Messages By: heyrose

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September 17, 2005, 3:37 pm PDT

good in theory

Quote From: jettav

I have been in a similar situation to a certain point, my husband never has tried to control me but getting him to go do things has been a problem and that is hard to deal with, I agree with Dr. Phil that we teach people how to treat us and as long as you allow your husbnad this hold on you, he will continue to do this, I think you just need to step out and do something, take your son and go. if you want to go to church, then find a church that you are interested in, get up on Sunday morning, get your son and yourself ready and go. Get to know people and don't wait on him to give you permission. You can't change him but you can change your self. When you get to know some one and you want to invite some one over then do it, get the evening ready and tell your husband that company is coming over and go with it. If he wants to cop up an attitude then that is his problem, not yours, it may be a little embarrassing or upsetting but you need to stick up for your self. get your self to the local "Y" or even the library and take your son to story time and all, Never too early to introduce your children to the library, Go to the park and enjoy a day out with your son and go to the play ground with him, there may also be a MOM'S group around some where, where you can go and meet other moms, Check out the MOPS (mothers of preschoolers)program. www.mops.com, it is a christian based group that usually meets in churches once or twice a month, there is a slight fee but is usually free the first couple visists or so so you can get a feel for the program. kids have a teacher who play and work on a basic curriculum with them. These are a few ways that you can get out and start meeting people and get to know them, Make sure you do take time with your husband, make sure you have nights with him and doing what he wants and all, include him as much as possible and if he rejects your offers then don't worry about him, some times it is hard for people to get out there and meet others and you may be the one to have to get the ball rolling here.
 This is a great idea in theory but having been there, other people notice the reaction of the husband and get turned off.  Most people are looking at the couple as a whole and deciding whether they want to be friends with 'them.'  You can meet all these people but one they get a look at the hermit husband. 

With my husband, maybe he'll go along, but will contribute as little as possible to the conversation which always makes a big hit.  The Moms notice too, "What's wrong with her husband," and they tag that onto you.

If he likes to stay home, like my husband, they go out but they don't really want to so they wind up being passive aggressive and pick fights, act cold or don't talk.

I tried all the above.  I make friends easily, unfortunately, once my husband enters the picture, it's all downhill.  You might get a friend or two but they won't want to go out as a couple.  Probably just you and the girlfriend having coffee.  Volunteer for things.  But still.  The husband is a dead weight at least mine is.
 
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January 17, 2006, 3:55 pm PST

There's a big difference

Quote From: kcmiller

I watched the videos of the interactions of this boy and his family and I don't get it.   As a registered nurse, a former special ed teacher (jr. high age ADD kids), and a mother of 2 grown children, I don't see anything terribly unusual in this boy's behavior.  In every interaction, his parents were angry, blaming, and unsupportive.   The boy was acting out what appeared like normal frustrations at being treated that way and feeling so rejected by his parents.  Most teenagers would yell, swear, kick stuff and slam doors when they are treated that way. There was not one scene showing ANY understanding, kindness, or honest support that all children and teen-agers need so desperately.  And this teen-ager was obviously trying to understand, asking for help and support, reaching out, trying to look at his parent's side of it, and they just rebuffed him and were hostile towards him at every turn. I can imagine the hell they put that child thru when he was a normal hyperactive, "out-of-control" four or five-year-old boy, which is just a description of a normal 5-year old boy.  (I have had several pediatricians tell me that most parents bring in their 5-year-old boys at some point to find out if they are hyperactive, or somehow lacking self-control.  They just need to be reassured that this is actually normal behavior are this age.)  Everything presented on the show portrayed these parents as being particularly out of touch with how to deal with anyone's behavior; their own, each other's, and certainly their child's. I was dissappointed, Dr. Phil, that you didn't give them the wake up call they really, really needed.  Or was there more to the story than came across in the show?
 I think what might have been missing is that people with Aspergers' do not have an empathetic viewpoint, don't understand how other people feel.  This causes them to be rude, cold and callous.  They also don't apply what they've learned from past experience to similar experiences.  This causes the family member to be constantly (and I mean constantly) repeating themselves over and over and over. 

A typical teenager might be doing the same things as a person with Asperger's but they have normal peer relationships for a reason, they're empathetic, they listen, they have a global viewpoint, they learn from mistakes.  What's going on with Asperger's is a whole different story than what's going on with a teenager without Asperger's. 
 
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January 17, 2006, 4:09 pm PST

Brain Matters

 I agree that the show didn't go get to the crux of Asperger's and why it's such a distructive syndrome. 

What I am happy about is to get the name of Brain Matters.  I'm hoping that my husband will schedule a scan and then have treatment tailor-made for him with solid results in his hands.

My husband has Asperger's and won't get diagnosed.  He's hell bent on a road to destroy a beautiful family which includes three lovely girls.  No matter how we try to help him he just gets angry and trys to say my actions are pushing him away.  He is unfortanately, I believe, saddled with ODD too which means whatever I say, he disagrees with, even if it's about the weather. 

