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Topic : 11/23 Schizophrenia

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Created on : Friday, November 18, 2005, 03:44:32 pm
Author : DrPhilBoard1

Imagine hearing voices that don’t really exist, thinking lasers are shooting through your walls or believing that people are coming into your home through electrical outlets. For people with schizophrenia, these types of delusions and paranoia are part of daily life. Mary sees angels and demons and has even believed her husband was a demon in disguise. Then, Ann Marie and Tim would give anything to help their mother. She talks emphatically to people who aren’t there and speaks nonsense to her own children. Watch her erratic behavior captured on camera and find out whether her case is beyond treatment. Plus, two sisters, Melanie and Rachel, want to know if their minds could be ticking time bombs. Talk about the show here.

 

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November 24, 2005, 2:52 pm PST

11/23 Schizophrenia

I can identify with the brother and sister because my mother was afflicted by this illness and I have the same trepidation as the two sisters because I'm afraid of contracting it. I was living away from home when I received a call from a family member telling me that Mom was behaving strangely....talking to herself.  Concerned, I moved back home and quickly realized that my sweet gentle mother had become a total stranger. From early in the morning til deep in the night I could hear her private conversations with the voices.....her voice sometimes raised in anger with her 'demons'. She had only a few hours of peace every day when her body could no longer stay awake. She took to wearing a hard hat so that the beams couldn't reach her brain and eventually someone else to handle her finances because she refused to pay her bills...she thought everything already belonged to her. My father has warned me when I first moved back to lock the bedroom door as he did his because he was afraid she would kill us in the middle of the night...something I never did because I knew "my mom" could never do that.  Actually , it wasn't til years later that we actually found out what was wrong with her...we didn't realize that she could have been helped.  I had done some reading since that mentionned what Dr Phil said about it being triggered by stress. Therein  lies my fear...I internalize my problems...they eat at me and I'm afraid it will lead to my undoing. I will continue to do more research on the matter and find some coping mechanisms. What I hope this program will do is to educate and show that schizophrenics are sick people who have family that love them deeply and are as crippled by the illness as much as the actual sufferer. 

 
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November 24, 2005, 3:02 pm PST

meds and liver

Quote From: pfivestarr

Is mental illness (schizo-effective disorder, depression) always genetic.  My ex blamed me for my sons' illnesses (they are "damaged goods" in his eyes)....I have carried a horrible guilt that I "visited" this on my children. 

  

Does long term medication destroy the physical body...i.e. liver damage, etc.  My son takes a handful of medication daily...but the alternative is awful.....delusions, depression, etc.  He always worries about the long term effects of medication.   

  

Please. will someone who is knowledgeable about these things respond...thank you from the bottom of my heart..... 

 My heart goes out to you.  My 25 year old son takes his medication (Zyprexa and Lamictal) religiously, and he also takes a supplement called Milk Thistle that is good for the liver. It is readily available at drug stores and health food stores. Research validates that it is a useful supplement, but of course, check with his psychiatrist first. My son weighs the quality of his life on meds with the side effects and potential dangers against the quality of life he would have without the meds and the side effects and potential dangers, and chooses to take the risk of side effects.  Take good care. I know your pain.
 
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November 24, 2005, 3:13 pm PST

