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November 3, 2005, 1:14 pm PST
Sister of Someone With PWS
Quote From: nichelle81OK, first of ALL... until recently I did not know what my daughter had. Second of all, your son is ONLY 21 months....you have NO clue what the future holds for you with a child who has that disorder. Savannah has terrible fits of rage, violent outbursts, and screams bloody murder when she doesnt get her way. DEAL WITH THAT!!! you havent seen anything yet. Im a 24 year old SINGLE mom with 2 spoiled little brats. I try to do the best I can. I DO spoil them sometimes because I love them, but its taking its toll! NO ONE who knows me will EVEN watch my one year old. (she was born a mamma's girl and a screamer!) IM ALL ALONE. I went to Dr. Phil for help because OBVIOULSY I felt I needed it!!! Can I get SOME credit?! People dont air their dirty laundry JUST BECAUSE! Do you think I want the whole world to think Im a jerk?! NO, but I DO Know I need help with dealing with my daughter. I cant handle it by myself. Dont come down on someone that had the nerve to even come forward! its a good thing! I HAD THE "BALLS" TO SAY ON NATIONAL TV WHAT EVERY OTHER FRUSTRATED PARENT IS THINKING, AND I WASNT SCARED!!!! be a jerk if you want, but i think I just opened up a whole can of worms...youll see. TUNE IN!!!!
Nichelle, although I am not a parent of a PWS child, I am 28 and the sister of a 27 year old PWS woman. I was struck by your comment that "she knows that she shouldn't do it" as it resonated within my own experience. I know that when I was younger I often had that frustrating thought again and again, but only found it to be paralyzing. It was an easy out that made me feel OK about any bad behavior I'd exhibit toward my sister. I am not always proud of how I maneuvered myself in my relationship with her in the past and harbor much guilt about it. I am lucky compared to you, however, I was just a child and did not have the tools to always deal with her in a positive way. Now that I am an adult, I am trying to reconnect with her in order to realize the full potential of having her as an incredible force in my life. Don't misbehave now to regret it later.
I absolutely sympathize with you and cannot begin to pretend that I know how it feels to be the mother of Savannah. I wish you strength and education in order to successfully deal with your life long journey. Take a Learning and Behavior course at your local community college or even just buy a text book over the net ( a great, easy to read one is : Learning & Behavior by Paul Chance, it's out in its 5th edtion right now, ISBN 0-534-59868-4). If only I had known then what I know now. There are so many ways to curb her unwanted behaviors and have peace in your house.
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