Topic : 01/17 Extreme Disorders

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Created on : Friday, January 13, 2006, 02:18:32 pm
Author : DrPhilBoard1

Does your child rage, scream and kick doors? Is his or her behavior the typical brattiness of a spoiled child, or involuntary behavior beyond the child's control? Dr. Phil sheds light on a pair of widely misunderstood extreme neurological disorders. First, he looks at Asperger's syndrome, a high-functioning form of autism which can cause a person to lack control over his or her emotions, including anger. Rich and Karen's 15-year-old son, Alex, was diagnosed with Asperger's at age 6. His sudden fits of rage and erratic behavior have put a strain on his whole family. Should his parents be afraid of Alex, or is there something they can do to bring his behavior under control? Plus, Craig, 37, can't control his physical tics, nor can he keep from constantly uttering obscenities, literally hundreds of times a day. Craig suffers from Tourette syndrome, an affliction that's gotten so bad, he won't go into grocery stores, movie theatres or any public place for fear he'll be kicked out. What will the disorder mean for his plans to start a family? Talk about the show here.

 

Find out what happened on the show.

 

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January 17, 2006, 9:24 pm PST

AS Diagnosis

Thank you for showing a child with real Aspergers (albeit extreme). 

  

  

I have seen many adults over the last 10 years who label themselves as High-functioning Autistic when they are just plain rude, picky, socially inept, pre-occupied with their carreer, or downright obnoxious.  Same with ADD & ADHD. 

  

  

There is a clear difference. 

 
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January 17, 2006, 9:33 pm PST

Deja vu

Quote From: cm5259

I have been married to my aspie husband for 15 years.   In the beginning he shared with me that he had a chemical imbalance and felt he was wrongly diagnosed as bi-polar.  We have had many meltdowns in our marriage.  I have struggled with how he can be so absolutely loveable at one moment and a completely different person the next.  I saw he was obviously an intelligent man, an engineer (of course), highly respected at work and loved by our friends.  But when it came to the two of us trying to have an adult conversation it was like I didn't know who he was.   I am a very sociable person with many interests.  Big crowds give me energy.  They make him crazy. If we are just with a couple that we are friends with he is o.k.- put him in a big crowd and pretty soon I am looking for him because he is outside somewhere - alone.  I struggled so much with that for a long time.  We have counseled for a lot of our marriage.  The past year we have finally found the counselor that has worked well for us and she brought us to the diagnosis of Asperger's.  I could have cried when I watched my husband read the book about Asperger's by Tony Attwood.  He never-ever reads, but with that he felt as though he was reading his life story.   

I have read some of the Asperger relationship books and they are hard to read to me.  It was difficult to realize that the common ground I hoped our counselor would bring us to would not be found, or not be found in the way I thought anyway.  I have begun to understand more why he is the way he is and the "triggers" that may send him to a meltdown - and I will avoid that at all cost!!  

When we married our 5 children (his 2, my 3), ranged in age from 6-16.  We somehow survived through ALL the trials that kids put parents through, sometimes with 4-5 of them living under our roof.  Now I know why he did not like to go to basketball games, or got upset when  the kids friends came over, or have the continuous unscheduled events happen.  Things that seemed so normal to me were so strange to him.  Now I know why.  The crazy thing was now that it's just the two of us it almost seemed harder, but when we both try we have a wonderful relationship and that's what I live for.  I have found that my aspie is very dependable, loyal, and loving -especially when there is continuity and peace in his day.  I have learned to accept more than expect, and make the daily choice to love him with all his qualities and quirks - just as he does me. 

I have looked for someone to talk to also- I hope that we can encourage each other. 

  

Your story is so very similar to mine.  I had 3 little girls.  My husband,  a son and daughter.  My husband had custody of his children.  At the time we married the children ages ranged from 2-6.  I knew right away something wasn't right with my step-son.  I began having him tested and after 3-4 yrs of getting know where I happened to hear about Asperger's.  We took him to a specialist in Santa Barbara where he was diagnosed.  With all the reading I had done it didn't take me long to figure out that his Father, my husband had the same thing.  My marriage has been tough.  We have had our share of counseling.  But, the books I have read are really what helped me the most.  And yes, they are hard to read.  I would read them first and underline in blue what I felt related to us.  Then my husband would read after me and write comments along the edge.  I then gave the book to our therapist with all our writings inside.  Our Therapist (who loves Dr. Phil and has been to his show many times) was then able to help us see better how each other was feeling.  She was able to explain to my husband in an intelligent way (without emotion) how his actions where making me feel and react.  The dance that goes on in a marriage.  I would love to corresponde with you via email. 

