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Topic : 01/17 Extreme Disorders

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Created on : Friday, January 13, 2006, 02:18:32 pm
Author : DrPhilBoard1

Does your child rage, scream and kick doors? Is his or her behavior the typical brattiness of a spoiled child, or involuntary behavior beyond the child's control? Dr. Phil sheds light on a pair of widely misunderstood extreme neurological disorders. First, he looks at Asperger's syndrome, a high-functioning form of autism which can cause a person to lack control over his or her emotions, including anger. Rich and Karen's 15-year-old son, Alex, was diagnosed with Asperger's at age 6. His sudden fits of rage and erratic behavior have put a strain on his whole family. Should his parents be afraid of Alex, or is there something they can do to bring his behavior under control? Plus, Craig, 37, can't control his physical tics, nor can he keep from constantly uttering obscenities, literally hundreds of times a day. Craig suffers from Tourette syndrome, an affliction that's gotten so bad, he won't go into grocery stores, movie theatres or any public place for fear he'll be kicked out. What will the disorder mean for his plans to start a family? Talk about the show here.

 

Find out what happened on the show.

 

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January 17, 2006, 6:08 pm PST

From Alex and Family

Quote From: rwback

I watched the show today and to be honest it scared the life out of me. I have written into the show before looking for help with my son but unfortunately I never got an answer. I watched this young man and saw the rage and it really took me back. I have a son who is 7, almost 8, and he has Asperger's. I have done my homework so I know that the teen years are going to be tough but it scared me that my precious little boy might become that angry. He has a lot to deal with being in school and I have just had twin girls a little over a year ago. It scares me to think that I may have to worry about his anger because I have other children to think of. I feel so lost and alone. I want to help my little boy and I have had him to doctor's and up until this year I haven't been able to get insurance to pay for the treatment that I was told that he needed. I don't know what to do and sometimes I spend all night on the computer trying to read and find ways that I can help him. My son is wonderful and he deserves every chance that I can give him but I don't know what to do or where to go. The information is not readily available without shows like this bringing Asperger's to light. I would greatly appreciate any and all advice. 

  

Thank you- 

Rhonda  

Thanks for watching the show.  Please keep in touch through the board.  You may not have to deal with the Anger and Meltdowns.  There is help and you need to confront your medical team with information you learn.  Dr. Phil and staff have proved a forum of wonderful understanding.  Please contact Brainmattersinc.com and learn about the services they provide.  Check out your local medical facilities as well and know that you are not alone. 

  

Contact your local TV Station and ask them to do a follow up this and help bring answers to your area. 

  

The Hale Family Cares, Alex wants to get better and he wants others to find answers to their wellness too. 

  

kikione1@cox.net 

 
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January 17, 2006, 6:08 pm PST

I sat in awe with questions aspergers/touretts both?

First I must say how much I appreciate the sharing of Alex's story and Distressed parents.  I sat in awe. Reason being... I actually have an Alex  age 14 and watching today was like watching him, with some differences.  We have been told our Alex has Touretts and ADHD.  He has violent out burst so much like Alex  on the show.  The school has him in a behavioral Special Day  Class and they are at their wits end almost.  My question is can a child have, Touretts,  ADHD and Asperger Syndrome.  We also  have another son age 15.  He has ADHA also,  but we have come to think maybe he has aspgerger over the last year.  It never dawned on us our Alex could.  Does personality affect the way these are manifested?  We are attempting to start again to find out what is going on in both our boys minds.  Both have been arrested and are awaiting court dates.  We live in Southern California and are desparate to find REAL!! help.  We are hopeful there is some way to get the help we need, before it is too late.  So many teachers, school professionals and doctors have been in the picture, yet no one has been able to answer and resolve the questions we have.   We are worried about much of the things Karen and her husband worry about.... oh and pray a lot about.  When I see a police car near home ... I say a little prayer please don't let my boys be involved!  Is there any help in my area for families on an extremely low budget.  We have healthy families BC insurance.  szmclennan@aol.com 
 
