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Topic : 01/17 Extreme Disorders

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Created on : Friday, January 13, 2006, 02:18:32 pm
Author : DrPhilBoard1

Does your child rage, scream and kick doors? Is his or her behavior the typical brattiness of a spoiled child, or involuntary behavior beyond the child's control? Dr. Phil sheds light on a pair of widely misunderstood extreme neurological disorders. First, he looks at Asperger's syndrome, a high-functioning form of autism which can cause a person to lack control over his or her emotions, including anger. Rich and Karen's 15-year-old son, Alex, was diagnosed with Asperger's at age 6. His sudden fits of rage and erratic behavior have put a strain on his whole family. Should his parents be afraid of Alex, or is there something they can do to bring his behavior under control? Plus, Craig, 37, can't control his physical tics, nor can he keep from constantly uttering obscenities, literally hundreds of times a day. Craig suffers from Tourette syndrome, an affliction that's gotten so bad, he won't go into grocery stores, movie theatres or any public place for fear he'll be kicked out. What will the disorder mean for his plans to start a family? Talk about the show here.

 

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January 17, 2006, 1:18 pm PST

Disagree with ABA

Quote From: elna1234

I haven't seen much talk about ABA or Applied Behavior Analysis. Although it is geared to young children (i.e. early intervention), it does wonders for those who are older.  Managing emotions, recognizing emotions and triggers, handling non-verbal gesutres, conversation and knowing what to do in social situations. 

ABA for older children is much like tutoring, but not only do we tutor these children in academics, we tutor them in social skills.  It's very rewarding when progress is made!  

I also know that medication helps much for older kids.  WIth the combination of a well run ABA program, school support and meds, many many many children with autism (all forms of autism) do fantasitic! 

Elna 

ABA lead therapist 

I have seen ABA used with children with Autism.  I don't agress with it at all.   All the children I have seen it used on hasn't worked.  The children get fustrated with having to repeat over and over again.  It's not fair to the child.  Maybe it works with some but don't agree on it.  
 
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January 17, 2006, 1:18 pm PST

Aspergers

Quote From: l_mancine

I have 2 kids ages 16&13... the 16 year old has aspergers and the 13 year old has Tourettes...Its very hard and demanding rasing 2 kids with special needs... I would love to come talk to Dr.Phil and get some more help as my kids were diagnosed late and I feel that had we known sooner we could have done more to help them in life...Lynne in Michigan
Also in Michigan with a Aspergers 17 year old . When my son was diagnosed very few Teachers had ever heard of Aspergers. It has been a long road. I'm waiting for the MISD to get back to us with help in finding our son employment while he attends a local collage. He has a high IQ but lacks social skills. The MISD is working with him but only after my making dozens of phone calls. These kids will be left behind by the schools unless parents speak up.
 
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January 17, 2006, 1:21 pm PST

could my son have touretts?

My son is soon to be 10, he was diagnosed with ADD 2 years ago, his doctor said he also has impulse disorders. He is on medication but seams to have problems controling his emotions. He screams and gets very mad at his sister. He say's inappropriat things like "I'll cut your arms off", I'll hit you in the head" or "I'll knock you down the stairs". He does things similar to tics but I am not sure they are the same. He hums while he eats or is doing his homework. He is constantly "iching" his face to the point he has sores. He fidgets often and has a very short attention span. Now he is getting in trouble in school. He recently grabbed another boy by his neck. Alex is a very caring child, he is loving and has some very good convictions for a child. It just seams at times he is out of control. It bothers him as much as us. How should I go about hving this diagnosed?
 
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January 17, 2006, 1:21 pm PST

I can relate!

I'm a 17-year-old high school junior, and I also have Asperger's syndrome.  I find it very hard to make friends because of my extreme shyness, and sometimes I can't control my emotions.  I get in trouble a lot because of my bad temper. 

  

When I was in 8th grade, I was in a few special-ed classes, as well as in speech therapy.  Other kids at my school would also call me retarded.  After 8th grade ended, I was taken out of public school because of all the bullying. 

