Messages By: katlover

If you haven't checked this out by now, you are missing out on good stuff!  A fellow fibromyte posted this Spoon Theory in a "You don't look sick" message board posting in ImmuneSupport.com.  She suggested that we look up Spoon Theory in the search engine.  I found it and read it.  It made me cry as I could understand that all she goes through I also go through, day in and day out.  Please, if you haven't read it already, do so.  Christine Miserandino's Spoon Theory is educational and touching!  http://www.butyoudontlooksick.com/spoons.htm  I hope Dr. Phil is okay with my posting this.  It will help many who read it!  Especially those trying to understand those with illnesses.  And especially those who feel guilty for dealing with their illness.  To have someone write something so powerful is so touching! 

Yours truly, 

Kristie : ) 

fight4acure! 

I too am a diabetic for 2 years now.It was a strugle for the past year my sugar levels were high even though I watched everything I ate..The first thing I did was a friend gave me a book and I highly reccomened it called " Sugar Busters" a must read book.I was soon to be put on insulin..I asked the doctor to give me 3 months...So I went on line to track everything ( ingredients) in food consumtion.what I found out was shocking....I found a site please check this out the site is as follows 

www.sweetpoison.com there I found the culprit and doctors don't tell you this stuff.My demon was aspertame...I was gaining weight,mood swings,elevated blood pressure,headaches,hair loss by huge amounts,loosing feeling in my legs,sleepy,tired and easily agitated.Well I researched  the website and I elimintaed all products that contain aspertame.My sugar levels were 235 to 300 very high.It has been 3 weeks now since I got off aspertame ,and every morning my sugar levels are 100 - 130 never higher I went off using aspertame of any kind, my hair has stopped falling out,the feeling in my legs are back and no more mood swings and best of all my sugar levels are normal.I use now as my sweetner STEVIA get the soooo lite stevia it taste just like sugar but never raises the sugar level,and it lowers blood pressure.I have in 3 weeks lost 15 lbs and I feel better than I did before being diabteic.Please people always research things NO body knows your body better than you.Please go to the website I have given you and you wil be totally shocked. 

Here is a list of things we can do together to fight injustice of discrimination of "invisible" diseases:   

1)  Join a support group.  In support groups there are often advocacy opportunities.  Two well known support groups are the Arthritis Foundation and Immune Support.com (onilne).  This also helps us deal with the stress caused by our illnesses.   

2)  Write to your clinics and let administration know how upset you are about how you were treated by specific doctors.  Give them details and tell them how you went through what you did and should have had to go through it.  If they do nothing, they open themselves up for a lawsuit.   

3)  Write to local newspapers about how the illness has affected you and others.  If they don't want to work with you on the story, go to them in person and have a one-on-one chat with them, telling them how important it is for you and others to get the news out about your "invisible disease."  If they turn you down, go to the next one, and keep your chin up!   

4)  Keep on writing to talk shows, telling them how important it is for them to do a show on your "invisible" disease.  Then pray that someone cares enough to do a show on this and have it done properly as well.   

5)  Don't let others tell you to hide the illness like it is some secret.  At work I will be silent, but not anywhere else.  People need to learn about this illness, and being silent and ashamed is not going to help us being continually labelled.  They need to hear that this illness is real.   

6)  Start walks or events to support research for fibromyalgia and other illnesses.   

7)  Talk one-on-one with researchers, and don't dare bite your tongue.  They need to hear exactly how it affects us, and exactly what we think that caused it.  Finding a cure is not only their job, it's our job too!  They cannot find a cure without US!   

This is all I can think of right now.  I'm sure I'll think of more later.  This should keep people busy, I hope!   

Without a plan, anger can backfire.  Please come up with a plan to attack the problem at it's roots!  

Yours truly,  

fight4acure