He was so much better before.  He worked with his family so he was surrounded by a cushion and talking to a variety of accepting people from all walks of life.  He broke away from the family business and is working for himself and has begun drinking again.  Now he's spiraling down and can't see it.  He has no friends, just works and carrys around anger.  He's left us and won't get help.  No matter what I say, he just won't listen.  He's very distructive.  I don't know what to do.  We've been going to marriage counseling but it isn't helping much.  He's supposed to get diagnosed, go to AA, he says he will but he's not home and he just doesn't go.  He's going to destroy a beautiful home.  It's really, really sad.  :(

At one point he quit drinking and things were much better, but that was a long time ago.  He stopped taking Ritalin too which made communication much easier.  He's drinking so his anti-depression medicine, Lexapro, isn't working either. 

It's awful, so awful.


 
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January 17, 2006, 4:49 pm PST

how sad, i'm sorry

Quote From: waterbabrn

I am also a registered nurse and a mother of a 10 year old son with aspergers. Our family life is very difficult. We do not go one single day without my son getting pissed off at just about everything. Everytime we have a family outing, he ruins it by getting so upset that he upsets all of us. I find it difficult not to yell at him for it because it is constant. At work I am very patient and understanding with illness on many levels. With my other children, I am the same... After years of literally trying everything I possibly can in the most loveing way possible, I believe it is not possible to make my son happy. He is happy on his own terms, rarely on ours. I becomes frustrating on a level difficult to explain and yes, I too find myself yelling at him to try and make him realize what he is doing to himself as well as our family...I do not know about new treatments for this and am curious to find out if something can help us. My husband (a physician)left us a few years ago unable to deal with it anymore and even expressed guilt for the resentment he felt inside towards our son,  is in denial about getting help for my son... aspergers makes even loving people respond with distress at times.
 Oh, that's so sad.  Yes, it's so frustrating.  I've worked with children, and in hospitals.  I'm very patient but my husband has it and it just gets to be day in and out almost 24/7.  Yes, the same, never happy.  I looked back at the photographs of us since our girls are born (13 years now) and in all the pictures the girls and I are smiling and engaged and he's just scowling.  My girls give me the emotional support and love I need, I'm afraid.  It doesn't seem that anything you do or try works, does it?

I'm so sorry your husband left you.  Insult to injury.  Now you're alone handling the whole situation.  I am alone now with my three girls too.  My husband left me and I don't even know why.  He has Asperger's so who knows?  He's so vague.  I try and try but he's inflexible and as you said, it's only on his terms.  When I try to accomadate him, it's never right or enough.  He can't see the other side of the picture or the whole picture, just little details. 

The frustration is unbelievable.  My husband for about 6 months, disagreed with everything out of my mouth:  If I asked for a spoon he might ignore me.  If I said that it looked as if it might rain, he'd say he didn't know about that.  He'd always reply in a negetive way . . .question everything, why did I want a mochachino?  I couldn't get one word by with ease.  At one point my head actually convulsed.  It was a horrible feeling and really scary.  I felt like I was living with a vise grip on my head.  And I'm an unbelievably positive happy person.  I always look on the bright side.

Should I just let him go? 
 
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January 17, 2006, 5:03 pm PST

Hi

Quote From: karen_kiki

I know many people must wonder what terrible parents we are.  Yes I suspected this even before going on the show.  What you saw was the extremes and if you think we do not try to understand and help Alex you are WRONG.  But as I said to Dr. Phil we are at the end of our rope, at least I am.  Yes we yell and cry and jump down his throat, but did you see the whole scene?  Do you know what started the meltdown?  Dr. Phil can only show so much and what they chose to show the viewers were the extremes.  Alex is a wonderful kind hearted young man however when the switch flips it is like a horror film in our home or wherever it takes place.  On some occasions he actually flips the switch for attention and he has admitted that, so when is he flipping the switch and when is it his neurological disorder. 

  

We aired our dirty laundry to get help.  Comments like yours will help us as we are reaching out for answers for counseling and medication if and where needed.  We are two working parent family and due to financial struggles in our community we are both working multiple jobs, none of which are full time and we have no benefits.  We are doing all we can to make life the best for him and as I said, losing ourselves in the midst of it all. 

  

I have gone into counseling and I am sure that Alex, Richard and I are on the road to recovery.  We will be in recovery for the rest of our lives. 

  

Are you responding to the original  quote from the nurse?  I'm agreeing with you, the parent.  I don't think other people understand, the viewers, how frustrated you, the parent, are.  I was crying watching you.  I know exactly how you feel.  My husband has it.  It sounded more like raised voices not yelling and raised because you were in different rooms.  I didn't think you sounded like you were yelling at all.  I completely related to you and felt so sad by it. 

I was replying to the nurse who was saying that Alex sounded just like any other teenager.  I think the show didn't bring out how frustrating Asperger's is.  I wish I knew what medications work too.  My husband seemed better on Lexapro for depression.  He was also more in control and better able to communicate on Ritalin.  I have no idea what else he might try.  I wish he would get help.  He's impossible.

I know you're trying to understand your son.  It's very obvious that you love him deeply.  You both love each other too.  I think the biggest thing you can do for yourselves is thank God you and your husband are friends and work on a relationship, a loving relationship together.  My God you both deserve it.  Hold hands again.  Just put your head on his shoulder.  He should put his arm around you.  Cry together.  You've done an amazing thing by staying friends through this.  You're both united and that's to be heralded.  Work on your relationship with your husband and enjoy your life.  You DO deserve it.  You do, you do, you both do. 

I'm all alone now.  My husband left me and the girls.  He has Asperger's.  :(
 

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