  

I live a very normal life.  Now I'm not in any special-ed classes, and I don't take speech therapy anymore because I felt I was too high-functioning to fit into those traditional programs.  I'm homeschooled, and I'm making very good grades, and I'm taking all-regular classes, just like everyone else.  I think I seem more gifted than disabled because I'm very smart. 

  

That's my story! 

  

Jessica 

  

  

 

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January 17, 2006, 1:21 pm PST

01/17 Extreme Disorders

Quote From: gabesmom

I saw the show with Alex and Asperger's. Where in OHIO can i get some HELP for my teen's AS? I'm pretty sure we live only an hr from Alex, as i heard on a local station where he's from- a local boy on Dr. Phil. So can Karen give me some direction? When watching Alex on Dr. Phil today, several times i just about cried as i saw clips of Alex and it was like seeing my son! My son's anger outbursts were much the same, but when i saw the few seconds of Alex as a toddler on the floor rocking and banging his head... it was my son Gabe! Gabe did it sitting up too, including banging against the crib or wall. But the pediatrician dismissed it! along with all the upsets and crying- all dismissed as normal. Now i know it's the sensory integration problems. At least he'll wear sox now! We've lived for 16 yrs with the autistic symptoms and my futile attempts at getting help, only ot be met with responses like i'm a crazy or worried anxious Mother. (ok, so i'm anxious and depressed... now what about my son's autistic spectrum symptoms!? Ha!) Until last yr when, our highly intelligent 15 yr old Gabe shut down, not functioning. The Zoloft triggered even worse violence, which i had to "fight" to get the med changed to a mood stabilizer. And it worked! Lamictal has helped his emotional mood swings. I had recognized the symptom of a anti-depressant indication Bi-Polar. So he was diagnosed with Mood Disorder NOS, b/c he didn't neatly fit into Bi-polar. Then at OSU Medical Center the p-doc first diagnosed him with PDD-NOS, Pervasive Developmental Disorder- Not Otherwise Specified. That's one of the 5 Dx's in the Autistic Spectrum Disorder. I know Gabe meets the criteria for Asperger's, although he hasn't been formally evaluated; i'm working on that. But finally i just got his P-doc at OSU Medical Center to acknowledge Asperger problems. The Dr explained that AS was really the foundational problem and the mood symtpoms are really a result of the AS. So Gabe has dual diagnosises of PDD and Mood Disorder. Still, our main problem is getting help at School, where they don't see any problem. He's getting mostly A's again, so what's the problem? They don't see the inner turmoil Gabe has, the social problems and all the effort, anxiety and exhaustion that results. Then, because he's not getting treatment to learn social skills, to learn how to process and deal with the emotions, we see the behavior symptoms at home. It's a big mess with the school system b/c he is in private school. We spent all last yr getting the MFE and then IEP. But the private school needs a separate Service Plan. Not to mention they just put Other Health Impaired for his problem needing services. The services he has in his IEP is basically a joke- it's nothing. So we are trying to get it changed to Autism. It's taking forever... He is in 10th grade and is so intelligent he plans to go to college. I feel like time is running out, if he doesn't get the social and living skill problems addressed so he could live better on his own. I wonder, is there any of these treatments for AS available in OH for my son? And how do i pursue them when finances are crashing. Having him in private school IS basically part of his medical treatment plan to keep him functioning better. Where do i put most effort to get him help?
I too, saw my  stepson in Alex. When he was sick as a baby and toddler, he would not allow me to hold and comfort him. He would simply row around on the floor crying. He would throw fits as a toddler and throw himself back hitting his head on whatever was behind him, whether carpet or concrete. His angry outbursts only got worse as he got older, putting holes in doors and walls, tearing up everything in his room, and always with litttle provocation. The doctors I took him to, would just say he's all boy, he'll outgrow it, it's just immaturity etc. By the time he was 13, he was picking up his younger brothers and throwing them across the room  and he tried to hit me in the face with his fist when I told him to do his homework. He was suspended from school numerous times and expelled for putting iodine in his teacher's tea. At the same time he could be the most helpful loving child you could imagine. I finally got a phyciatrist  to take me seriously, but he was diagosed with a seratonin imbalance and put on zoloft. This helped along with counseling, but he still is withdrawn and anti-social. His younger brother was diagonsed with tourettes 10 years ago, and he felt like the was part of his answer. Until this show though, I couldn't quite put a diagonsis on his disorder. I am definitely going to investigate further. It'sjust nice to know other parents are going through the same things.  Thanks
 
