Messages By: bitburg

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November 2, 2005, 5:12 pm PST

Kids with Disabilities

Quote From: nichelle81

Well I just thought your words were a little judemental. and I dont abuse my kids. I HAVE apnked her with a belt YES, but its on rare occasions. Its mainly my "mouth" that is the issue. I yell alot. and I do say mean things. I dont mean them, they just come out because IM SOOO MAD. WHen savannah is doing something she isnt supposed to be I CALMLY tell her once or twice to stop. Then she just does it anyways and looks at me to see how far she can push me. After 4 or 5 times I get mad and yell. My kids have NEVER EVER had marks or bruises of any type, (maybe from playing) but not from me. And as far as I remember....Dr. Phil was looking for someone with PWS. Not a "typical" PWS family. Im not even sure what a "typical" PWS family is because we are all different. Wait until you see the other girl they are going to show footage of tomorrow. Thats not typical. I dont think. But that family does ALL they can to help her and she is still out of control. It is some pretty scary footage! Its sad to watch. I am going to a PHD therapist and getting the help that I went to the show for.

Hi Nichelle, 

  I was glad to see that you did a post on here. I want you to know that I personally emailed Dr. Phil to ask him to get you some help professional with your life and children. Now on another note. I am raising a child with Mental Retardation and Cp.. I know what its takes to raise a special needs child. I also can understand your frustration. I was pretty good at the regular parenting stuff, but then here came the big bang of a diagnoses. For me it was very depressing knowing that my child would not be like others. I asked for parenting classes on how to raise a disabled child and also got some professional theraphy to cope until I could figure it all out. I give you a lot of credit for getting the help professionally, I only know that is a good step in the right direction. It is not easy raising children period and then we find out about our kids having disabilities. Do you have a good support system in your area with true friends and family to help out??? I would like to keep writing if your interested. 

 
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November 2, 2005, 5:55 pm PST

11/03 Extreme Food Obsessions

Quote From: nichelle81

Well I just thought your words were a little judemental. and I dont abuse my kids. I HAVE apnked her with a belt YES, but its on rare occasions. Its mainly my "mouth" that is the issue. I yell alot. and I do say mean things. I dont mean them, they just come out because IM SOOO MAD. WHen savannah is doing something she isnt supposed to be I CALMLY tell her once or twice to stop. Then she just does it anyways and looks at me to see how far she can push me. After 4 or 5 times I get mad and yell. My kids have NEVER EVER had marks or bruises of any type, (maybe from playing) but not from me. And as far as I remember....Dr. Phil was looking for someone with PWS. Not a "typical" PWS family. Im not even sure what a "typical" PWS family is because we are all different. Wait until you see the other girl they are going to show footage of tomorrow. Thats not typical. I dont think. But that family does ALL they can to help her and she is still out of control. It is some pretty scary footage! Its sad to watch. I am going to a PHD therapist and getting the help that I went to the show for.

Hi Nichelle, 

   I was able to see that you are from Michigan I just moved from their to Idaho. I want you to know their is a lot of services their for children with disablities. I also want you to know that my son who has cp and mental retardation. Is a joy to me and has taught me many life lessons. If I had it to do over again I wouldnt change a thing. If you need help with services in the Michigan area let me know. I will do my best to help you. I feel like not only are you struggling with your children, but might also be struggling with some of your own issues as well. So good luck in your theraphy and stick it out. It does work if you use what is recommended. 

 
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November 3, 2005, 7:39 am PST

11/03 Extreme Food Obsessions

Quote From: nichelle81

Thank you so much to all the people who posted messages here for me. Nice or mean I have taken the time to read everybodys opinion and take all said into consideration. I apologize that I said the kids were brats. They just act that way sometimes, I DO Love them and Ill do my best to handle the situation. I should not have been so negative in my postings...I guess I was just blown away by all the meanies who hadnt even seen the show yet. Thanks so much to the nice, positive, people who left such great messages. It IS appreciated. "you get more flies with sugar then with vinigar" (not that anyone wants flies! but you get my point! :)Thanks again to everyone. 