Lisa 

 
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January 17, 2006, 9:50 pm PST

The future is very good

Quote From: karen_kiki

Alex can be the most wonderful young man and very much in control however when his meds don't work, or he oushes the therapy out of his brain, which is not always aware he is doing it, he will have these fits, rages and creates complete disruption in our lives, that includes his own. 

  

Alex is a very smart young man and very talented.  He has so much potential but our fear in life is that one of his rages will bring that all to a halting end. 

  

As any parent wants the best for thier child so do we.  

  

We hope that you will find some answers in our story and that we can continue to email and contact each other.  We are not alone and we and our children deserves answers as well as support to make it one day at a time. 

  

My thoughts are with you as we take this journey in life. 

  

I met someone a few years back who chose not to be my friend.  Her reason was that if we didn't have Special Needs Children we would not have met or had anything in common, and she didn't want our children to link us together.  I feel very sad for her as friends are important in life, and friends who understand and care are invaluable.  I am reaching out to be your friend as we all need support. 

  

Karen 

Hello. I watched this episode on Dr. Phil today. I understand very much on what it is like to have neurological disorders. I can tell you that I know and understand exactly what it is like. With Asperger's Syndrome, I oversee and face many issues myself. Although, I do not suffer with sudden rages at times, I usually do not always feel right at other times. I usually have a difficult time communicating certain thoughts and feelings, and I am not always confortable communicating with other people, especially in large groups, and busy and noisy places. And I also am terrified of crowds. Usually when I am not happy with a certain situation, I will try to solve my problems by sitting in my room all day, at other times, I will think things over. I have watched this episode very clearly and I just realized that people with this disorder have different ways on handling the issues. After, watching the show, I still was able to understand the differences. I think that Alex is a very intellegent individual. I believe  that in disorders that there are a negative side, but usually I try to forget about the neagtives, also there is a highly positive side. Individuals with Asperger's Syndrome are much more intellegent than other people. The IQ's are at least 20% higher than average as from what I know. For me, I am so excellent at computers, writing, geography, and design. What strenghts would you say does Alex have? How does he do academically and in school? Also, I would like to say that people, in history, and even today-- there have been a few people that I've learned about that have had Asperger's - and they are excellent at what they did in life, in history, believe it or not scientists like Isaac Newton and Albert Einstein and Microsoft Chairman Bill Gates and a few other very famous people have had Asperger's. They have accomplished so much in life. I think all people and I think that Alex have a very good chance to lead a successful future. What does he want to do when he is older, in career terms; ie. computers, technology, science, directing, business, etc.? There are absolutely plenty of positive things for Alex's future. I wish you, your husband and Alex in a highly successful future.
 
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January 17, 2006, 9:54 pm PST

You need to get clear

Quote From: idealw8

Thank you for showing a child with real Aspergers (albeit extreme). 

  

  

I have seen many adults over the last 10 years who label themselves as High-functioning Autistic when they are just plain rude, picky, socially inept, pre-occupied with their carreer, or downright obnoxious.  Same with ADD & ADHD. 

  

  

There is a clear difference. 

No one labels themselves autistic if they really aren't.  If you knew anything about the disorder, maybe you would understand that those people that you encountered were probably telling you the truth.  That's the "clear" difference.
 
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January 17, 2006, 10:09 pm PST

01/17 Extreme Disorders

Quote From: chris2002r

I just finished posting a message with the same idea. The parents are treating this child as if they hace no clue to his specific needs. I know nothing about this disease and it was still clear ot me that you never want to be the one that seems to be more emotionally out of control than your own child. When factoring in the poor child's disease, I was even more shocked.  

  

The good news is that Dr. Phil no doubt will get them the advice they need to stop feeding the trauma to the detriment of the entire family. If not then maybe the parents will read the message boards (most seem to read about their own appearance at least) and they can be directed to some helpful info. 