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January 17, 2006, 1:21 pm PST

My Son is an Aspie and There is Hope

I love Dr. Phil and generally think that he gives great advice but I am very disappointed in this show. Dr. Phil did not even scratch the surface of how ASD affects a person and their family. My 12 year old son has ASD. He was diagnosed when he was 10. He is probably a pretty "typical" case. He has an IQ in the top 2%, has great difficulty in social situations, has special interest, needs routine, doesn't sleep without medication, can be agressive, has sensory issues and dispite all of this is an awesome kid! 

  

There are so many issues with ASD and so many ways to help the person. Medication is an option and one my family has chosen. However, we also talk at great length with our son so he understands himself and how he percieves the world because we know it is not the experience neuro-typicals have. We have learned what things stress him and lead to a "melt-down" and we work to help him either avoid them or prepare for them. We took our son out of public school 6 months ago because it was like a prisoner of war camp for him. His stress and anxiety have dropped greatly and he can focus on his education at home and do it the way he needs to. We can stop and talk about situations that are difficult for him and help him find the middle ground between his Aspie world and the neuro-typical world. We are helping him learn his limits. 

  

What I want to say is that this is managable. I honestly believe that the "experts" are the children and parents that live with ASD everyday. All Aspie parents need to learn all they can about ASD but more importantly learn to interpret their child's behavior and the source of it. Most people who do not live with your child can't begin to imagine this. For every behavior there is a cause and dealing with the cause helps control the behavior. Parents need to do what their gut tells them is best for their child and don't let outside sources interfere. Physicians, psychologist, teachers, couselors and such are there for reference but the ball is always in the parent's court and parents will know what is best. 

  

Also, remember that none of us are perfect. We will get frustrated and lose our cool once in a while but when it passes, you start over. As long as we do the best we can with what we know, that's all we can do. 

 
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January 17, 2006, 1:23 pm PST

Website mentioned on the show

The website mentioned on the show was WrongPlanet.net According to the home page:

WrongPlanet.net is a web community designed for individuals with Asperger's Syndrome, Autism, ADHD, and other PDDs. We provide a forum, where members can communicate with each other, an article section, where members may read and submit essays or how-to guides about various subjects, and a chatroom for real-time communication with other Aspies. Asperger's Syndrome, a pervasive deveolpment disorder, is a form of autism.
 
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January 17, 2006, 1:23 pm PST

17 year old here

Quote From: joyceymay

On the show, Dr. Phil refers to Asperger's (AS) several times as a "disease".  I can tell you right now, a lot of parents and individuals with Asperger's are going to be writing to object to this characterization.  There are people with Asperger's who are happy with themselves as they are and will take offense to being referred to as diseased or damaged. 

  

I am a mom of a 16 year old, who was diagnosed with AS over 11 years ago, but who is doing quite well today.  We have always referred to him as "differently abled" rather than "disabled."  It was not mentioned on the show that most  Aspies are highly intelligent and many have extraordinary abilities.   

  

I do agree that AS is neurologically, biochemically based.  Some people have gotten help from taking medication.  Many families (including mine), who can and are willing to invest the time and money, have found natural ways (i.e., special diet and nutrition) to deal with the biochemical imbalance.  There are a ton of resources out there for people who opt for this approach. 

  

Like others with Austism Spectrum Disorders, many Aspies also have sensory processing dysfunctions.  Depending on the nature of the sensory processing problems, there are a different forms of therapy to address those problems.  (Vision therapy, sound therapy, sensory integration therapy).   

