Messages By: deedee1966

Quote From: jerrydavis

i am the father  of a 12 year old boy logan he has pws i could feed him a 10 course meal of steak and salad and when his plate was empty his response would be one more bite please. pws also has a real down side effect in that he does not develop lean muscle so he cannot metabolize calories. he must observe a very strict calorie limited diet he has 200 cal for breakfast 100 cal snack at 10am 200 cal lunch 100 cal snack at 4pm and 200 cal dinner. 800 cal a day or he puts on a pound for every 3000 he has in excess. the answer is not to let them put on weight because you have to starve them to get it off. the behavior you saw is some what typical our biggest battles are fights over food. you as a caregiver are limited to the same menu and portions or he feels you are cheating him. you must keep on schedule or he stresses about when he will get his food. his ocds are at times enough to drive you insane he repeats the same question over and over like a scratched record. you cant tell him an event in advance unless that is all you want to talk about till then. logan is soooooo cool he is my best friend he has a love for every one around him and cannot stand to see someone un happy he will hug a stranger, tell the cook at the restaurant thanks for the food, and greet every one with a smile when he has a melt down he feels so bad for often they become violent he feels so bad and cant get over it until he has the reassurance that the relationship is OK. I'm not gonna kid you this is the hardest thing i have ever had to do. to keep your cool when hes out of control is hard. this takes so much patience and time and money. i wouldn't trade him for anything in the world