Topic : 01/17 Extreme Disorders

I didn't  watch today's show but my mother told me about it.  I immediately went to the website to register my comments about the benefits of a GF/CF diet.  You beat me to it!  My son is diagnosed as High-Functioning Autistic.  We've had him on the GF/CF diet for nearly two years and I often wonder why parents don't give it a try!  I can't believe this diet wasn't even mentioned on the show as something that 'might' help that poor child and his family. The difference in my son's behavior is phenomenal!!!!  In fact, it's more noticable when he 'cheats' - for instance, my husband let him have pizza last friday and today he had his worst day ever at school.  I believe parents are doing an extreme disservice by not putting their ASD children on this diet.  Aside from today's bad behavior, nobody can tell my son isn't 'normal'.  He's in full-day Kindergarten with no Special Ed.  A joy.

i m a 36yrs male living in kansas. i was a healthy man until aug 2004. i was told that i might have had a stroke. but there was no clear evidence. i am a veteran of the gulf war in 90-91. some say that we was exposed to sarin gas. who knows . i have had many many test. short after the first "
stroke" i had another what seemsd to be a another one bout 15-20 days later. i lost but all of my memory. i have since not to be able to work and lost a realationship, which was not good anyways, feelings have been hurt becuz i not member many people freinds or even family. i have been told i have a somaticforic disorder. which i am told that i have a physical illness but the docs can't figure it out why or how . i am on medication  for a seizure disorder now which one doc said thats what i have and the other said i didn't. i am on meds for the seizure but it seems not to really help out that much. my theshold has raised alot . i was having 40 to 50 siezures a day , but now i have 2 to 4 a day and they are must more intesne. i have very but mingranes that nothing seems to stop. the docs are at a spot that they are lost............ i wish for a new brain ..................brad

My heart goes out to all those with this challenge, be they a child or an adult. I have found something that I truly believe will help them relieve or even eliminate the symptoms, and, I have proof that it works. 

  

I don't want to go into all of the details to explain how it works here, but if anyone is interested, you are more than welcome to email me and I will reply. The technology  has been proven scientifically, medical doctors are backing it, and, seeing miraculous results with it. I will provide all the information and proof you want if you're interested. I'll even provide all of the information to whomever approves these postings to prove this is for real. 

  

God bless you, 

Kaye 

  

  

i enjoyed the show today on the tourette syndrome.....i have had symptoms of this since i was in my preteens.....my mother died when i was 9 and my dad did not have the money to have me diagnosed and just thought it was growing pains......i have been chronically ill most of my life....it seems i have been dr chasing all my life......trying to talk to them and make them understand is so frustrating i feel like bouncing my head off the wall.....i have been diagnosed with depression, arthritis, pinched nerves, fibromyalgia, anxiety, menopause, insulin resistance, and on and on......i cannot tell you how much i have spent on doctors and meds.......i am 54, tried to lead a normal life even when my family thinks i am a hypocondriac.......i have a wonderful husband and two educated, independent great kids........but back to the dr. chasing........you go to one....they write a perscription.....next.....a prescription and on and on......i feel like i need to go to drug rehab because i can't even travel or function without the daily meds......i have tried diet, vitamins, excercise ...BUT.....i know the tics i have when i am stressed is TS.......but to have a dr. take it seriously and try to diagnose and treat it is like pulling teeth.......i am exhausted from sitting in dr's offices, having tests run, taking meds, and hiding this frustrating, debilitating syndrome.....i wish it was so easy for everyone to have attention from dr. phil's professionals, but i do not have the finances or means to do so........i hope one day they will come up with an implant that can be implanted like so many other diseases are being treated with, to help people like me with this brain disorder......i hope the best for these people on the show today.....God speed......my symptoms are less when i am focused on something that i like to do.......but i am so tired from the meds and the waking up at night from the jerks and restless legs, that it is hard for me to want to focus on anything........i feel i am just stuck in a sink hole going nowhere but down........ 

  

good luck to the people that are seeking help.......i am like the gentleman on the show today.....i would be anyones guiney pig if i knew it would help me to have a normal like again....if i ever had one to begin with......... 

