Messages By: heyjewel

Quote From: chirodoc2b

After you watch the show, you will know, this is not the same thing.  A brain disorder isn't the same thing as other types of obesity.  Read Kevin Trudeau's book "NATURAL CURES THEY DON'T WANT YOU TO KNOW ABOUT."  It explains a lot about the fillers in our processed foods that cause people to eat more, and more, and more.  I had a friend who traveled to her homeland last winter for 3 weeks.  She ate overseas exactly the same way she eats here in the U.S. and LOST 20 pounds!!!  Many countries WILL NOT import our foods because of all of the GARBAGE allowed in it like Hormones in our meat to cause our animals to grow faster...why wouldn't those same hormones cause our children to grow faster?  Common sense, guys!  Those with the gold rule and they can afford the lobbyists to allow it!!!!!!!!!!!!!!  Read the book and wake up!!! 

  

As far as this disease, it is a disease, Dr. Phil even said IT HAS NO CURE!  Therefore, the best we can do is help this young mother learn to cope with the disease and be the best they can be!  She does not need to feel guilty.  She will do better with the help she is getting and she will be able to make educated decisions concerning the care of her daughter, even if it means allowing someone else to help her!   

If you have never walked in her shoes, keep your mouth shut and your ears open!  God gave us 2:1, to listen twice as much as we talk!!!!!!!!! 

Dr. Debra 

Quote From: jalyn4wilh

Also,  

I agree with the people who say stop buying junk food.  Sometimes genetic disease are made worse by the environment. You should be reading up on what food research has shown alleviate PW Syndrome.  I thought I heard something from another parent about not eating any dairy products or maybe it was only dairy products.  Reward your daughter by feeding her.  My professional advice is that she always have a cold bottle of water (so she feels full) or milk and a box of a dozen popsicles a day is not going to hurt her.  Tell her she can have unsalted homemade potatoe cubes but  ask her if she first will drink a full cup of kool-aid and then ask her if she wants another, before she can have the potatoes.  Something where you used healthy foods to reward her.  Plan ahead that you will have to feed her veggies and sandwich halves 12 times a day.  

  

I'll go to the university library and research you conditions myself..It may take a week, but I will post my finding. 

  

Please feel free to add me to you mailing list, and contact me some time.  Your path is right up my alley. 

  

Jaclyn

 

Quote From: wiseant

 Today, after watching the Dr. Phil show, was the first time I had ever heard of PWS.   I started to wonder if it was possible that my 13 year old daughter could have this disease because she seems to have an obsession with food and would eat constantly if I did not limit her.  She is overweight and nothing seems to deter her desire to eat.  I have had her tested to see if she had a thyroid problem, something I have, and was told that she was fine.  The difference in her behavior compared to the children on the show is that she doesn't become quite so angry  and upset when she is denied food so I'm wondering is there a degree of severity?  In other words, could someone, say, have a trace and is this something that developes over time or do the symptoms present themselves early in a child's life?  I hope this isn't a silly question but I'm  so worried about my daughter.   She is close to 200 lbs.  We have a membership at a gym, she plays sports but is not very active otherwise.  Also, she doesn't have any of the developmental issues the children on the show have.  That's why I'm asking if it's possible there could be a trace of the disorder without it being full blown.   Any comments will be appreciated.

Quote From: pwmommy

This is the first time I find myself inclined to write to a talk show, but, given that I have a very personal connnection with the issue, I suppose it is not surprising.  Watching Michelle's pain come through was horrific - I don't condone the coping techniques - but she clearly stated that she wanted help.  I found out my daughter had PW when she was three and my reaction was to take a garbage bag and empty the entire contents of my kitchen into it!  I have not always coped well, but I did get help from some amazing professionals.  My daughter is now 23 and is 125 pounds.  She is awesome.  Although I realize that Dr. Phil was probably trying to shock treat Michelle by showing her Mirabelle's story, I was pretty angry that he could did not take the trouble to find a different scenario to show her, to give her hope.  I was just as distressed seeing Mirabelle's tape as I was seeing Michelle's.  Although I have no doubt that the family love Mirabelle, I did not see alot of evidence that she had been given many coping strategies or that her environment was very encouraging for other's to see.  Believe me, that is NOT the way it has to be. 

  

Michelle, please know that your daughter does NOT have to be obese, she can be taught to react appropriately and she can find her place in society.  But, it does require compassion, patience and love on your part.  It does require that you realize that she may hear what you say, may seem to even understand your rules, but that does not stop the impulses.  You have to teach her ways to cope that are realistic and you have to give her an environment that lends itself to helping her use her coping strategies.  She will require constant supervision, a group home environment when she is older - but she can have a great life and so can you. 

  

In all of this, please don't forget about your other child - of which little was said.  They too, deserve compassion, love and patience and they too, need to learn to cope with and love their sibling. 

  

Take heart, this is the beginning.  It was indeed brave of you to come forward, but the world is now watching to see where you will go from here.  I would love to find a way to help you.  I certainly would never presume to judge you - especially since we only knew you for 30 minutes. 

  

Diane 

Quote From: jesland

My brother has PWS and is 37 years old.  He is currently 4'10" and 140 lbs.  That is not "skinny" but it is healthy.  Jon has been in his own apartment living "independently" for over 10 years.  I go to Jon's apartment about 2-3 times a day to set out his meals which are in a locked fridge.  I do all of his money management and food shopping, of course.  Jon is happier than he ever has been and I know fully functioning people who aren't as successful as Jon is at living independently.  He is one of the most inspirational people I know and even though there is a "team" of people helping Jon to live on his own, Jon is the one ultimately determining his success.  A supportive, loving family is key to these individuals...and most importantly, PATIENCE!!!  Prader-Willi people can be successful when given the right tools.   Jesland