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Topic : 01/17 Extreme Disorders

Number of Replies: 1019
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Created on : Friday, January 13, 2006, 02:18:32 pm
Author : DrPhilBoard1

Does your child rage, scream and kick doors? Is his or her behavior the typical brattiness of a spoiled child, or involuntary behavior beyond the child's control? Dr. Phil sheds light on a pair of widely misunderstood extreme neurological disorders. First, he looks at Asperger's syndrome, a high-functioning form of autism which can cause a person to lack control over his or her emotions, including anger. Rich and Karen's 15-year-old son, Alex, was diagnosed with Asperger's at age 6. His sudden fits of rage and erratic behavior have put a strain on his whole family. Should his parents be afraid of Alex, or is there something they can do to bring his behavior under control? Plus, Craig, 37, can't control his physical tics, nor can he keep from constantly uttering obscenities, literally hundreds of times a day. Craig suffers from Tourette syndrome, an affliction that's gotten so bad, he won't go into grocery stores, movie theatres or any public place for fear he'll be kicked out. What will the disorder mean for his plans to start a family? Talk about the show here.

 

Find out what happened on the show.

 

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January 17, 2006, 3:39 pm PST

Son with Asperger's Syndrome

Hello, I have a 5 yr old son that was diagnosed with Asperger's Syndrome at the age of 3. He is currently in a special education program through the school but everyone is at a loss of what to do with him. He is on three different medications, which include, Risperdal, Tenex and Adderall but he is still so aggressive and defiant. I am working with a behavioral specialist to try and change this behavior but that hasn't officially started yet. Nobody knows what to do with his behavior. When I seen Alex from the show, he looks like an older version of my son during a meltdown. It's so scary because my child gets extremely mean during a rage. Luis' current nuerologist is also at a loss. We have tried different medications that just aren't working. I have mentioned a brain scan but nobody will listen and when I heard about this brain imaging, that is something I will bring up to the Doctor. Anyway, this show really hits home for me and I sure hope a lot of people are watching because this diagnoses is so misunderstood.  

  

Sincerely, 

  

Joni Field 

 
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January 17, 2006, 3:40 pm PST

Thanks for being on the show

I wanted to thank Craig and Amy (especially Craig) for being on the Dr. Phil show I do not have Tret Syndrome but I have a close friend who does she does not swear but she has other symptoms of Trets. I am glad you were willing to come and make others aware of what Tret is more.  It made me a little sad that people are not more understanding that you have this  problem Also I thought it was sad that you can't go places because you are afraid of people not being understanding and being very rude to you. That doesn't seem very fair at all. . I am glad that he came on  also that people can understand Tret Syndrome better because shows like What About Bob make Tret more of a joke kind of a thing which would make sense that people wouldn't understand Tret's after watching movies or on tv like that they think that people just make up having Tret's kind of oh it is just in your mind kind of a thing or just have a problem with swearing so they make up ohh it is just because I have Tret's kind of a thing you know. I am sure if I was around someone that started swearing or acting like that it would probably make me nervous as well and probably scared of them. But I hope that when I found out that they were that way because they had Tret's syndrome that even though I really didn't have knowledge about it or anything that I would at least be understanding and not make fun of them and be rude because of it. Anyway thanks again!
 
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January 17, 2006, 3:41 pm PST

every one is different

I knew my son was different, I just didn't know what was wrong.  I talked to doctors and they seemed to put it down as an over reacting first time mother.  My own mother came to me a month after my son's third birthday.  She felt he may have an ASD (Autistic Spectrum Disorder).  I initially refused to consider the idea and I began to do intensive behavior modification training as well as intensive learning with him.  I also contacted my son's doctor and told him of my mother's statement.  He, too, thought my mother was wrong.   

  

But I couldn't get the idea out of my head and I began researching.  It could be possible.  So I called for a pysch eval. 

  

I also changed careers.  I got a job working in behavior therapy with children on the autistic spectrum.   

  

After a month on the job, my son was diagnosed with PDD-NOS.  Four months on the job, my husband and I split up, leaving me a single mother. 

  

I've worked with many children and teens on the spectrum, some were diagnosed with classic autism, some with aspergers and others were PDD-NOS. 

  

No two children were alike.  Children with ASD are not their disorder.  They are children with a disorder. They will all act differently.   

  

Dr. Phil showed Alex's story to give us a slice of a life.  He was not generalizing the disorder. 

  

It is my hope that seeing this one story will make others think and maybe research something they do not understand. 