About parents being more out of control, and referring to the show today, i wonder if many people realize that a parent often can also have AS or a similar neurological disorder, so you have two (parent and child) not able to control their anger. I believe Alex's father has this problem. The father is so sweet and loving, yet got triggered to that harsh yelling. The scene i remember now is while they were yelling, mom was waiving her hands and trying to get them to stop. Wow, it looks like our family before my son and husband were on meds. We've experienced the same of so much scary intense yelling, and my husband and son wouldn't even notice my attempts to stop them--- just like i saw in that video clip w/ Alex. My point is to be careful about judging parents and telling them simply to quit yelling, and be calm, when they often have psych problems needing help with also. I bet Alex's dad can't help it, just like Dr Phil explained for these disorders. At least not yet, not until they get treatment, meds if needed and learn how to recognize their own triggers and take steps to change. ...just a thought on why it appeared so obviously emotionally out of control, and the answer seems so simple looking IN. But another thought: Just try living in another's shoes with a family member with a psych disorder, and it won't be long and even the most healthy person couldn't follow his own advice!
 
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January 17, 2006, 10:18 pm PST

Empathy for Alex's Mom

My heart went out to Alex's mom! I have a 16-yr-old son who has been diagnosed with Asperger's along with many other disorders over the years - ADHD, bipoloar, RAD, etc. (and I have Torette's myelf, but that's another story). I'm still not sure which of my son's diagnoses is accurate, but I don't go by the lables anyway. I just search until I find what works for my son! In our case the meds were not helpful, but we have found alternative treatments that are helping. The most helpful are Neurodevelopmental Therapy, which consists of neurological exercises that we do every day at home, and a parenting paradigm that we learned from Dr. Bryan Post of the Post Institute . Both of these take a lot of time and energy, but it is worth it. We have even had SPECT scans done like the ones they showed on the show. Hopefully those will give you some direction in treatment. I hope there will be a follow-up to this show. I am anxious to see what  is recommended (especially besides meds) and what works and doesn't work for Alex. 

  

If Alex's mom is reading this I just want you to know that I understand. it is a tough road. You are doing the right thing by focussing so much effort on helping your son. Just be sure that you love and accept him for himself though and you are trying to help him rather than change him. He seems like a wonderful, caring boy! He reminds me so much of my 16-yr-old son. My husband happened to be home sick so he saw the show too and we both commented that Alex's rages looked just like our son's used to be and that if we hadn't done an intensive in-home therapy with Dr. Post, our son's rages would be much worse than yours by now! It is so hard to learn how not to get sucked into the rages and escalate them. I trust the people Dr. Phil gets to help you will teach you this. It is not easy. I will be praying for you. And I know this was touched on in the show, but be sure to do whatever you need to do to nurture the relationship with your husband.  My husband and I have been married almost 25 years, although our relationship is not what I wish it were. I have heard there is a very high divorce rate among parents with special needs kids. I was so impressed that the two of you have stayed together through all of this. 

 
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January 17, 2006, 10:26 pm PST

The Other Side of AS

Quote From: chattykat

My son was labelled with 'Asperger's' when he was 14, he is now 16.  He does not have fits of rage, on the contrary he is very docile and this sometimes posses a problem in school as he gets picked on a lot.  Although he has had a difficult time all through his school years (socially) he has always been in a regular class and this summer he will graduate from high school. 

  

He likes to think of himself as different, just like everyone else!!  It is too bad that some of the kids and teachers in school are not respectful of those differences, but that is something that my son is learning to deal with, because our society is prejudiced against differences. 

  

I will watch Dr. Phil's show, however, I disagree with the label 'extreme disorder', there are worse things that our kids can be afflicted with than Asperger's.  Let us thank god that our kids are healthy and will find their way in life, although maybe with a little quirkyness.  Albert Einstein did! 

Some AS kids are just a little quirky, others have serious problems. I see it as being extreme for many when you have the rages or sensory problem reactions and other things that SERIOUSLY interfere with functioning. If there's no violence, as w/ your son, it's easy to say he's simply different. But when you've lived with the scary unstable mood swings and unpredictable eruptions, and have to fear for your safety (as Alex's parents,) then i can't say it's NOT extreme. So you are blessed with AS not being extreme; others are not. I don't want to take away from validating those who have their lives seriously disrupted and dysfunctional from extreme AS problems. We have an AS son, 16. It is not extreme today; but most of his life it was. I can remember feeling like i was living in hell. And i can't help but say that is extreme. Many AS kids are NOT mentally or emotionally healthy. They struggle terribly inside to cope and figure and manage life stuff; they can't deal with or experience emotions well. That is not healthy. And Albert Einstein was a little more than quirky. He had serious problems. That's hidden from the textbooks.
 
