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Messages By: outofmymnd

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March 13, 2006, 5:05 am PST

Still going strong

Quote From: the_indian

Thanks so much for your update!  And that is indeed good news. 

  

Of course, I simply can't resist one more chance to give my free advice :) 

  

If I were you, I'd keep it simple.  The most important thing this girl needs right now - in fact, ASAP - is a peer support group, presumably NA.  For the short term, it trumps any kind of "professional" help.   

  

I know you've been through a lot of this yourself, so I don't know if you feel that Al Anon would be worthwhile for you.  But I'd definitely recommend that your daughter get involved with Alateen or Al Anon.  There will be bumps along this road, and your daughter deserves support as much as anyone else in dealing with them. 

  

Anyway, do keep us posted and good luck with all this!  You're off to a great start! 

Hi Indian, 

  

I just wanted to pop in and give you an update on the situation.  So far, my daughter's friend has NOT gone back to the drugs!!!!!  She is still clean, and has been tempted so many times, but is staying strong!!!!  We are so proud of her, she did it all on her own!!!!   

  

Now, we are working on her mental health....she really needs to get out of that house.  I would be willing to take her in, especially now that she is clean.  However, it looks as though we are moving in a few months to another city about a 4 hour drive away.  I don't want to invite her in, and then say "ok, you have to get out now so we can move", then she will be really stuck.  If she needed or asked for a temporary place to stay, I would definitely bring her in.  I guess it is another "wait and see" situation!! 

  

Anyways, I just wanted to let you know how well she is doing, and say thank you again for all your help!!!!!   

Take care, 

Tammy 

 
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December 26, 2006, 5:31 am PST

A bit of Self Pity Maybe??

Hi everyone,

 

It's been a long time since I have been here, on the boards that is, but I came back because I need some help.

 

When I was younger, I was a rail...literally.  My largest was 130.....now, I can't get down below 180. ( I am 5ft7in tall)  There are a lot of things that have contributed to my weight, first was getting pregnant with my 2nd child.  I was considered to be a "high risk" because I had my first at 31 weeks, and she weighed in at 2lbs, and I only gained 10 lbs.  My 2nd, I gained 50, he was only 6lbs of that.  Since then, I have been overweight.  I also got really sick about 6 years ago now, and it took a long time to determine what I have.  There are a number of conditions, none of which I will bore you with, but these conditions keep me in constant pain....24/7, among other problems. I am finally on medications that are starting to help, but it still prevents me from anything physical, I pay dearly for what is classified as normal for most.  I can accept the illness, I have no choice...the pain is  a constant reminder.  I have tried to accept myself for what I am now, but it just is not good enough.  I don't want to look this way, I don't want to feel this bad about myself anymore, I don't want to avoid mirrors or the cute little clothes that I was able to wear at one point....I want to wear them again. 

 

My dilemma is simple....how do you loose weight when you can't exercise?  I can change my eating habits, but you can't loose by not exercising, and I can't without putting myself in a severe flare up, which will keep me immobile for days.  The medications that I am on can only do so much, I can't depend on them to keep me going....I have to "pace myself".  Even vacuuming is out of the question. 

 

I do hope that there is someone here that is in the same boat.....and has the same issues.  I need some insight, and I definitely need someone who has some suggestions, or can offer anything that may help.  I have Dr Phil's book, but I got frustrated as it doesn't touch on the issues that I have, at least not what I have read.  I am however going to the bookshelf where it has sat for a few years. 

 

My almost 18 year old is also overweight now, and I am afraid that she is following my footsteps, she shows signs of having the same conditions as I do, and I want her to stop her destructive behaviour before it is too late......at least the weight anyways.

 

Looking forward to hearing from someone that can help!!

Tammy

 
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December 26, 2006, 6:12 am PST

Finally!!

Hello everyone,

 

I was reading through the posts and I am thrilled (should I use that word?) that there are others lke me here.

