Messages By: jucrespi

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November 3, 2005, 7:30 am PST

Living with PWS

My daughter also has PWS.  She will be 12 in a couple weeks.  While we do have our  "moments",   for the most part, she is a wonderful kid - smart, funny, compassionate, helpful and extremely determined to be like other kids.  It's wonderful to see her face light up when she has finally accomplished a task that maybe other children just take for granted.  But then I have seen her succeed at other things that other kids haven't mastered yet.  Patience and unconditional love is what makes this all work.  Having everything locked up and structure helps too!  God bless and know that you are not alone in having a child with PWS.  

  

  

 

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