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January 17, 2006, 6:13 pm PST

mom of autistic

my son is autistic and he is in the 5th grade and doin great  he is loves to learn . he has his outbursts but all in all he is doin great. see when he was about 4 yr old i ask for help with him and well what i got was a guy that told me to lock my son in his room and i mean lock!!! and when he was good do let him get anything from the store. well after about a half day of him kickin my door and trashin his room i made up my mind i can do this.. well i have been doing this with him i hug him alot and now he hugs me back and he never did that before. we talk about things how he feels. he has never got in trouble at school . well when he was 4 he took meds for adhd it wasnt untill last yr in school that they did test and showed that he was in fact autistic. but when they said he would very slow i knew it wasnt right in!!! he was too smart nobody could do math as fast as him . he beat the teacher with a calulater. sure blew his mind lol it was great !! i am so proud of him . so dont ever give up they r great kids in there own way  

 
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January 17, 2006, 6:14 pm PST

Alex and his family say thank you

Quote From: three2camp

I am the mom to 9-y-o Alex who was recently dx with Asperger's. Kudos to you for trying to communicate with your parents. Perhaps it was just editing, but I was screaming at the television hoping your parents could hear your attempts to communicate. I know I'm new at this Aspie business, but I have devoted myself to learning more about my child and his condition. I firmly believe that, while I continue to make mistakes and parent the way I was raised, at least I know that must change and change RIGHT NOW.

Asperger's is not extreme - it is incredibly complicated and my child has given me new perspectives. He sees beauty where I would overlook it. He approaches life in ways I could never imagine. His intelligence, perception, kindness and affection are overwhelming and I know he is my gift. Yes, he rages, but we try to listen to him and try to include him in our family. That has removed the element of surprise for him and helped him anticipate events so he can be better prepared.

You are to be commended for trying to save your family - just like my Aspie, your perception is amazing. It is sad that the show did not focus on the positive or the fact that simply treating you like a human being would go far to help you anticipate life and adapt to it.

May you make it to adulthood and may you continue to succeed - hopefully in an environment that appreciates you.

You are right, a lot had to do with showing the EXTREMES.  Alex is a bright young man with a talent for music, a beautiful voice who hopes to be an American Idol some day.  Alex is also a sports wiz ask him any sports question and he probably knows the answer.  Alex is loved by all but also feared when he meltdown.  Alex has a heart of gold when he is not in meltdown.  Not all AS individuals have the Mood Swings Alex has but it is what it is and as Nancy Goodhue from Brain Matters says:  If it looks like a duck, quacks like a duck, it's a duck.  So whatever it is, it is and we are thankful to Dr. Phil for hearing our pleas and for Brain Matters for helping us diagnose his problems and getting us on the road to wellness. 

  

Do not give up, you must keep looking for answers to wellness for your child as well as for yourself.  I am learning that I must take care of me too.  I have not allowed this before but I am now getting help. 

  

Thank you from all of us......Alex says he is proud to have parents who cared enough to get him help. 

 
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January 17, 2006, 6:19 pm PST

School System

Quote From: lisag3367

I saw the broadcast for tomorrows show for Dr. Phil and I saw my son.  That is exactly how he behaves at times.  I haven't seen the show yet it airs tomorrow.   My son was reading 11th grade level in 4th grade, we had a wonderful support system at the elementary school.  He has ADD.   He is now in 8th grade and he is failing 3 classes.  We have no support system with this junior high.  He can be very explosive at home but the Adderal he takes for school  subdues the urge to hit and retaliate.  The "brattiness" comes out though.  Because of his "disrespectful behavior" the teachers do not want him around and will send him to  the office.  And because of so many office referrals he is now suspended for 3 days at home and 7 days at an off campus sight.   

I remember bringing my son home from the hospital as a new born. He would jerk his head back and arch his back because the milk was not coming out fast enough when I would bottle feed him.   He was kicked out of 3 day cares before kindergarten.  

  

This has been going on for 13 years!!!!! 

  

How did you go about find out about this disorder?   .  As a mother I know there is something more going on here... But I don't know where to turn.  

Hi, My Grandson has many issues. He is in a small self contained classroom for emotional disabilities. Your child is entitled to addition help from the school. They could put a 504 plan in place or an I.E.P. (individual education plan). There are many websites you can find information on about IDEA,504, and IEP's. Your child has a neurological disorder and  the school should be working on a behavior plan as well as a support system for him at school. you might try.(http://www.wrightslaw.com/idea/pubs.htm), (http://www.behavenet.com/capsules/disorders/asperger.htm) 

http://www.nimh.nih.gov/nimhhome/index.cfm, 

(http://www.edweek.org 

http://www.ed.gov/news/newsletters/extracredit/subscribe.html.  

