did the shopping, supervised all activities, helped with personal hygiene issues, and dispensed medication, including insulin and anti-psychotics.  We took them to the mall, took them to movies each Friday night, took them to the fair, etc.  Our clients' IQs ranged from 32 to 80.   

  

Smacking a Prader-Willi kid for craving food is like smacking them for breathing--it's not a chosen behavior, it is what and who they are.  Can they be maddening?  You bet--they're prone to rage episodes, obsessive behaviors, self-mutilation, awful behaviors like rumination, and will do anything possible to get food--including climbing out a window at 2 am, sneaking across an alfalfa field, and breaking into a neighbor's garage to forage in a freezer and eat frozen, raw meat.   Think about it--who would CHOOSE to gnaw on frozen, raw hamburger?  It's not a choice, it's an inherent compulsion. 

  

My advice to anyone who feels they can't resist smacking/belittling/abusing their Prader-Willi child?  Find a good group-home environment and place your child there with people who understand the disorder and can provide your child with the structure, training, supervision, and affection they need.   

  

Kris 

 
November 3, 2005, 6:13 am CST

From the buttom of my heart!

I really feel for you... 

  

I know the feeling, well I mean I have never had the sickness anorexia, but i often hear that I schould be so lucky to be so skinny as I am, because I can eat and eat and est, and not gain a weight all my life... 

  

But it hurts me to hear that I look like a ice stick, that to say to a heavy person, that she or he looks like an elephant... 

  

After I started on medications one year ago, because Ive got the diangonse ADD and koncentrations disorter I had gain 5 kg, so now I am 55kg, before i couldnt get over the 50kg, I amso happy, that finaly I can gain weight, and fit my jeans without wearing a belt... 

  

My mother have weihgt 120kg, and lost 45kg on a ½ year.. I am so proud of her... Now we only need my brother to gain weight. he is so skinny that you can se his shoulder blades, but he have the same problem as I that he cant get weight.. I guess its because our father is very skinny so I guess we have it from him... 

  

I really hope, you get the help and get well, and I know its is hard, because the ignorence, people have, and is talking behind your back 

  

I didnt saw the show yet, cause here in denmark the show is  ca ½ year behind, so thats why my messeage might seam weird to some of you... 

  

But get helt, and get well.. I wish you good luck, from all my heart and hope to see how youre doing, when Dr.Phill is giving a follow up to the show, that have just been, så I can sit and cry infront of the tv with happiness and be so proud of you, for coming such a long hard way, that you have done to be well 

  

I really hope the best for you... 

  

Lot's of thourghts from Anna, Denmark 

  

Ps. dont mind my spelling.. I am really better of speeking english, that I am writing it :S 

 
November 3, 2005, 6:15 am CST

DISTURBED!!

Quote From: nichelle81

OK, first of ALL... until recently I did not know what my daughter had. Second of all, your son is ONLY 21 months....you have NO clue what the future holds for you with a child who has that disorder. Savannah has terrible fits of rage, violent outbursts, and screams bloody murder when she doesnt get her way. DEAL WITH THAT!!! you havent seen anything yet. Im a 24 year old SINGLE mom with 2 spoiled little brats. I try to do the best I can. I DO spoil them sometimes because I love them, but its taking its toll! NO ONE who knows me will EVEN watch my one year old. (she was born a mamma's girl and a screamer!) IM ALL ALONE. I went to Dr. Phil for help because OBVIOULSY I felt I needed it!!! Can I get SOME credit?! People dont air their dirty laundry JUST BECAUSE! Do you think I want the whole world to think Im a jerk?! NO, but I DO Know I need help with dealing with my daughter. I cant handle it by myself. Dont come down on someone that had the nerve to even come forward! its a good thing! I HAD THE "BALLS" TO SAY ON NATIONAL TV WHAT EVERY OTHER FRUSTRATED PARENT IS THINKING, AND I WASNT SCARED!!!! be a jerk if you want, but i think I just opened up a whole can of worms...youll see. TUNE IN!!!! 

  

The fact that you just referred to you children as spoiled little brats makes me very upset!!...your daughter has a condition she has no control over...I can honestly say that I have a hard time beleiving you wanted anymore that the attention of being on a national television program...for you to refer to your children that way is unbeleivable to me...they didn't ask to be brought into this world or have a condition not allowing her to lead a normal life...as for the 1 year old...why would you have another child knowing that you already have one with special needs and you are stuggling to get a grasp on life with her...none the less she is here and you have the privelege of being her motherand you should feel honored...the same if true for your oldest you!!! no matter what you think of your children they are wonderful little people who need someone to guide them and teach them and love them and beating her and screaming at her and calling her names and thinking that she understands what she is doing is abuse...I definitely acknowledge the fact that you need help and I am sorry that no one you know will step in but in that case you have to seek out other methods and you could have done that be acknowledging the problem exists first of all and doing reseach and taking measures in your own home to start the process before taking to the level of a national television show...there are resources out there but you have to be willing to take the steps necessary to seek them out...they are going to come to you...I hope for the sake of your two daughters that you get the help you need and if you don't I hope that someone will recognize the situation for what it is and your daughter is placed somewhere that she will receive the love and patience that she requires... 

  

  

 
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