 

I am 36, and got sick about 6 or 7 years ago.  It took 4, almost 5 of those years to figure out what is wrong with me.....I am sure there are others that had to go through the "it's all in your head" scene.  I was finally diagnosed with Chronic Fatigue Immune Dysfunction Syndrome (CFIDS or as some refer to it, ME), Myofascial Pain Syndrome (a form of Fibro), Restless Leg Syndrome (RLS), Irritable Bowel Syndrome (IBS), and most recently Raynaud's.  I may have left something out, my memory is gone too.  I am in constant pain, some days worse than others of course. 

 

I recently (about 3 months ago) started to take Mirapex, among other medications that I have been on for about 2 years.  The Mirapex has done wonders....I still can't work outside the home, but have recently started a business at home that is going very well.  At least this way, if I can't work, I have an understanding boss!!  LOL  I am trying to loose weight as well, which as you know, can be very difficult with these conditions.  Between meds that make you gain, and being bedridden for some time (even in a wheelchair at one point), it seems an impossible task.  My Dr. wants to get me through winter (I am in Southern Ontario), and then we are going to look at getting rid of some of my meds.  Scary thought....

 

I would so like it if there is someone here, that can just understand what it's like.  I have good days, really good days, bad days, and really bad days....such as today.  Christmas is a hectic time, and we all know that isn't good for Fibro.  I have been in a "flare" for a few days now, despite my best efforts to avoid it.   I hate the way I feel today......talk about a pity party!!  SHEESH!!

 

Would love to hear from others in the same boat, maybe offer each other some support. 

Happy Holidays!!!

Tammy

 
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December 29, 2006, 4:33 am PST

Thanks for the Welcome!!

Quote From: nextdrphil

Hello Tammy!

 

Welcome to the board! Everyone around here is very friendly and caring...and we've all had our shots just in case we aren't. lol j/k

 

Feel free to throw ur pity parties here. Everyone does from time to time. :

 

I'm Rebecca by the way. I'm 18 and I have "chronic pain syndrome"

 

Becca

XOXO

Thanks so much, it's nice to know I have a place where I can go and it's ok to feel sorry for myself once in a while!!  I try not to throw too many pity parties, I don't want to get back down in the depression again, but my God....how much is one person supposed to take??!!!!

 

I am sorry that you are so young and going through so much......since being diagnosed, it has shed a lot of light on the unanswered questions from my childhood......looks as tho I have had at least CFIDS/ME since I was small. 

 

Thanks again,  look forward to getting to know everyone!!!!

Tammy

 
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December 29, 2006, 4:39 am PST

Thanks!!

Quote From: pickles

Hi Tammy,

Welcome to the board. You will feel quite at home here as there are quite a few people your symptoms.

I also - like you - have a very very understanding boss. ME! I live in South Africa right opposite the airport. The highway separates us and at night times when they are refueling our windows rattle in their frames - one day the glass will break LOL!

The last few weeks I have just not felt like working and in my line of work (accountant) I have to 101% fit. The worst pain that I have is in down my arm from 3 ops for rotator cuff syndrome. Some days it's not as bad but the ache is always there to remind me that I'm not a youngster anymore.

We all understand the pain that you are going through.

I have been on heavy medication for depression for going on 15 years now, since I gave up drinking. I am an alcoholic. I asked the doctor if I could cut back on the meds but he advised heavily against it. So I get a script for 6 monthly repeats. He has tried other meds but I still go back to the ones that I know work for me. I have to admit I am supposed to take 3 tranquillisers a day but only take 2 at night otherwise I'll be in bed all day - they are strong. I do a lot of sitting (no exercise excuse me - I'm lazy -only run down to the loo about 4/5 times a day and back and that's my exercise for the day. But as we get older it's always harder to get the extra Lbs off. I am slowly getting there by eating less sweet things and half a plate of supper or lunch and that seems to help. I have now lost in a week 2kgs (about just over 4 pounds!).