TheExceptional Education Department- for his school 

I hope I haven't been overly pushy but most parents don't know their children with special needs can get more help. The schools aren't forthcoming with the information, we have to dig for it. Also contact the Aspergers Information Center in your state.  

 
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January 17, 2006, 6:19 pm PST

01/17 Extreme Disorders

Quote From: cjhmom4

I would love to try the GF/CF diet for my son i have read alot about it and the benefits of it however if you are a low income single parent (I recieve nothing from his father) it is not all that easy.  Finding foods like that is one thing affording them is another. I am sure you know how many things contain these.  So to comment on a parent doing their child a diservice if they dont put their child on this diet is like saying we are a bad parent.  I have yet to find an organization that will help defray the cost of the diet I would love to have my son on.  So in theory it sounds great in reality it is not always possible.

I, too, am a single parent and do not receive much at all from his father. I found a great store that is now in several states and they have very reasonable prices. www.traderjoes.com  . They were recommended on the Dan website, I believe. Also, my pediatrician told me to check out the Feingold association- www.feingold.org - they believe in eliminating all artificial flavors, chemicals. preservatives, etc. Very interesting information and scary things too. Compare the numbers of what has been occurring with the chemicals in our foods to the increase in the rates in autism.... Frightening. I just recently began changing over our cabinets to a more healthier lifestyle. With two young children who have been used to eating a certain way and a limited budget it will be a process, but I am keeping a positive attitude. And it can hurt me either, right? Anyway, their juice was the biggest thing I was worried about and the first thing I wanted to change. Two weeks now, and not a single complaint or a request for the old sugary, artificially colored junk. And there has been a certain calmness. Only time will tell.  

  

  

 
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January 17, 2006, 6:20 pm PST

our boys room has holes in it to

our boy was very bad ADHD THEN I HEARD ROBERT KENNEDY JR TALKING ABOUT ALL THE AUTISM ADHD ADD AND ALL THE MERCURY THESE KIDS ARE INJECTED WITH AND MERCURY TOXICITY HAS GOT THE SAME SIMPTOMS AS ALL OF THEM . WE REMOVED MERCURY AND WE HAVE OUR LIFE BACK . WE HAD NO LIFE BEFORE THAT. WE DID IV CHELATION WITH DR. COLE IN DALLAS TX AT THE      DALLAS WELLNESS CENTER.COM   I SAY REMOVE MERCURY AND TAKE YOUR LIFE BACK.  WE DID. I LOVE LIFE AGAIN BEFORE I WAS GOING TO HAVE THIS KID LOCKED UP. WE ALMOST LOCKED HIM UP.  

  

CANT AFFORD CHELATION WITH IV TRY CHELATION FROM HEALTH FOOD STORE , HEAVY METAL DETOX. I USE THAT TO.  

  

WE LOVE OUR LIFE NOW WE CAN GO PLACES AGAIN.  

 
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January 17, 2006, 6:21 pm PST

From alex and mom and dad

Quote From: szmclennan

First I must say how much I appreciate the sharing of Alex's story and Distressed parents.  I sat in awe. Reason being... I actually have an Alex  age 14 and watching today was like watching him, with some differences.  We have been told our Alex has Touretts and ADHD.  He has violent out burst so much like Alex  on the show.  The school has him in a behavioral Special Day  Class and they are at their wits end almost.  My question is can a child have, Touretts,  ADHD and Asperger Syndrome.  We also  have another son age 15.  He has ADHA also,  but we have come to think maybe he has aspgerger over the last year.  It never dawned on us our Alex could.  Does personality affect the way these are manifested?  We are attempting to start again to find out what is going on in both our boys minds.  Both have been arrested and are awaiting court dates.  We live in Southern California and are desparate to find REAL!! help.  We are hopeful there is some way to get the help we need, before it is too late.  So many teachers, school professionals and doctors have been in the picture, yet no one has been able to answer and resolve the questions we have.   We are worried about much of the things Karen and her husband worry about.... oh and pray a lot about.  When I see a police car near home ... I say a little prayer please don't let my boys be involved!  Is there any help in my area for families on an extremely low budget.  We have healthy families BC insurance.  szmclennan@aol.com 

Don't give up on looking for help. Call the TV station that airs Dr. Phil and ask them to help you do the research and maybe a segment on the news on this issue.  Please continue to make people aware of these issues and help will be around the corner, it just may be a wide corner. 