My prayers go to you.  My son is 19 and hasn't been officially dxed but has been suggested.  We have seen a therapist and a psychiatrist since he was 7.  That video could've been our house with Alex saying the same things my son does and us saying the same things you do.  We live in fear of our lives too-all the bedroom doors (except his) have keyed locks.  Today he has his first job and we are working to get him in an assissted living situation so he won't live with us.  We went through the same thing as a couple too but worked through years ago-it's an effort to be a team sometimes though.  We figured out that Michael does a divide and conquer thing.  I am going to explore a neurologist although one more dx won't make a huge difference except that it may qualify him for services on the MR side and not just the mental ill side in our county.  Good luck and thanks for putting some faces to this.

Dr.Phil, I have a 14 yr. old who was diagnosed with Tourette Syndrome almost 8 yrs. ago. Medication after medication he has gone through for so long,and we are,as he is ,tired of taking these meds. that seem to be going nowhere in controlling his Tourettes nor his tics. Several yrs. ago he started having BAD anger outbursts,so bad that noone knew how to handle it nor did his Dr. know what to do about it except try to change meds. We didn't want him put on anything else that he had already been on,with no help,and that the Dr.'s just did'nt want to REALLY find out what the diagnosis for this was. I had to find out the hard way, on my own , how to handle this. The only way I could was to make others leave the house or the rooms and let me try to settle him down. I found out that if others were to talk to him or look at him the wrong way those outbursts would get worse and would only be adding fuel to the fire,so I sat there and waited till he would calm down,no matter how long, and then he and I could talk. He will lean on me, cry,and apologize for what had happened. I would look at him straight in the eyes and tell him that this is not his fault,that he had no idea what was going on but that we would find out why! Well, Dr.Phil, I think you have pinpointed exactually what we have been hoping for!Kids at his school,others in public places  just won't seem to recognize this as being a problem that they could understand if they would try to understand why it is happening. I feel my son has given me a challenge to try and take on to find out more about,but I was hitting a dead end until now. I know where my son is coming from when kids and others tease or mentally or verbally or physically abuse him cause I myself have Epilepsy (grand-mal,more than 35 yrs.), and there wasen't a day that went by that I wasen't teased or somehow abused by others and my only angel and guardian was my mom. I learned from her how to handle these challenges and to take them on and know that although  my son may have a medical disorder, he is NOT RETARDED,nor is he STUPID. He is just as NORMAL as everyone else on this planet is.He is my son and my life and I will continue to protect him for as long as I live and I will keep looking for answers as long as I can. You,Dr.Phil, have really encouraged me to go on and try to find the answers to his anger outbursts,now I will talk to his therapist tomorrow and give him the copy of your show and begin to tell him that I want to find this out now.These outbursts of my sons make me hurt inside,also. When these happen,I hurt cause I can't stand seeing this happen to him,but I know there has to be a reason for him to have it. He loves to build things (out of wood) and loves being with others who would be his friend ,but those that pretend to be his friend are usually the ones who cause the trouble for him and get him in trouble and he becomes very depressed and gets very upset about it. Video games don't help matters especially when you have a husband,older son,brother-in-law,and my youngest son hooked on them. As of this moment, he is going through one of those anger outbursts,and is quite mad because he knows I'm writing this about him and those outbursts and is trying to get me to stop. Please give me some advice on exactly where to start besides his therapist and his neurologist .Please Help. Thank-You, Mrs. Leatrice A. Peters    

she said that she thinks he likes having it to get attention.  What have they done to research this disability.  How appalling that was.  There ya go he can't control it.  Glad he is old enough and aticulate what it is like and how it feels. He doesn't understand.  Peers are scared around him.