11/23 Schizophrenia

Quote From: fluffyfat

My son suffers from this waking nightmare called schizophrenia and I'm so grateful whenever brave people step forward to help increase awareness and understanding. Mary, you are such a beautiful, intelligent girl, if you weren't married I would be playing match-making mother right this very minute. (ha ha) My dear son was making top grades in college when this awful disease struck. It doesn't run in our family, but then, as Dr. Phil said today the genetic link is not there in most cases. For ten years my son was unmedicated, psychotic, suicidal, cowering with fear and dread. [bWe need to change the law, so that family members can forcibly commit their loved ones for treatment.[/b Asking the adult schizophrenic to make wise decisions for himself is like asking someone with alzheimers to make such decisions. The organ that is sick is the one needed to make good decisions, so, unfortunately, the last thing someone who is paranoid will want to do is go voluntarily to the doctor -- his illness will cause him to fear that the doctor will "use him as a guinea pig" or "put monitoring devices in his head', etc. We must vote to allow parents to get help for our children, as it is now we have to wait for them to be "a danger to himself or others." Since most schizophrenics are as gentle and frightened as lambs, they go without treatment for years. I finally, going against every mother's instinct, called the police on my son one night, and fibbed that he had threatened suicide (he was highly psychotic at the time.) They took him to a psychiatric hospital, started him on Zyprexa and he has been doing wonderfully well ever since. He works full time, enjoys hobbies and friends, and since switching to Abilify, he is even back to his slender weight. [bSchizophrenia is not a rare disease.[/b It is far more common in the U.S. than muscular dystrophy, MS, AIDS, and many other diseases that we hear about all the time. It is the number one disabler of young people; yet when was the last time you saw a march or telethon for schizophrenia? Every year millions are collected for the March of Dimes, when will we start to address this devastated disease? It's been estimated that forty percent of our homeless have severe mental illness. Is this the way Americans treat our sick? Please continue to help raise awareness of this disease, Dr. Phil -- and thank you, for getting the ball rolling. To paraphrase one of my favorite Dr. Philisms "Let's step up to the plate and demand a cure for these people!"
 I was so impressed with you articulate posting. My son also "suffers from this waking nightmare called schizophrenia." I related to everything you said. I remember one night when I was desperate to get my son help, I called the Crisis Line. In my part of the country, if you want to have someone involuntarily committed, you need to call the Crisis Line, have someone assess the patient, then they send the sheriff to your home to take the patient to the hospital. The person who answered the phone was a college-age volunteer who had no idea about this procedure. She was in over her head. I asked for her supervisor and was very aware of the ticking clock, afraid my son would disappear into the night in the state he was in. The supervisor got on the line at the same time my son picked up the extension and started ranting wildly into the phone. We struggled to be heard for several minutes and the supervisor told me that she could not do an intake assessment if my son would not cooperate! I was dumbfounded! He was so obviously, wildly audibly psychotic, and she was not going to commit him because he would not cooperate with the psychiatric questionnaire! I applaud you for your quick thinking and your "fib." I would have done the same thing if it would have occurred to me.
 
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November 24, 2005, 3:34 pm PST

Thank you, Ann Marie

Quote From: ann__marie

To All who have veiwed this show, all who have a loved one who is suffering from this or a similar illness, and to those brave individuals who are affected by this illness,

It is an absolute blessing that a national talkshow of this calibur is willing an able to approach this topic and bring it into the spotlight. Thank you Dr. Phil and staff!!

My mother was the brave woman on the show shown talking to the voices and displaying very erratic and terrifying behavior. My hands have literally been tied for so so long. I feel like this is such a huge blessing for many people.

I was wishing to get my mom help first. I was hoping that this story would inspire other families in similar situations to not give up the fight. Those loved ones need you the most. It can be soo frusterating to have somone that you hold so close to your heart be crippled by this illness. Financially it can be devastating. Emotionally it can literally tear a family apart. Everyone involved suffers.

I have been reading very closly each and every response to this show. There are so many stories just like ours. So many families that are at their wits end. Does anyone else think that this system is failing us?? I know everyone affected by this is exhausted. The system needs to be reformed. I am so angry that my mom has spent five years of her life suffering. I am angry that she has missed things that she waited for her whole life to see. Her first grandsons birth and my wedding are only a few. It is time now that this has been brought into a national spotlight to stand up and say this system is not acceptable and we are going to change it. The suffering stops now. No one should have to hit rock bottom, hurt themselves or someone else, or land in jail because the system has failed. I bring one question to the table........whose fault is it? We can help so many other countries, but we cannot help our own. No. That is simply not acceptable and it we families need to rise to the top and come out of the woodwork. We need to continue fighting for our loved ones. We also need to rise up and reform the system.

God bless you all. I will continue to pray for others with this illness, their families, and my mom. I love her so much and I want her back. Happy Thanksgiving!!

Sincerely,

Ann Marie

 Your posting meant the world to me. Thank you for all you've done to shine the national spotlight on those suffering through this nightmare and their families who also suffer.  Seven years ago, I thought I lost my son forever. I called my family to tell them and all I could say was, "He's not Vinny anymore." I just wanted him back. Fast forward through the hospital stays, the crises, the police contact, the sleepless nights, the ever-present stress and fear response to each ring of the phone or knock at the door, and now my son is able to communicate, and is high-functioning. I have a very loving and rewarding relationship with him. I am so fortunate. I wake up every morning knowing that miracles can and do occur (with the proper medication!) I did not join NAMI - I was too exhausted and worn down. Now that I am able to do things other than worry if my son would survive the day, I would love to be part of a national movement that calls for reform of the system. Sign me up! If there is no sign-up sheet, let's create one!

