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Topic : 01/17 Extreme Disorders

Number of Replies: 1019
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Created on : Friday, January 13, 2006, 02:18:32 pm
Author : DrPhilBoard1

Does your child rage, scream and kick doors? Is his or her behavior the typical brattiness of a spoiled child, or involuntary behavior beyond the child's control? Dr. Phil sheds light on a pair of widely misunderstood extreme neurological disorders. First, he looks at Asperger's syndrome, a high-functioning form of autism which can cause a person to lack control over his or her emotions, including anger. Rich and Karen's 15-year-old son, Alex, was diagnosed with Asperger's at age 6. His sudden fits of rage and erratic behavior have put a strain on his whole family. Should his parents be afraid of Alex, or is there something they can do to bring his behavior under control? Plus, Craig, 37, can't control his physical tics, nor can he keep from constantly uttering obscenities, literally hundreds of times a day. Craig suffers from Tourette syndrome, an affliction that's gotten so bad, he won't go into grocery stores, movie theatres or any public place for fear he'll be kicked out. What will the disorder mean for his plans to start a family? Talk about the show here.

 

Find out what happened on the show.

 

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January 17, 2006, 4:00 pm PST

misunderstood diagnosis

 Hi, i just wanted to jump into the TV. I felt bad for the lady  and man b/c their was was deteriating b/c of thier son.  I have been having almost the same problems with my son and it is very very frustating not getting the help that he needs. I feel the dr's have misdiagnosed him since he was 6 years old. I took him to Hershey Medical Center in Hershey, PA. they said he was so complicated they didn't know how to diagnose him. They said he had opppositional defiance, ADHD, and Bi-Polar. Throughout the years and going to several doctors, they all say the same thing. I feel they have misdiagnosed him and that he actually has Aspergers. I feel they are diagnosing him that way b/c they think he will turn out to be like his birth mother, which has schizophrenia. While she was pregnant with him she abused illegal,  legal drugs and alcohol, besides smoking cigarettes during her pregnancy. 
I was interested in learning more about brain matters, Inc. Can u give me info. on it. I don't health insurance on him except a medical card. Our regular insurance company would  not insure him b/c of his diagnosis. Does Dr. Gregory Hipskind have an address or e-mail where I could get in touch with him?
Thank-you from a very frustrated mother that wants answers that she can't get from the area she lives in. Doctors just want to medicate and it's NOT WORKING. Looking for an alternative and what's really wrong with my son. Bonnie
 
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January 17, 2006, 4:02 pm PST

videotape your child

Quote From: mtullos1

I have a beautiful little girl who is 8.  I have had her to a Dr. and a Therapist..  The Dr. said to give her an anger pillow.  She never acted up in front of the therapist.  She will get mad and hit herself, bang her head into a wall and throw things.  She used to shove the grocery cart at me.  She says I hate myself and I don't know I am even here.  I am at my witts end.  She can go from nice to nasty in 0 to 60 sec.  She just tries to defie me.  I don't know what to do, or what to exactly say to her Dr. in order for them to take this serious.  She is great in school, but gets picked on and doesn't take it well.  Please if anyone has any advise, I can use it!! 

Thank you 

set a camcorder up for a few hours in your house or somewhere that your child would normally lose control of thier behavior... then you can show to your doctor.. we looked back at videos of birthday parties and things like that after we got our diagnosis.. it's amazing what you see that you didn't remember :-) 

 
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January 17, 2006, 4:04 pm PST

tourette's

I am so glad that Craig was on the show.  As a former teacher of jr. high age special ed kids, I have had 2 different students with Tourette's.  We have a lot of special needs kids at our school, and the other children are very understanding, accepting, and helpful concerning their differences, because we take the time to make sure we all know each other as individuals, and we explain what the actual disability is and how it happens.  However, Torette's is the most difficult for the other children and their families to understand, especially due to the apparent expressions of hostility.  The answer, of course, is more exposure, more information leads to understanding.  I know a lot of people who are extremely grateful that you were willing to tell your story.  I also admire Amy for following her heart and not being overly concerned with "what people think."  Best wishes to both of you.
 
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January 17, 2006, 4:07 pm PST

Aspergers Syndrome

I was very happy to see something about Aspergers Syndrome.. My 9 year old son is going to be tested for Aspergers Syndrome. My son is nothing like the young man on todays show.  Ty is very gentle and non aggressive. An extremely loving boy. There are times though that he will say that he wishes he was normal. In the eyes of the mother you only see a perfect child that you love with all your heart.  Ty is very smart and has an almost photographic memory. He loves the computer and goes wild for Roller Coasters. At least that was the fixation this year. Last year it was 3D movies.  

  

Tys Socialization is behind, He lacks confidence in himself . And believe me he gets support from his father as well as his 2 sisters. Ty also has hand ticks when he gets nervous. He hates being the center of attention. But you know he has made great strides this year. He has joined the bowling team and plays the cello. In fact, he participated in the winter concert. We were all so proud of him.  