I AM THE MOTHER OF A 13 YR OLD WHO HAS HAD EMOTIONAL PROBLEMS AND RAGES SINCE HE WAS 7 OR SO. I HAVE HAD HIM N THERAPY SINCE HE WAS 7 FOR BEHAVIOR ISSUES AND HIS INABILITY TO ACCEPT NO. IN 4TH GRADE A TEACHER TOLD ME THAT HE WAS EXCEPTIONALLY BRIGHT BUT HAD TROUBLE FOCUSING IN CLASS AND WOULD OFTEN STAND UP AND START SINGING TELL A JOKE OR OTHER DISRUPTIVE BEHAVIORS. SHE SAID SHE HAD GOTTEN TO THE POINT THAT SHE JUST LET HIM GET IT OUT SO HE WOULD SETTLE DOWN AND GO BACK TO LEARNING BECAUSE TO TRY AND MAKE HIM ACT "NORMAL" WAS HARDER THEN JUST LETTING IT GO. HE HAS BEEN DIAGNOSED AS ADD, ADHD, ODD, MOOD DISORDER, POSSIBLY BIPOLAR AND BEEN ON  MEDICINES. THEY HAVE TRIED ADDERAL, REMRON, TENNEX , ABILIFY, AND STRATERRA. THEONLY MEDICINE THAT HELPED REMOTELY WAS ABILIFY BUT EVEN THAT QUIT HELPING EVENTUALLY. HE HAS STOMACH TROUBLES AND SLEEP PROBLEMS WITH DIARRHEA AND NAUSEA. WHEN HE IS TOLD NO LIFE GFOES UPSIDE DOWN. WE HAVE PUT HIM IN HIS ROOM ONLY TO HAVE HIM THROW THINGS AT WALLS AND DOORS , AND WHEN THAT DID NOT WORK HE WOULD LAY ON FLOOR AND HOLLER AT US FROM UNDER THE DOOR. IT HAS PUT THIS FAMILY UNDER TREMENDOUS STARIN BECAUSE WE ARE AT OUR WITS END AND HE HAS 2 OLDER BROTHERS THAT ADORE HIM YET CANNOT TOLERATE BEING AROUND HIM AT SAME TIME. HE CONSTANTLY HAS TO PICK OR PUCH OR TOUCH OR HUG ON THEM MAKING THEM HOLLER FOR HIM TO LEAVE THEM ALONE. HE REALLY HAS NO FRIENDS TO SPEAK OF AND ALL HE WANTS TO TALK ABOUT IS SKATEBOARDING AND TONY HAWK AND WRESTLING. HE IS A TALENTED MUSICIAN PLAYS SAXOPHONE AND WON A DISTINGUSHED MEDAL HIS FIRST YEAR OF PLAYING IN A STATE COMETETION. HE ALSO HAS A BEAUTIFUL VOICE WITH AN AWESOME RANGE. HE IS TORMENTED IN SCHOOL CALLED "FAG" AND WOOS AND OTHER NOT NICE THINGS. THE TEACHERS SAY HE IS POLITE WITH YES SIR AND YES MAAM AND PLEASE AND THANK YOU HOWEVER HE WONT STAY IN CLASSES. ALL OF THEM SAY HE IS CAPABLE OF DOING THE WORK HE JUST WONT. I HAVE NO CLUE WHERE TO TURN NOW. ANY HELP WOULD BE APPRECIATED. HE HAS ALSO BEEN IN TROUBLE WITH LAW AND WAS IN A JUVENILE FACILITY FOR 30 DAYS WHERE HE WAS DEPRESSED TO THE POINT OF SUICIDE YET ADORES BY THE STAFF AND KIDS FOR HIS POLITENESS AND MANNERS. HOW DO WE KEEP THAT SIDE AND CALM THE RAGE AND FRUSTRATION OF NEVER FITTING IN ANYWHERE???

There is help for your son!  Please check out any sites you can find on the Gluten Free/Casein Free diet.  specifically, look for Special Diets For Special Kids I & II by Lisa Lewis.  You really will see a difference in your son!  Don't attempt to cut out foods without blood tests and supplementation.  here in Pennsylvania, there is a wonderful doctor named Scott Faber.  He's the Autism Guru!  Phone number is 412-420-2561.  There is a waiting list but PLEASE get Joshua on it.  YOU WILL NOT REGRET IT!

I had a Dr tell me the original diagnoses of my 6 year old was wrong because of his IQ and speech yet 2 others gave me the PDD-NOS diagnosies.  I have done so much independant research into ASD I know that my son fits the criteria.  The school sent me to that Dr but they felt that that Dr was wrong as well that he fit in the Autism Spectrum.  A parent knows their child better than anyone in my opinion and the Dr's need to at least hear what we say and not just dicredit us.  other opionions never hurt and you may feel better too.