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Messages By: angieasmom

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September 29, 2005, 12:32 pm PDT

ASPERGER'S SYNDROME

The boy on the show reminded me of my son who has Asperger's Syndrome. Dr. Phil, PLEASE DO A SHOW ABOUT ASPERGER'S SYNDROME, PLEASE!!! THERE NEEDS TO BE MORE AWARENESS!! - For Asperger's Syndrome & HFA support & information please visit Asperger's Family Forum at --http://forums.delphiforums.com/asfamily/start
 
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September 30, 2005, 6:58 pm PDT

ASPERGER'S SYNDROME

Quote From: micasmom

I agree that it would be a great service to us all if there was a show on Asperger's syndrome. I recently found out about this syndrome and I feel like I have been set free! I got married over 23 years ago and my husband seemed much younger than he actually was. I noticed him doing strange "habits" over the years and many many odd behaviors. Then we had a son. I see Adams behavior in my sons childhood. My son acted very similar to Adam. I thought we were horrible parents or we were doing something "wrong". I took him to the doctor and he said my son had a sensitivity to red and yellow dyes. It may have been part of it. When he would have a fit...his ears would turn red, his eyes would glass over and he would be uncontrollable, then he would "pass out" for hours. It was so hard and frustrating. I thought I was going to go insane between my husbands strange behavior and then my sons. Over the years I noticed the same strange behaviors in my husbands family. They have the same stange "habits" only in a different forms and some have it more severe than others. The only reason I heard about Asperger's is that my brother-in-law told me his son was diagnosed with it and he thought he had it also. I had never heard of it so I went home and researched it. OH MY GOSH! THIS is IT! I cried all night long, because it was actually something. I was not insane after all. It was not me! Asperger's is what my husband and son has!!!LONG, LONG, story shorter.....We have a daughter that also has it but not as severe as the rest of them. I have read 20 books on it in the last month and would love to see a show on it. My son is now 21 and my daughter is now 11-1/2. It has and still is a very hard family to be in. I love them very much but it is still hard. PLEASE! Dr. Phil, do a show on Asperger's children AND Asperger couple relationships also.....Thank you!
Thanks for agreeing with me about an AS show. There are so many people that would love to see this happen. With so many people being diagnosed with AS we need to do what we can to raise awareness.My son (now 10 1/2) was diagnosed with ADHD at age 5 then that didn't seem to fit and was then diagnosed with AS at age 6, we too thought we were bad parents. And what a relief it was when we got the diagnosis of AS. It answered so many questions and filled in so many blanks. We also realized that his dad has it too, although he is undiagnosed. It definately is hereditary. I'm sure the reason that it doesn't seem as severe in your daughter is that AS seems to present a bit differently in girls. I actually just gave some interesting links on our forum to someone asking about girls with AS.I hope you can find your way to our forum it is a great place for information and support.The Jane Pauly Show actually had a show about AS but I don't think she has near the audience that Dr. Phil does. Take care,Angie~ASPERGER'S FAMILY FORUMhttp://forums.delphiforums.com/asfamily/start
 
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October 24, 2005, 8:24 am PDT

ASPERGER'S FAMILY FORUM

Here is an excellent place to get information and support regarding ASPERGER'S SYNDROME and HFA. Please Join Us!! Angie ~ http://forums.delphiforums.com/asfamily/start
 
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October 24, 2005, 8:27 am PDT

DR. PHIL ~ ASPERGER'S SHOW, PLEASE!!!

Dr. Phil, Please do a show about Asperger's Syndrome! We really need to spread awareness!!
 
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January 17, 2006, 8:12 am PST

Meds

Quote From: rlb101481

I think he needs to be on meds. When I am not on some kind of meds I can get wierd. Aspergers gives me some problems, but I prefer my problem to so called "Neurotypicals", or those with typical neurological funtions. Aspergers is what gave me my high IQ and my photographic memory. It is aslo what is giving me the analytical abiltity to become a Computer Electrical Enginer.  
Meds are not always the answer.
 
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January 17, 2006, 6:26 pm PST

Autism Spectrum

Quote From: autismdad

I have two sons with Autism Spectrum Disorder. Cody, who is 6, and Eric, who is 4. Eric is high functioning, and Cody is VERY low functioning. Two brothers on totally different sides of the Autism Scale. I believe that if Dr. Phil was to have an entire show on the entire Autism Spectrum Disorder, it will help alot of people and/or parents that may not fully understand Autism. It is a very interesting world they live in.
Now there is a great idea, a show or two, or even a whole week as far as I'm concerned, just informing the general public about ASD's. The Today Show did a week on Autism (when they should have done the whole spectrum) The show today really was not informative, the average person who has never heard of AS could get a wrong impression from today's show.I think Dr. Phil needs to call in experts like Tony Attwood to be on the show. I think rather than just focusing on one family a show needs to be done about people on all ends of the spectrum.Angie
 
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January 18, 2006, 2:12 pm PST

Don't take his stuff

Quote From: pepsicola

I have an 18-year-old son with AS. He is in his senior year, and during the second quarter he stopped going to school. He got anxious about one particular assignment, and refuses to go. He also refuses to talk about it. I don't know what to do. Should I take away all of his stuff -- computer, tv, etc. -- until he agrees to go back to school, or should I let him decompress. It's been a couple of months. Also, we feel very isolated and helpless. Do others have support groups?
Don't take away all of his stuff, that will only make matters worse. There has got to be more going on than one particular assignment for him to leave school and never go back. Have you talked to the school?We have a support group at http://forums.delphiforums.com/asfamily/start
 
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January 23, 2006, 8:28 am PST

New Show On ASD's Dr. Phil!!