  

 My son is now 6.  I have often been ridiculed in public for my child's behavior.  I have been told that I should never have had a child if I can not control him.  I have been told I should 'just give him what he wants when he tantrums, I have been called horrible names.   I refuse to let that deter me.  I still take my son out.  It is the only way he will learn.  My son has been kicked out of child cares, he has been stared at in stores and made fun of in Sunday School.   

  

I trudge on.   

  

While Dr. Phil may have attempted to educate some people in this world, I do not think much will change.  This world will not change for my son.  He needs to learn to fit into this world.  So far, we are doing a good job.  He started kindergarten this year.  He struggles, but he is learning.  We both are. 

  

 
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January 17, 2006, 3:42 pm PST

Show brought awareness

I am grateful to the DR. PHIL show for bringing awareness to the nation about Autism and Asperger's in particular. However; the show fell short of showing the big picture of Asperger's. That being severe deficits in social/emotional issues across the board. Asperger's children/adults are typically very adept academically and posess a great awareness about thier own disorder however; still cannot maintain long term friendships, relationships, etc. This is NOT 100% of the time but in general. Additionally, most people within the autistic spectrum are gentle, sensitive individuals by nature... it was disturbing to see the yelling on the house cams , this does nothing more than escalate the situation. Even raising your voice an octive can be perceived as yelling ~ I know this because my  son  who has Asperger's has explained it to me.   

You will never please all your viewers no matter what....so I do appreciate the efforts made to bring attention to Asperger's and related disorders. 

Cathy W. 

 
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January 17, 2006, 3:42 pm PST

karen and rich

my name is marissa, i have a high function autistic son who is 17, from the age of 11-16 was the worse time of my life his behavior was real bad, so bad we slept in shifts he always out weighed me and is taller than me and everyday he would try to beat me wether with his fist or heavy objects, he would threaten to kill me and everyone in the house, police were called many times they wouldnt help due to his autism, numerous hospitalizations, this went on for years due to him i lost jobs housing friends i was litterally a prisoner in my own home a prisioner to autism. my daughter was ignored by me i had to allow her to move in with my parents for her safety,no one would help me, agencies wouldn't take him he was too violent. one day me and my daughter were putting beads to gether , my son didn't like it he is obsessed with me i couldn't go out any where without him and taking him out in public was impossible. he wanted to go out i said why don't you just wait for 30 min and we will go, he went into the lock box in the kitchen and said to me with a knife in his hand he said ***** you take me out now and he charged at me and my daughter with the knife, well being 16 and 240 lbs and 5"11 i had no option he was to big for me to restrain, i had to defend myself, I hit him and pushed him down and grabbed the knife, he didn't get hurt, i then called the police, they did nothing but called dhs, they wouldn't take him cause he was too violent and they said i had to defend my self . we finally received some help by youth villages in home therapy, and of course he has been on meds since he was 6, but after that day he started to get better, he is a behavior problem but he hasn't hit any of us in a year, it could of been puberty. I thank God he is somewhat better and I believe your son might get better behavioral wise, I know what it is like we are still putting our lives back together, hopefully when he turns 18 he will be able to move to a supported living apartment, but there is hope don't give up, my prayers are with you.
 
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January 17, 2006, 3:42 pm PST

01/17 Extreme Disorders

Quote From: lisag3367

I saw the broadcast for tomorrows show for Dr. Phil and I saw my son.  That is exactly how he behaves at times.  I haven't seen the show yet it airs tomorrow.   My son was reading 11th grade level in 4th grade, we had a wonderful support system at the elementary school.  He has ADD.   He is now in 8th grade and he is failing 3 classes.  We have no support system with this junior high.  He can be very explosive at home but the Adderal he takes for school  subdues the urge to hit and retaliate.  The "brattiness" comes out though.  Because of his "disrespectful behavior" the teachers do not want him around and will send him to  the office.  And because of so many office referrals he is now suspended for 3 days at home and 7 days at an off campus sight.   

I remember bringing my son home from the hospital as a new born. He would jerk his head back and arch his back because the milk was not coming out fast enough when I would bottle feed him.   He was kicked out of 3 day cares before kindergarten.  

  

This has been going on for 13 years!!!!! 

