Topic : 12/20 Christmas Miracle

I have 2 sons afflicted with Haemophilia Vlll  severe level.  Both boys we're diagnosed early and have been receiving treatments regularly since around 9 months old. While i never thought of their condition as a disease , because it's a disorder, I have never until i watched the show thought of what it will do to them as they grow. I'm scared. If the life that David has had to live is what my boys have in store, i could wish a million things, but not that.  However, knowing that the treatment options today are so much different than David experienced in his youth, i do have hope for the future.  They will probably never suffer as much as David because of modern technology and Knowledge(IE: the Port-o-cath wasn't available when David was young, but both my boys have them) and the support and training that my local Haemophilia program offers me, i have the tools to be a good caretaker, and in later years to help them learn to take care of themselves.  However none of that would be possible without the dedication and loyalty of some of the nurses I have dealt with and learned from.  All my thanks to Nurses for making my life easier.   Merry Christmas David, to you and your family.  I sincerely wish the best for you family, because in a way, it's my family too. 

                                                                                               Drennen 

howdy hi, there, buckaroo -- 

yes, you are the person who applied the verb "to suck."  admirable!  you weren't responding to me, in particular.  i wasn't responding to you, in particular.  i was supportive of the lone cry in the wilderness -- one of the few who dared to say something that went against the prevailing sentiment. 

i believe that this is still allowed, no? 

why are you so upset that you need to deconstruct my screen name?  goodness gracious great balls a'fire!  well, then, at least finish the job?  the "de-rien" is only workable as subordinate to "prof"-- and that's the story of my life. 

cherios and fruitloops! 

profderien 

This guy missed a heck of an opportunity to educate the public about the tragic history within the hemophilia community. Thousands of people with hemophilia died because blood supply safety was not adequately monitored during the HIV/AIDS crisis. There continue to be concerns and legal battles regarding the negligence of pharmaceutical companies who knew blood products were contaminated yet did nothing. 

Still thousands of individuals with hemophilia lead normal, healthy, productive lives despite mounting medical bills and pain. There are married couples within the hemophilia community who have had to divorce in order for the person with a bleeding disorder to qualify for government sponsored health care. This man's struggling, while admirable, is nothing compared to the thousands of people with hemophilia who have lost their lives. 

I'm personally repulsed by the notion that this man's experience was help up as a "miracle". What would be a miracle would be patients living with chronic medical condition standing up at every opportunity and highlighting the problems and horrific conditions of our nation's health care system. TV viewers can feel all warm and fuzzy about the triumph over tragedy but unless and until the health care system is restructured, there's nothing warm and fuzzy about living with a chronic medical condition. 

David and his family are such an inspiration!  Thank you Dr. Phil for this show.  All of the stories were wonderful and amazing.  And thank you for showing these families that people do care about them. 

I can't wait to see David's website.  I'd like to buy some coffee!  :) 

I have a daughter who is 2 years old and has Cystic Fibrosis.  I did not see the show and I am sad that I missed it.  I have  also have two boys her are both pretty healthy.  One has to have allergy shots once a week but besides that, they are both great.  It was very shocking news when the told us at 5 weeks old our daughter has Cystic Fibrosis.  It takes a great deal of time with daily meds, using the vest to keep her lungs clear.  Then there are the 3 1/2 trips to the doctors.   

I am so happy for Gwen and David, I hope all your dreams come true.  Best of luck to you. 

I have an 8 year old daughter that was diagnosed with Cystic Fibrosis in 2001.  What they showed was all true of the daily tasks these wonderful people go through on a day to day basis, and it only touched part of what these people have to endure.  I found it very rude and inconsiderate for someone to come onto these message boards and post the things they did.  When you sit and watch your child go through those kind of treatments on a daily basis and take more medicine daily than an average senior citizen, then and only then shall you make your judgements.  People with CF and with other diseases do not sit around and "wait" for miracles to happen.  We go out and raise money to fund research to find better treatments, to find a cure!  That is why CF has gone from being an absolutely childhood fatal illness.  Not even 10 years ago the median life expectancy for someone with CF was in their teens, now there are many living into their 30's and beyond.  The saddest part is that it is still fatal.  Until a cure is found those who have it will still continue to die from it.  We have alot of hope for the future, but we still all have to keep working to that common goal....to find a cure.  To those of you who so selfishly posted your rude remarks onto this message board, I will pray for you and your families that you never have to watch your children suffer like these do.  May GOD have mercy on you.  To Dr. Phil and Robin,  I would like to say thank you.   Thank you for making CF and other illnesses be known.  Thank you for at least putting a smile on one of these peoples faces.  Thank you for all you do.   

I really enjoyed the show with David and his family too. Do you have any idea of how we will be able to research and find David's web site. I love roasted flavor coffee, and would love to buy from David. Also what school, in what city did you attend?  

I am originally from Louisville, Kentucky, and remember someone like this too. Just wanted to know if I was remembering the right guy.  

Thanks to Dr. Phil and Robin, I have been watching Dr. Phil since he had his Tuesday appearances with Oprah