Dear Dr. Phil,

This show was very incomplete, so many people on the autism spectrum and parents of children on the autism spectrum felt very short changed!

I think with the whole world crying "autism epidemic" you could (should) do a series on the entire autism spectrum. Maybe a once a week show?! It would be benificial to have experts, like Tony Attwood and/or Carol Gray. Even someone like Dawn Prince Hughes, author of Songs of the Gorilla Nation who is an adult with AS.

With so many individuals on the autism spectrum the general public needs to be made aware of all ends of this spectrum. People on the spectrum deserve to be understood and treated with respect, not cured!!

I think this subject is so important and there is so much information that needs to be shared with the general public. This could require more than just one 60 minunte show. Please consider doing another show or series of shows with information, helpful positve interventions and include experts in the field.

I also feel that a new show does not need to focus on just one family. It needs to be an informative show. I feel that with the show with Alex time would have been better spent if the brain scan would have been done on him before doing the show so that everyone could have known that he had a comorbid mood disorder. The show should have been done on a child with a single AS diagnosis. Now the general public has the impression that all households with children with AS are in complete chaos like the family on the show. This simply is not true!

Thank you,

Angie

Asperger's Family Forum

http://forums.delphiforums.com/asfamily/start

 
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January 23, 2006, 12:54 pm PST

Agree with Joyceymay!

Quote From: dissedmom

Thanks for the input.  I've tried all those things and STILL it doesn't work.  My Fiance says that he just ignores him and that I should do the same.  Unfortunately, it's harder for me to do since I'm the one with him all the time.  I'm told that i'm too picky, too strict, too excessive, etc... I guess my expectations are to high for this child to respect me, not lie, cheat, steal , be rude and totally bratty.  He through a fit in the middle of the street in front of some kids who asked him to ride bikes with him.  They had said that he stepped in dog poop and that he was retarded if he didnt think so.  He in turned flipped them off , called them names, came to the house and threw down his bike, stomped on it, screamed at me and these kids that he hated them and hated this place.  I told him to apologize , he screamed at me, started thrashing around and  I in turn took him in the house, spanked his butt, and told him his bike was gone since he didnt seem to care about it.   His Father, the next day, tells me that  I should let yesterday be done, and let him go and ride his bike.  UGH!!! His philosophy is that I hold too much of a grudge by not letting this child do something after a spanking.  He says that the spanking was punishment enough.  Am I wrong to ground him after a spanking?  Are my expectations too high for a 10yr old to act his age?

I have to agree with Joyceymay on this one. Spanking, screaming etc. only makes things worse. We are the adults and need to maintain our composure, set an example for the child. A child on the spectrum, or any child for that matter, is going to get more upset if their parent is spanking or screaming at them.

One thing you can do is to teach the child ways to calm themselves. They could have a special pillow that they can punch, bite or scream into to get out their frustrations. Or if the child is content by spinning or swinging or just being alone, you could implement a safe place for them to do this to calm down. Don't attempt to reason with or talk to a child having a meltdown (unless they are putting themself or others in harms way)they are not hearing you in a time like that. Touching a child in a meltdown is the worst.

Once the child has calmed down you can use a Social Story with them to help them understand the situation that upset them so much. Here are some links about Social Stories

http://www.thegraycenter.org/socialstorywhat.cfm

http://www.polyxo.com/socialstories/

This way the child can help figure out what would be the best thing to do if this situation ever arises again.

The best thing for our ASD children is to be patient and kind to them. Guide them and not punish them when they have a difficult time. Physical punishment should never happen.

Angie ~ http://forums.delphiforums.com/asfamily/start

 
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January 26, 2006, 8:29 am PST

WHAT??

 Dr. Phil,

I CANNOT believe that you told the family with the man with night terrors/sleep walking to lock the bedroom doors of their daughters to protect them. What were you thinking? That is so dangerous! What if there was an emergency in the night like a fire? And suggesting that they tie his foot to the bedpost??? WHAT?? That is also dangerous!

I think the best solution would be to have the husband sleep in a room alone until his terrors are under control (to protect his wife) and put a motion sensor in the doorway of the room he is sleeping in so that the wife can be alarmed when he leaves the room. This way nobody is locked up or tied up!!

My son had night terrors almost nightly from age 5-7, when he was 7 I saw a show on ABC News, I think it was Primetime and there was a mom on it with a child who had night terrors. She decided to keep a journal of what times the child was having the terrors. Then she would go in about 10-15 minutes before the usual time of his terrors and rouse him ever so slightly, just enough to interupt his REM sleep. We tried this and it really works, but only for people who have night terrors regularly.

Now my son, almost 11, has been having "mini" night terrors (not as bad as when he was younger, no screaming just still sleeping and upset) / sleep walking  and just recently sleep eating. We've determined that for him the trigger is seeing a scary image, on tv, in a book etc. The most recent episode we think was from seeing a scary dvd cover at the store.

My husband is goign to be installing a motion sensor in our son's doorway so we are always alerted when he leaves his room.

Angie
 

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