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November 3, 2005, 1:41 pm PST
PWS
Quote From: stuffedowlNichelle, although I am not a parent of a PWS child, I am 28 and the sister of a 27 year old PWS woman. I was struck by your comment that "she knows that she shouldn't do it" as it resonated within my own experience. I know that when I was younger I often had that frustrating thought again and again, but only found it to be paralyzing. It was an easy out that made me feel OK about any bad behavior I'd exhibit toward my sister. I am not always proud of how I maneuvered myself in my relationship with her in the past and harbor much guilt about it. I am lucky compared to you, however, I was just a child and did not have the tools to always deal with her in a positive way. Now that I am an adult, I am trying to reconnect with her in order to realize the full potential of having her as an incredible force in my life. Don't misbehave now to regret it later.
I absolutely sympathize with you and cannot begin to pretend that I know how it feels to be the mother of Savannah. I wish you strength and education in order to successfully deal with your life long journey. Take a Learning and Behavior course at your local community college or even just buy a text book over the net ( a great, easy to read one is : Learning & Behavior by Paul Chance, it's out in its 5th edtion right now, ISBN 0-534-59868-4). If only I had known then what I know now. There are so many ways to curb her unwanted behaviors and have peace in your house. I am not the parent of a PW child and really don't know much about the condition. But I did work for a man whose son does have PW and I was and still am amazed with the training he gave his child. Rick is now over 20 years old and lives away from home. When I first met Rich and his son Rick, Rick was 15 and the normal weight for his age. He did not eat constantly and his parents controlled what he ate and when he ate. He was always to leave food on his plate and to leave drink in his cup. I know there was a constant fight with Rick on this and they had to padlock the frig and freezer. And even put sensors on his bedroom door. Rick was never abused and seemed happy. I keep telling Rich he needs to write a book on how he raised a happy, normal weight PW child.
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