  

Finally, the biggest challenge that Aspies face is with understanding and functioning appropriately in social interactions.  The most effective way that I've found to remediate deficits in social functioning is Relationship Development Intervention. 

  

So I would say that the most effective way to deal with AS is a multifaceted approach that will vary from individual to individual.  Unfortunately, the only treatment mentioned by Dr. Phil is medication.  He really missed the boat on that one. 

I agree with your post . The last sentence struck me because Dr. Phil did only mention medication and I felt that he could do a few more shows and talk about how to work with these kids without so much Medication, My son's biggest challenge is like you said functioning appropriately in social interactions.
 
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January 17, 2006, 1:25 pm PST

Br

Quote From: dylansdad

 Hi my name is Jason, and on today's show it really caught my attention, in fact could not take my eyes off of the boob tube....lol..  When i was younger i would say about 6 yrs old or maybe 7 i was diagnosed with ADD (Attention Deficet Disorder) and was put on the medication Ritalin, as i started to notice, all the Ritalin did was calm me down, now that i am older at the age of 25 i started wandering whether or not i have Aspergers, not totally diagnosed with it, i need to find out some information about it, now some of the problems with this is Lying which i don't understand why i do it at all but i want to know, and not being able to have friends or anything of the sort Please give me some kind of Information
My Brother has aspergers syndrome.  If you need help you could find out if they have a place called Judvine around your area they could help get you the right info.  There is so many sites on the internet these days to help.  If you have any questions don't be afraid to ask.  I have seen my brother grow up to be a very wonderful person who is in college and has friends. 
 
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January 17, 2006, 1:29 pm PST

FULLY AGREE!

Quote From: joyceymay

On the show, Dr. Phil refers to Asperger's (AS) several times as a "disease".  I can tell you right now, a lot of parents and individuals with Asperger's are going to be writing to object to this characterization.  There are people with Asperger's who are happy with themselves as they are and will take offense to being referred to as diseased or damaged. 

  

I am a mom of a 16 year old, who was diagnosed with AS over 11 years ago, but who is doing quite well today.  We have always referred to him as "differently abled" rather than "disabled."  It was not mentioned on the show that most  Aspies are highly intelligent and many have extraordinary abilities.   

  

I do agree that AS is neurologically, biochemically based.  Some people have gotten help from taking medication.  Many families (including mine), who can and are willing to invest the time and money, have found natural ways (i.e., special diet and nutrition) to deal with the biochemical imbalance.  There are a ton of resources out there for people who opt for this approach. 

  

Like others with Austism Spectrum Disorders, many Aspies also have sensory processing dysfunctions.  Depending on the nature of the sensory processing problems, there are a different forms of therapy to address those problems.  (Vision therapy, sound therapy, sensory integration therapy).   

  

Finally, the biggest challenge that Aspies face is with understanding and functioning appropriately in social interactions.  The most effective way that I've found to remediate deficits in social functioning is Relationship Development Intervention. 

  

So I would say that the most effective way to deal with AS is a multifaceted approach that will vary from individual to individual.  Unfortunately, the only treatment mentioned by Dr. Phil is medication.  He really missed the boat on that one. 

 I am a 27 year old recently diagnosed with Aspergers.

The thing to realize about AS: 1 in 150 people have it, and most don't even know it. That, and it is a syndrome, not a disease.

I am happy for having Aspergers. As I first read Grandin's book "Living in Pictures" and it opened my mind to Autism and my AS, I never thought of myself as different. In fact, a lot of people around me don't even know of my problems in social situations. I have learned to compensate for others reactions as I learned about my AS and I now see it as a benefit.

I have a feature in my brain that no one else can comprehend. I think in ways others can't. I am different. I am not worse, I am not better, only different. I am such a strong visual thinker it is hard even to write this, but feel if I don;t we will get lost through the cracks.

Dr. Phil, the quoted person above is right. You wrongly accused us with AS as having a disease. Its not a disease, its the way we see the world; it's different to the "normal" person's. I hope you take a step to correct this in a future show.
 
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