 

Sincerely, Nichelle 

Hi Nichelle, 

 I saw you were on here this morning. I just wanted to let you know, also that you can have your daughter tested in the school district you reside in for her developmental delays. If she qualifies for services they will provide pt, ot, speech and language and developmental assistance at no charge to you. They have to provide this by Federal Law. I believe its public law 94-457 being that she is not school age yet . Even if she is you still have the right to get her tested and placed in services. I thought this might help some. Or you may already know. I am not sure. But I believe that if us moms stick together and help each other thats a really great way to be. Also alot of services are out their and you dont know it because no one tells you. I have learned most of mine by parents and going to Nichy and printing out my state resource sheets everytime I move.  Well I hope this will help. Take care and keep working hard.  

 
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November 3, 2005, 3:40 pm PST

11/03 Extreme Food Obsessions

Quote From: missyp618

    Hi , my name is Melissa and I have known Nichelle for over nine years. We have been through so much together that when she told me she was going to appear on the show I supported her when others criticized and ostracized her . I was there when she met Savannah's dad. I was there when she went on her first date. I was there when she foud out she was pregnant. She was in my wedding and helped me in the worst of times. Nichelle , the person you saw on Dr. Phil today knows she needs help. The Nichelle I know has an extremely hard time admitting it and I applauded her for getting the help (which let me inform you she is). 

    I have almost 5 children . One has autism with developemental delay and Verbal delay due to the hospital he was being born at screwing up in the labor process. I know what she deals with. Her and I handle things differently of course all people do, but, noone on this board has lived with her for a time, known her for as long as me and has seen the things she does exceptionally well.i lived with her and Savannah for a time about 4 years ago.Nichelle was doing it on her own and doing well.What you saw is the worst of it. Noone saw how she freaked when Savannah fell and hit her head and I had to go get to to rush to the ER. (She was with her Grandma when it happened before you think ill and she tripped.) Nichelle freaked all the way to the hospital, almost passed out when she had to see her daughter get stitched up and cried and cried that she should have been there. Though she was working at the time and couldn't have been. 

    You haven't seen the Nichelle who holds her daughters head high by telling her how beautiful she is. She tells her her smile is the best and encourages her in many ways, brags about how well Savannah does in school and rarely ever  freaks out. I agree she takes it to a point sometimes, but how can anyone judge when she is going for help and is in fear of losing her daughter now that family members who have never been there, have turned their backs. Can you imagine being in her shoes?  

  My developementally delayed son is my bright light. He has taught my whole family things we didn't know were possible, he is such a gift that when I think of it I cry. I almost lost him at birth and know how hard it is to know you can't change things, only try to help. Do I get frustarted? Yes. DO I get sad? yes. Do I cry ? yes. Would I take him back ? Never , never , never !  

    Be proud of Nichelle for somethings. She never has had government help.Her and I have this in common. SHe doesn't blame anyone for what happened to her Savannah but tries to help her. Even if she has a few issues, we all do. The people who love her and love her girls will stand by her and try to help her. We will do what we can for her. I know what you saw looked so bad but remember you didn't see the Nichelle some of us know so well.....  

Hi Melissa,  

   I am glad that you wrote about your friend Nichelle. I could so relate with her today when she said she was in denial. I was to in denial about my son who is Mentally Challenged and has CP. Some people do not understand that just because a child is 6 that does not mean their brain is at a six year old level. I have had many challenges with my son and he is now 17 the challenges are now rolling over into adult life. I am from Michigan originally and would like to keep in touch with Nichelle and you as well if you would like. Just as a support for Nichelle and her family. I just moved from Michigan about three weeks ago and know that their are lots of different support groups for her to look at besides Prader- Willi association. So she may want to get in touch with some of the other ones as well. The more supports she has in place the better off she will be. Also please encourage her to use every state or federal program their is out their for her daughter. Michigan also has a respite program as well. I would like to keep up with Nichelle and Savannah's progress. Thanks for being her supportive friend we all need them when we go through life regardless the situation. My email is Bitburgpils82@crossno.us Once again thanks for listening. Sandi 

 
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November 4, 2005, 11:05 am PST