  

How did you go about find out about this disorder?   .  As a mother I know there is something more going on here... But I don't know where to turn.  

my son is 18 now.   i feel for everything you wrote, the middle school was our nightmare. we never knew what trigger buttons would push my son back then.   but distracitons, loud noise, rude children, teachers who thought he was a brat or needed discipline led to a decline in my sons self esteem, that im not sure i can help him to overcome. so fight for your son.  my son was misdiagnosed until 17 with adhd and treated like the 1/3 of other boys in the school, no respect. if i could go back, i would fight more for alternative optionsfor schooling from your own school. they have to give these for children with disabilties. be persistent. remind you child how smart he is and ask him where he has the problems with learning, hearing it? writing it down. understanding?  have him tested  for auditory  and what ever else his psch may suggest.  but keep pushing. i'm still fighting for, against and sometime with my son on a daily basis.  but a year ago for mothers day my son gave me  a card that read...thanks for not giving up on me when i did.  remember that. because no matter how he may not seem to aknowledge what you do.   he knows and it will help.  good luck and god bless your family
 
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January 17, 2006, 3:43 pm PST

Too late for my son

As I watched this show, I realised my son had aspergers. I use the past tense because my Gilles drowned when he was 16 years old. I spent years trying to find out what was wrong with my son. No one could give me any answers but after visiting the Asperger website, I realise my Gilles fit the criteria. Gilles was small and often bullied. He knew he was different from others and he didn't understand so many things. He raged often. He grew he became more depressed. As a teenager, he began using alcohol and pot. Four months before his 17th birthday my son drowned in less than 12 inches of water. He was intoxicated and there remains the possiblity that he was murdered. NOW I realise my Gilles was living with Aspergers and my heart goes out the parents on the show. I so understand the torment they endure. I only wish my son were still here, if he were here - there would be hope - but it is too late for him!
 
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January 17, 2006, 3:43 pm PST

Asperger's Wonderful children

 Our beautiful grandchild started out as a "victim" of aspergers and  now ( at 7) has become a bright and beautiful  ( and very energetic ) little girl !  We have had the patience to continusly repeat correct behavior patterns.  We do not use drugs. She shows a leaning to OCD so we have played to those patterns.  I am teaching her to cook and her favorite TV show is EMERIL. As grandparents we realize that we won't be here forever to guide her thru life so we are giving her as many skills as possible.  We make sure she attends a regular public school and the only concessions we've agreed to are a tutor to keep her on pace with the rest of the class  and she needs to take her required tests and exams in a "quiet" room. She reads to us and we read to her nightly and she is ahead of her class in any of the verbal/reading subjects.  She does talk from sun up to sun up !! weather they like it or not hug them and enjoy them !!
 
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January 17, 2006, 3:43 pm PST

cf/gf diet

Quote From: mussgnug

What is the GF/cF diet. Where do I find it and read about it.Could you explain if this was helpful and for whom. 

Thanks  Gina 

For more info on the diet start at the web site www.autismndi.com.  Read Karyn Seroussi's book.  Also see a DAN! doctor or the Pfeiffer Treatment Center - they will first recommend the diet and then move onto the biomedical imbalances that can be corrected naturally.  The Tomatis method of auditory integration is also fantastic.  All of this can turn a child around, hundreds have lost their autistic symptoms and I have seen it with my own eyes.  You will believe it when you see it too!!! 

 
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January 17, 2006, 3:44 pm PST

aspergers

I watched the videos of the interactions of this boy and his family and I don't get it.   As a registered nurse, a former special ed teacher (jr. high age ADD kids), and a mother of 2 grown children, I don't see anything terribly unusual in this boy's behavior.  In every interaction, his parents were angry, blaming, and unsupportive.   The boy was acting out what appeared like normal frustrations at being treated that way and feeling so rejected by his parents.  Most teenagers would yell, swear, kick stuff and slam doors when they are treated that way. There was not one scene showing ANY understanding, kindness, or honest support that all children and teen-agers need so desperately.  And this teen-ager was obviously trying to understand, asking for help and support, reaching out, trying to look at his parent's side of it, and they just rebuffed him and were hostile towards him at every turn. I can imagine the hell they put that child thru when he was a normal hyperactive, "out-of-control" four or five-year-old boy, which is just a description of a normal 5-year old boy.  (I have had several pediatricians tell me that most parents bring in their 5-year-old boys at some point to find out if they are hyperactive, or somehow lacking self-control.  They just need to be reassured that this is actually normal behavior are this age.)  Everything presented on the show portrayed these parents as being particularly out of touch with how to deal with anyone's behavior; their own, each other's, and certainly their child's. I was dissappointed, Dr. Phil, that you didn't give them the wake up call they really, really needed.  Or was there more to the story than came across in the show?
 
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