  

Contact Brain Matters through the website and ask them these same questions. 

  

Check out your County Board of Mental Retardation, they may have services for Neurological Special Needs Children.  

  

Check out what your school system may have in place as well. 

  

I understand the cry for real help, because there is a lot of help out there but it leaves you high and dry. 

  

Please keep us posted as to what you find out we will help as best we can. 

  

Karen Rich Alex kikione1@cox.net 

 
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January 17, 2006, 6:24 pm PST

TS Awareness

  

Thank you Dr. Phil for including Tourette Syndrome as part of you show. The condition can be very difficult and the diagnosis process much worse for the child and parents. 

  

As parents of a child with TS we are trying to inform schools with in service programs, educate interns and professionals to provide proper support and guidance to families. 

  

The disorder evolves over years and for this is always changing so there is never a dull moment, but we manage. It just seems it is harder for those around us to understand. 

  

I do wish that more detail was provided to the kinds of tics someone with TS can have. The stereo type is always the "swearing disorder" which is far from being the case. That is only one part of having TS and many people with TS do not have that tic. Repeated words and phrases (echolalia)as well as swearing and obscenities (coprolalia). 

 

Tourette syndrome (TS) is a neurological disorder characterized by repetitive, stereotyped, involuntary movements and vocalizations called tics. The disorder is named for Dr. Georges Gilles de la Tourette, the pioneering French neurologist who in 1885 first described the condition in an 86-year-old French noblewoman.

The early symptoms of TS are almost always noticed first in childhood, with the average onset between the ages of 7 and 10 years. TS occurs in people from all ethnic groups; males are affected about three to four times more often than females. It is estimated that 200,000 Americans have the most severe form of TS, and as many as one in 100 exhibit milder and less complex symptoms such as chronic motor or vocal tics or transient tics of childhood. Although TS can be a chronic condition with symptoms lasting a lifetime, most people with the condition experience their worst symptoms in their early teens, with improvement occurring in the late teens and continuing into adulthood.
 

  

Vocal & Motor tics are more common and embarrassing for children that have them in public. This causes more tics out of anxiety and stress. Teachers need to be educated on this condition too. Lack of understanding within a school system can cause the way the child is treated to be unreasonable. 

  

Remember when those punish another for what they put them through? This can happen in school to a innocent child over "chirps" and twitches out of lack of patience and knowledge. 

  

I have not even broached the subject of other students and bully behaviors. Hopefully if adults can be educated the children will follow in their foot steps. 

  

I am glad someone out there is trying to research tests for proper diagnosis. The process can be very long and not accurate since there are many professionals that do not focus on the disorder. 

  

One thing that concerned me was the statement about it being a Mental disease. IN fact it is a neurological disorder created by one recessive gene in each parent. Most children with TS have above IQ levels and sometimes poor motor skills. There are Attorneys, Doctors and Professors with TS among many others. 

  

The response from the gentleman about having children of his own was very real and a concern raised by many older teens on the TSFC forum. I am glad he was there to express some real experiences and clear some misunderstandings. 

  

The National Institutes of Health (NIH) has awarded a multi-site grant to Yale, Harvard University and Wilford Hall Medical Center in San Antonio, Texas, to evaluate the Comprehensive Behavioral Intervention for Tics (CBIT) program in adults with Tourette syndrome (TS).
Yale researchers, led by principal investigator Lawrence Scahill, associate professor at the School of Nursing and the Child Study Center at Yale School of Medicine, recently launched the four-year study.
 

More people need to become aware of TS and the TS+ disorders to live peacefully and informed.  

  

  

 
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January 17, 2006, 6:26 pm PST

therapies for AS

Quote From: nyboysmom

Hi. I was so happy to read your message. My son is 4 and was diagnosed several months ago. He is on the mild end of the Asperger spectrum and I'm often confused as to what therapies to try. May I ask what kinds of early interventions you had? My son has an aid (SEIT) in nursery school and sees a "floortime" therapist. The school district is considering a social skills group for him as well. Thank you.

I touched on the therapies that my son has had in my previous message.  We've done a lot with diet/nutrition (with guidance from knowledgable health-care professionals), sensory therapies, and we're starting to do RDI.  That was in addition to speech and social skills groups.  There are a ton of great resources out there.  My local support group has some great links on our web-site http://www.pep-albny.org/ 

 
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