Messages By: pedsotr

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November 2, 2005, 8:36 pm PST

11/03 Extreme Food Obsessions

Quote From: bitburg

Hi Nichelle, 

   I was able to see that you are from Michigan I just moved from their to Idaho. I want you to know their is a lot of services their for children with disablities. I also want you to know that my son who has cp and mental retardation. Is a joy to me and has taught me many life lessons. If I had it to do over again I wouldnt change a thing. If you need help with services in the Michigan area let me know. I will do my best to help you. I feel like not only are you struggling with your children, but might also be struggling with some of your own issues as well. So good luck in your theraphy and stick it out. It does work if you use what is recommended. 

First of all spanking with a belt is abuse. I am a therapist that have worked with individuals with Prader Willi. I am finding it very hard to beleive that your child was not diagnosed until recently, and where is her support system from school or her doctors. she should have a dietician and behavior specialist or have you not look for that level of help. It is clear that you need help- especially since you call your children brats. besides being a therapist i also have a child with diabetes and know that being a good parent involves monitoring and controlling food and following the proper protocals. I am hearbroken for your child because you have allowed her health to reach this crisis.
 
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November 2, 2005, 8:43 pm PST

11/03 Extreme Food Obsessions

I truly hope that Dr. Phil is going into the fact that people with Prader Willi have many other complicated issues besides lack of hunger satiation, most have Mental Retardation and with the proper tratment plan there is no need for them to be unhealthy. This disorder is not an eating disorder and I quite frankly do not think it should be on a show as the opposite extreme of anorexia. I have been working with children with special needs for over 20 years and as much as I love Dr. Phil I am very concerned with the show preview I saw. I am also sickened by this mothers postings on the website about her "brats". Maybe she learn what birthcontrol is.
 
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November 2, 2005, 8:50 pm PST

11/03 Extreme Food Obsessions

Quote From: joyceopp

 Nichelle:

I am sorry if my words upset you.  You need to understand that just because you feel that your situation is "the way PWS IS" does not make it so.  Your situation is tough, no question, but the way you have chosen as the adult to deal with it is abusive and wrong.  All I am saying is that there are many, many PWS families out there that deal with the situation without abusing their child.  It is NOT easy for them either, single or not and many of them are. 

The only reason we are concerned is because your kids need you to be the grownup and handle the situations responsibly and our children with PWS do NOT need PWS to be portrayed by a family that is totally out of control when we spend every waking minute trying to handle our indidividual situations with maturity and control.

I am sorry, but you are NOT the right person to portray the "typical" PWS family at this time.  I do think that you can be and hopefully with Dr. PHil's help you to be an in control adult when dealing with your own situation.

As one PWS mom to another, I applaud you for getting help and wish you the BEST of LUCK with learning to control your temper and anger. 

Joyce
I agree joyce it is truly too bad that the first info. many people will get about PWS will be from this seemingly ignorant, immature child who happens to have given birth twice. I can only hope that Dr. Phil yanks a knot in this mother tail, and saves her children.
 

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