So after years of being told nothing is wrong with your son we are hopefully going to get an answer to our many questions.  

If any readers have any helpful suggestions please let me know. 

  

Thanks for listening 

Thanks Dr.Phil for such an informative show 

 
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January 17, 2006, 4:08 pm PST

01/17 Extreme Disorders

Quote From: spitfireca

I am a middle aged woman with Aspergers (or AS as we call it). I have a university degree and am happily married to a wonderful 'normal' man. (Normal meaning he doesn't have AS/Aspergers).  

  

I was not out of control as a child nor am I now. I am more fiesty because I have to be to live in a world where people are not sensitive to me and those like me. I have lost jobs and friends due to thier quick judgements. So I have since throw my hands up in the air and went into something for myself.  

  

I have two kids, the eldest with AS. He is very shy and prone to panic attacks. He is not on meds at this moment but maybe by the end of the month once he sees his dr. We have started on alternative medicine for him and he is holding up. He is not angery or unkind but very senisite to the world around him. Luckily he has two very good boys who have befriended him. He is intellingent and very wise for his age. I fear for his future because of how he is treated and viewed.  

  

AS people have dealt with alot of hostilty by the world> It is not visable nor is it 'contagious'. It just is. Period. We can do amny things with our talents. Now the world should let us shine and stop treating us like we are inferior. Drugs may help us but only we can help ourselves. With the love and support of others , such as friends, and family. 

  

C. Cross 

Good for you for carrying on.  As I've said on other postings, my nephew, now 23 and about to graduate from University has AS.  So does his father, who earned a PhD in Philosophy and is teaching at an Ivy League school.   

  

AS is what makes him charming, unique and and so focused. It is also what made the early years so difficult for his mother (my sister).  My nephew had delayed speech, until at the age of 3 he started speaking in complete sentences with an extensive vocabulary.  He didn't like toys, but prefered to dismantle anything mechancial in the entire house.  We used to have hide anything he could use as a screw driver.  At 18 months he could dismantle a door handle in 5 minutes flat.  He didn't like to be held or coddled.  He never, ever held his own bottle.  He didn't like the texture of foods and my sister had to blend everthing for years!  He had his "topics" that he became an expert in.  He taught himself to programme in C++ as a pre-teen.  He had an odd, monotone inflection in his speech--without expression or excitement (unless it was about his favoritie "topic" du jour).  He disliked sports - all sports.  He prefered to read history books and became more isolated from his peers.  Yet he had this unrelenting ability to pick himself up and get back in the saddle.  Kids were cruel.  He was invited to parties that didn't exist.  He was bullied by little thugs half his size and he would never, ever defend himself.  He has a strong sense of right and wrong and follows "rules" to the letter.  This made him an excellent employee on little part time jobs.  Thankfully, like your son, he made a good friend that saw him through the rough teen years.  We always told him, that he only needed one friend.  Yes, he had panic attacks and episodes that had in trouble with the law - although the police always figured out there was something no tquite right with him and sent him home.  It's a long and bumpy road - no question - but there is hope.   

Good luck to you and your family - your son will be just fine with you to guide him. 

Debbie in Canada 

 
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January 17, 2006, 4:09 pm PST

Brain Matters

 I agree that the show didn't go get to the crux of Asperger's and why it's such a distructive syndrome. 

What I am happy about is to get the name of Brain Matters.  I'm hoping that my husband will schedule a scan and then have treatment tailor-made for him with solid results in his hands.

My husband has Asperger's and won't get diagnosed.  He's hell bent on a road to destroy a beautiful family which includes three lovely girls.  No matter how we try to help him he just gets angry and trys to say my actions are pushing him away.  He is unfortanately, I believe, saddled with ODD too which means whatever I say, he disagrees with, even if it's about the weather. 

He was so much better before.  He worked with his family so he was surrounded by a cushion and talking to a variety of accepting people from all walks of life.  He broke away from the family business and is working for himself and has begun drinking again.  Now he's spiraling down and can't see it.  He has no friends, just works and carrys around anger.  He's left us and won't get help.  No matter what I say, he just won't listen.  He's very distructive.  I don't know what to do.  We've been going to marriage counseling but it isn't helping much.  He's supposed to get diagnosed, go to AA, he says he will but he's not home and he just doesn't go.  He's going to destroy a beautiful home.  It's really, really sad.  :(

At one point he quit drinking and things were much better, but that was a long time ago.  He stopped taking Ritalin too which made communication much easier.  He's drinking so his anti-depression medicine, Lexapro, isn't working either. 

It's awful, so awful.