Regarding NIchelle and Savnnah

Quote From: k_adderley

Nichelle, 

In my opinion, I think that you are totally letting your child get over on you. For one I understand that you are a single Mother of two and you are only 24, but let me tell you something. I am am also a young Mother of two. I am only 21 years old. But, I feel like this if you really want your daughter to stop going on like she does then you need to buckle down and get yourself some guts! I totally understand that it is hard for you to deal with your little girls violent tantrums but, as a parent sometimes you have to go through a lot just to get to where you want to be. Eventually she will get tired of throwing her tantrum and calm down and if its that bad put her in her room until she can calm down. See my kids are one and two yrs. old perfect ages for throwing tantrums but, I can assure you that they NEVER carry on like that because I made it clear that I am the Mother and when I say no, thats what I mean and there are no if -ands, or buts about it!!  Somewhere along the line you need to teach your daughter self-disapline and you also need some yourself! No one ever said that being a parent was easy. Let me break it down for you.........no, I am not a single Mother but, I am the one who is home with my kids all day long and i teach they right from wrong eventually you need to teach you daughter that NOBODY in this world gets everything they want just when they want it. But let me also say this if you dont feel like you can handle your childs tantrums just that much try changing what she is eating. You are the on in the house buying the food so buy healty food change your eating habits and change hers. Instead of eating chips for a snack and getting mad when your daughter is right there ready to eat some with you why not try eating fruit for a sncak or something like that. In my opinion your whole situation is all about self-control and you need to get some and install it into your daughter. Cause let me tell you anytime there is something in here to eat or drink my kids want if I say no, I dare them to act up, you really have to get on you daughters level and let her know whos boss! To me it looks like right now she thinks she is, she is 6 yrs old and I can promise you she knows that if she wants something and you tell her no all she has to do is throw a fit and she knows she will get. My two year old is smart enough to know what to do to get what he wants so I know she is. You shold have nipped whats going on in the bud a long time ago, and if you dont get some self control to get her where she needs to be it will only get worse.  

I to do not agree with the bad name calling or spanking with a belt or hitting in the face. But I do so understand how Nichell fills with the frustrations of a child who is developmentally delayed, speech delayed. My child does not have pws, however is Mentally Challenged and has Cerebal Palsy. So I can understand the tantrums, no speech equals frustration for you child. Being six and having your brain not six equals, I am struggling.  My son did not have clear speech until he was eight years old. He is now 17 and he speaks well if you listen, however; due to some people not taking the time he becomes frustrated with them. He is behind but still thrives. He has more nerve at fighting for what he wants to do with his life more then most people I know. He will always need services to thrive on his own and owe yeah how would you feel if  your child was moderately hearing impaired and he had a ears nose and throat check up every year. But they said his hearing was normal and then found out in eigth grade he needed hearing aids both ears.  We found out that the reason he passed his test if because he learned to compensate by reading lips. So now I am glad a doctor took the time to listen. He is hearing sounds he has never heard before. So my point is dont judge anyone in till you have walked in their shoes. We all with disabled children deal with different issues. And I am here to tell you no two families are a like and no two children are alike with the same disablities.  Thanks for listening
 
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May 30, 2006, 5:17 pm PDT

Victory and Hunter,

I had to write just to say. I am so appalled at their mother, I could have come through the tv set. First off I have a son the doctor told me would never learn, has cp, and speech disablities. I would never ever think one moment about miss treating him, I know how hard it is  growing up in todays society. I treat him with Love, Encouragement, understanding and compasion. That's what a real mom would do to help their child be able to make it in todays world. Because of my positive parenting he is graduating highschool, has ran track, manage a basketball team and graduated from a leadership academy, and yes we are talking about a child who everyone thought nothing about to give him a chance in life. Personally, who the heck cares what anyone else thinks. People like that dont deserve to be parents. Unfortunately your not investigated or interviewed before becoming a parent in todays world. Also, wanted to add I married a man who is big and successful. Everyone asked me why would i marry him because he is fat. I told them your ignorant and dont look pass the flesh and thats not a good way to be. For me I looked at what was in his heart and his kindness. I do not need to be superficial in todays world. Life is to short to be judgemental. Being I got that all out of my chest. I thank you for your time. 

  

sandi 

 

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