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January 17, 2006, 10:27 pm PST

01/17 Extreme Disorders

Quote From: msedaba

I have a wonderful, kind,brilliant 8 year old son who was diagnosed with AS at age 5.  He has strenghts and weaknesses just as we all do.  What is "different" about him is that his strenghts far outweigh his weaknesses. He knows all about AS and he knows it is an excuse for nothing and it is ABSOLUTELY noting to be ashamed about. He has a nice circle of friends who like Ben for Ben and respect him because he has earned their respect.  He is my hero.  All that is wonderful in this world is in my son, and none of the judgemental bigetry and nonsensical hatred.  He sees no logic in it.  I am growing more and more tired of asking my son to change to accomodate a society that expects us all to be cookie cutter models of each other.  Dr. Phil's show gave a naive audience a glimpse of the dark moments in the life of an adolescent with AS.  All people have those moments.  Fortunately they are not aired on national television.  Dr. Phil, I am also a teacher of children with autism spectrum disorders and there is not a day that goes by that I am not in awe and inspired by them.  The world needs to see this side of AS and ASDs, so that these unique individuals can be embrassed and encouraged.  It is this population that has been given gifts beyond those we can understand.  They can and will change this crazy world.  By the way Boston Legal aired tonight and had a story line about AS that was handled significantly better than Dr. Phil's version.  Too bad. 

Michelle  MSEd 

Benjamin's very proud mom 

Amen to you Michelle!  I too have a son (7 years old) with Aspergers.  We are having difficulty with managing his anxiety and subsequent outbursts in class and I'm afraid that Dr. Phil's show unfortunately will give fuel to the fire to those uneducated people who see these wonderful children as only "difficult" or "troublemakers" in class.  If only they could see him in non-stressful and safe environments, they could see all of his wonderful qualities!  Although I appreciated Dr. Phil's attempt to raise awareness to the issue, I hope that it hasn't further stereotyped our children.  I would love to see a show highlighting their abilities and educating others about them so that our children don't develop the emotional distress that this young man has developed over being so misunderstood and maligned!
 
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January 17, 2006, 10:33 pm PST

01/17 Extreme Disorders

Quote From: gabesmom

About parents being more out of control, and referring to the show today, i wonder if many people realize that a parent often can also have AS or a similar neurological disorder, so you have two (parent and child) not able to control their anger. I believe Alex's father has this problem. The father is so sweet and loving, yet got triggered to that harsh yelling. The scene i remember now is while they were yelling, mom was waiving her hands and trying to get them to stop. Wow, it looks like our family before my son and husband were on meds. We've experienced the same of so much scary intense yelling, and my husband and son wouldn't even notice my attempts to stop them--- just like i saw in that video clip w/ Alex. My point is to be careful about judging parents and telling them simply to quit yelling, and be calm, when they often have psych problems needing help with also. I bet Alex's dad can't help it, just like Dr Phil explained for these disorders. At least not yet, not until they get treatment, meds if needed and learn how to recognize their own triggers and take steps to change. ...just a thought on why it appeared so obviously emotionally out of control, and the answer seems so simple looking IN. But another thought: Just try living in another's shoes with a family member with a psych disorder, and it won't be long and even the most healthy person couldn't follow his own advice!
What a wonderful point you make!  I couldn't have said it better!
 
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January 17, 2006, 10:40 pm PST

Not sure...but check things out in all ways

Quote From: jkelly16

   I watched the show today and my heart broke for the family with Aspergers, but also I began to look at my own son.  I got the surprise of a life time at 41 years old, and gave birth to my son in June of 2004.  Since he was 8 months old he has been banging his head on the floor and the walls, he will hit his head and will hit his head with his hand.  The other thing he does that is not consolable is he can cry for a good 2 hours straight; or I should say scream for no reason, it comes out of the blue, and is very scary.  He has been doing that since 6 months or so.  

  

When he is not crying he is as normal as any other child, but when I say he can cry for hours without stopping I'm not kidding, and he does not cry himself to sleep, that does not work with him. 

Does anyone know if this is the possibility of something, or am I over reacting.  I raised 2 girls who are now 15 and 14 and know nothing about boys.  Can someone out there help me?  

I've just read something about Angelman's Syndrome...it shows up early and may have some of the symptoms you describe...I'd never heard of it before. Just an arrow, in a direction, not the answers by a long shot.
 

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