 
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January 17, 2006, 4:12 pm PST

another mother of autistic children

I want to start out by saying I know it can be very difficult to have a special needs child I am the mother of 2 boys with high functioning autism and a daughter with cerebral palsy I know what has helped my teenage boys a lot is routine and visual schedules I would also recommend that if you have not already done so to get an eval. done for sensory processing they can be very helpful. I have many other ideas and tricks that have worked over the years especially for school if you would like to keep in touch just let me know. Good luck to you and your family and remember you are your child's best advocate so coming on the show was a huge step for all of you.
 
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January 17, 2006, 4:13 pm PST

Paraprofessional

Quote From: debbie_m

I absolutely agree.  I've already posted my little note about my nephew Billy and I can assure he would never, ever have responded to screaming rages.    True AS people are normally very high functioning, which is why the diagnosis is so hard to make.   

  

Dr. Phil needed to target young families to help them identify some behaviours that might be characterized as possible Asperger's.  Here's a snap shot below from: http://nd.essortment.com/whatisasperger_rhcv.htm 

  

GILLBERG’S CRITERIA FOR ASPERGER’S SYNDROME  

  

1. Severe impairment in reciprocal social interaction  

(at least two of the following)  

  

(a) inability to interact with peers  

(b) lack of desire to interact with peers  

(c) lack of appreciation of social cues  

(d) socially and emotionally inappropriate behavior  

  

2. All-absorbing narrow interest  

(at least one of the following)  

  

(a) exclusion of other activities  

(b) repetitive adherence  

(c) more rote than meaning  

  

3. Imposition of routines and interests  

(at least one of the following)  

  

(a) on self, in aspects of life  

(b) on others  

  

4. Speech and language problems  

(at least three of the following)  

  

(a) delayed development  

(b) superficially perfect expressive language  

(c) formal, pedantic language  

(d) odd prosody, peculiar voice characteristics  

(e) impairment of comprehension including misinterpretations of literal/implied meanings  

  

5. Non-verbal communication problems  

(at least one of the following)  

  

(a) limited use of gestures  

(b) clumsy/gauche body language  

(c) limited facial expression  

(d) inappropriate expression  

(e) peculiar, stiff gaze  

  

6. Motor clumsiness: poor performance on neurodevelopmental examination  

(All six criteria must be met for confirmation of diagnosis.) 

  

Debbie in Canada 

I am a paraprofessional.  I work with several students diagnosed with asperger's syndrome.  All of them are different, and have different problems as a result of their illness.  I am trying to learn more about asperger's syndrome, especially the violent tendencies in some cases.  If there are any good books - please share the title here!!!   I do not think aspergers is the end of the world.  There are many famous people who had/have aspergers.  Many inventors/famous scientists have/had aspergers.  Aspergers often is paired with a very high IQ - these kids are talented and have great personalities - when we can communicate with them and reach them.  Put them in a positive learning environment - one that is geared for them!  They thrive.  Keep positive.  For confidentiality reasons, Rosemary is not my real name.
 
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January 17, 2006, 4:14 pm PST

Asperger's Episode

I am glad this episode finally made the bill, because Asperger's isn't talked about much in the media.  However, I am very disappointed that it was put in such a negative light.  I have Asperger's, and I feel like I am blessed just as much as I am cursed.  Dr. Phil did not mention all the benefits AS can have.  I have always been very successful in school.  In fact, I'm about to get my Master's degree.  I consider myself very intelligent and creative, and I owe those kind of things to my disability.  Also, it really bothered me that Dr. Phil repeatedly refered to AS as a "disease."  In my mind, he is saying there that it is bad and it needs to be eradicated.  I do admit, I have several problems because of my disorder, and I understand those related to AS people who go through a lot of stress.  Still, I fear that "curing" AS may take away some of its better aspects. 

  

When and if Dr. Phil returns to the subject of AS, he needs to include some success stories.  Read "Freaks, Geeks, and Asperger's Syndrome" by a young man named Luke Jackson.  Better yet, it would be cool if Dr. Phil can fly him in and talk about Asperger's more positive side. 

 
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January 17, 2006, 4:14 pm PST

Giving Hope to Parents of Special Needs Kids

I'm especially happy to see Dr. Phil air shows relating to children with extreme behavioral issues. Having a child with any type of sensory developmental disorder is an overwhelming experience. Communicating and support is so vital to the famiies who must deal with raising these children 24/7.

My grandson, Jack, has autism - Asperger's Syndrome. His condition has touched our family and made us think about life in a new way.  

I launched our website, Linking Our Hearts.com to offer a service and give hope to the many families that wonder about the future of their child. Linking Our Hearts offers a line of tagless children's apparel with original designs created by Jack.

Like many children with autism, Jack is unique and gifted. He has a high IQ, a photographic memory, and a expressive skill in art. Please visit us at www.linkingourhearts.com and enjoy Jack's artwork. The artwork will warm you heart and loudly proclaim that children with autism have endless capabilities. 

 
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