Sincerely, warmly and gratefully,

Kathleen


 
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November 24, 2005, 4:02 pm PST

About your step sis

Quote From: chanyn

Hi...I am wondering how old your son is? You sound like a great mom! I have a step sis that has this illness she is 23 now but was dianosed when she was 15...I am really sad for her and am trying to understand what i can do to help. she is on meds but she has little interaction with people. my step dad and my mom do care for her at home but she has never learned how to "support" herself (yet) i am concerned for her quality of life now and for the future...i wonder what will become of her after my parents pass. i have vioced my concern to them but they say she doesn't want to learn...i don't believe that...i think it is some sort of control issue.  

thanks for listening any replies will be appreciated! 

  

 Hi . . .  thank you for responding to my post and thank you for your kind words.  You sound like a kind, caring and devoted sister. You ask how old my son is - he turned 25 years old in Otcober. I am enormously proud of him. I know how stressful it is to watch someone you care about have a difficult time. You express concern about what will happen to your step sister when your parents pass. There is a type of insurance available for this situation. You might want to look into that. Also, it is important for someone to have "durable power of attorney" for her. This means that should she become incapacitated by her illness, someone can make medical, legal and financial decisions on her behalf. There are forms available on the Internet. As for how to support your sister, the American Psychological Association published a report that basically said a kind, gentle loving approach is the most effective. This is sometimes  difficult to do when the person is agitated, paranoid and hostile, but it really works. Certain enzymes such as cortisol are released into the bloodstream when someone is stressed, and these enzymes can override the medication the person is taking. Reducing the stress levels the person is subjected to is so very important. We used the paradigm of Highly Sensitive People as defined by the research of Dr. Elaine Aron. This approach was SECONDARY to medication.  It worked for us.

I wish you and your family  well. Take care.

Kathleen
 
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November 24, 2005, 4:27 pm PST

Schizophrenia, frontotemporal dementia or something else?

 Having worked in neuropsychiatry for several years, I am curious whether or not these late-onset cases are truly schizophrenia. I have seen several cases where patients developed psychotic symptoms in their early 40s and 50s (and later), were diagnosed with schizophrenia/bi-polar disorder/personality disorder/etc. and were then later found to have frontotemporal dementia (also known as Pick's disease) and frontal variant Alzheimer's disease.  It is an important distinction as the treatments are very different.  I am hopefully that these cases will be examined thoroughly with psychological testing as well as neuroimaging and physical examination.
 

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November 24, 2005, 6:08 pm PST

Best Wishes Mary

  

It is wonderful to see a person with schizophrenia who has so much insight and determination. I hope the future holds only the best for you. 

  

I have an issue with referring to people with schizophrenia as "schizophrenics". It is like that is what they are first and foremost. But that is not true. They are men and women. They have schizophrenia.  

  

When my son was little he was diagnosed with asthma. I never called him an asthmatic because that would seem that that is what he is, and the other parts of his life were secondary. 

  

When he developed schizophrenia, it raised my hackles to hear him referred to as "schizophrenic". 

  

People suffering from this illness occupy more hospital beds in a year than any other illness. Yet research into better drugs is lacking, and support services do not get their fair share of funding. 

  

People who have schizophrenia remind me of soldiers out on the battlefield. They truly are some of the bravest people in the world. If the rest of us could walk a day in their shoes, we would be screaming for more aid. As it strikes people in their teens and twenties, think of all the lost potential out there. 

  

  

 
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November 24, 2005, 6:14 pm PST

Thank you so much!

Quote From: leynas

 I want you to know, that schizophrenia is a very difficult thing to deal with to say the least. For both the person with schizophrenia, and for the loved ones. That said, if you are just having every day, normal issues of a normal couple, like lack of time for one another, ect, then deal with it for what it is....Talk to him about your fears that you don't spend enough time together, that you think he is unhappy, and that you want what is best for you both. Don't make it about schizophrenia, unless he tells you something in particular to make you think that his schizophrenia is talking. Don't make his illness be him.

Take care.....

your friendly neighborhood schizophrenic.
The show did wonders for me, because for so long I have been blaming myself for the way things are. Like maybe if I wasn't so devoted to my school work things would be better. Most of the time when I talk to him he is sleeping, and doesn't want to talk because he wants to go back to sleep. At this point I don't really know where we stand. The lack of communication is what is making it so hard for me. I know his illness is not him but, I am worried that there is alot more going on then what he is telling me. I am beginning to wonder if maybe he has a fear that I am going to hurt him or something like that or the way he has distance himself from me. I don't want to hold on to something that is not there. Like I said we haven't been talking or spending time together, and I know mostly it's because of his living situation, and work schedule. But, at the same time he has isolated himself from me, and I don't know if it's the schizophrenia, or if it's because he doesn't want to be with me anymore. Either way I am afraid to find out. So, I talked to him shortly tonite, and told him I wanted to talk to him. Any more advice?? Thank you so much!
 
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November 24, 2005, 7:01 pm PST

Fat and Ugly do not go hand-in-hand

Dr. Phil, I saw your show on Wednesday..  From the 10 minutes that she was in the spotlight, I was able to tell that she was a kind, loving, beautiful woman .  These attributes radiated from her eyes and smile.  I think she would like to hear, that although the medication has caused her some weight gain, it has not changed who she is on the inside.  I doubt that any side effect could damage her inner strength.  Good luck Mary, I wish you much happiness in the future.  JoAnne.
 
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November 24, 2005, 7:07 pm PST

God can help

This is specifically in for the first girl who saw demons,angels and heard voices and saw what I term as"death masks" on people. 

  Once upon a time I thoought I was crazy,then I got plugged in to a Christian church that believes Scripture and studies and teaches Biblical Truth.Jesus addressed demons and cast them out of people.They are real and have one task: whisper lies into peoples spiritual ears.Angels are real and they have many tasks,one of them being:to protect people and tell them truth.The Holy Spirit is our protector,comforter,counselor and friend. 

  Any Counselor will tell you we have a spirit.When you go through counseling you eventually have to come to the understanding that there is a Higher Power then mere human intellegence.I know Him as Father God,Jesus,and Holy Spirit ,or the Trinity. Most people just say , "God". 

   God gave us gifts at birth,at conception when He put our spirit in us.The gifts are without repentence,so even if you don't know Jesus you have them.What I saw with this young woman was what I know without a doubt id heightened discernment and the abitlity to see into as well as hear the "second heaven".We live within the first heaven,the second heaven being where angels and demons reside, and the third heaven being where our Heavenly Father resides.All the medication in the world will not kill a demon,but the blood of Jesus was shed for all,and the name of Jesus is the name above all.Just check out the Gospels in the New Testament and you will see where not just Jesus,but His disciples also took authority over the demons using His name. 

   There are people working in the field of counseling who have seen people delivered and set free from the kind of torment this woman is enduring.I believe she,and anyone like her, can be set free and shown how to use her gift without all the torment and grief it has brought. 

   Even if a person doesn't want to get "all religious" I believe it is only sensible to explore this avenue to seek freedom. 

Isaiah 61:1 "The Spirit of the Lord is upon Me, because the Lord has annointed Me to preach good tidings to the poor; He has sent Me to heal the brokenhearted,to proclaim libertyy to the captives, and the opening of the prison to those who are bound;" 

  There is a ministry that specifically addresses these such illnesses and has had amazing and miraculous success,it is called SOZO.It comes from the word in the Bible for "healed". There is a church in Redding,California that practices and teaches this ministry.It is not a cult or any such thing.It has a legitimate school and is licensed and certified by the state to certify counselors in the drug and alcohol field because it went to the state and proved through documentation that it works.They have taught other churchs organizations this ministry,so it's not like everyone has to travel to Redding.   As for personal testimony,I have been set free from depression,suicidal tendencies,and a whole multitude of dysfunctional behaviors that came about from the family I grew up with.I use these same truths to show others who they are in Gods eyes and His plan for their freedom. If there is anyone who is interested in being truly free, just say so,I'll be checking in.May God richly bless you all.-Mary Ann 

  

 
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