Sorry I couldn't respond to any of you queries but I think that I can relate to the ME, which I have suspicions that I may have but I'm not paying a doctor to tell that to me though.

You will find a lot of comfort on this message board. We are a little family  and it's good to have a male on the board BUT BE WARNED lol!

Welcome

Pickles

 

I thank you for the welcome.....it's nice to know that there are more people that know what I am going through. 

 

And, I wouldn't call it laziness, I know for me it's just easier and less painful most days to just sit instead of getting up......which can cause a heck of a lot of pain.  I am still flaring up, and now it's getting worse again.  My husband's car caught fire yesterday, with him barely making it out.  Now, not only am I dealing with the thought of almost becoming a widow at 36 (I know, he's ok, but the thought is still there) but now we have to deal with being down to only 1 car again, and how we are going to get another.  The insurance company isn't sure if it's covered, apparently if it's a "maintenance" issue, it's not.  This is the last thing we needed......seems like we take 2 steps forward, and 4 steps back!!

 

I do hope 2007 is a better year!!!!!!

Thanks again,

Nice to meet you, hope to talk again soon!!!

Tammy

 
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January 9, 2007, 4:03 am PST

Thanks!!

Quote From: terriwins

If we focus on what we can't do, we have a hard time seeing what we can do.  It sounds like you want to be physical.  Well, go swimming.  I know a bathing suite may not be the choice piece of clothing right now, but remember it is about you not the idiots that might think or even say something to their idiot friend who is willing to listen.  Is there any other reason that could keep you from the pool?  Many people lose weight without exercising [not that I recommend it.  I guess the thing to that is realizing that our body doesn't need much if we are just sitting around all morning, evening and night.  There is a lady that lives my me that is overweight and has a pin in her knee and other stuff [plus she smokes and she gets around in a skooter.  I see her walking outside once in a while, even though it hurts.  I am not telling you to suck it up and go for a walk.  I am saying each person knows [or should know their limit.  If you are within yours and know it [truthfully in your heart, then stop feeling guilty about your activity level.  Remember there are bed ridden people that lose weight.  Most are probably either too ill to eat, have their food controlled or in a coma.  The don't have a choice.  You have a choice as to what and when and how you eat.  You can do it.  Search deep within and find out what is going on there.  If you try to deal with this at the surface and success will only be temporary.  Enjoy Dr. Phils book.

Thank you, writing you encouraged me.  I hope I was of some help to you.

Regards, Terri

You are right, I know you are.  I do eat too much, for the amount of exercise that I do get, and it is usually junk as well.  I also have a lot of gingerale because my medications create extreme nausea.  I know what I have to do, I just don't know where to start or how.  I do hope I can get the encouragement, and maybe a little motivation too, from these boards.

 

Yes, you did help, and I am so pleased that you were encouraged in writing as well. 

Thanks again!

Tammy

 
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January 9, 2007, 4:30 am PST

Well Well.....

Quote From: ont_mom

I'm new here in posting. I can sure relate to " Outofmymnd" .  I also have Fybro living in Northwestern Ontario. You sure picked a great nic name here. I feel that way myself for the most part. I have yet to find much that helps other than reducing Stress. Ya ok! so now to figure out how to do that.  Being a divorced  mom raiseing 3 kids ( 2 now grown tg ) and the last one with Chronic Pancreatitis, had a nephrectomy and has a block on the other kidney. She also has migraines almost daily. This in itself is about enough to drive a person over the edge,,, lol but somehow we seem to get through each day. There seems never to be time to take care of my own medical concerns. Its nice to beable to post where others have simular chronic pain problems.      

 

Isn't that weird, I live in Ontario as well!!!!  I was actually born and raised in NorthWestern Ontario but now reside in Southern Ontario.  If you ever find a way to reduce stress, please let me know.....or better yet, patent it and sell it, you would make a fortune!!!!!!   I HATE it when we are told that, to me that is just a catch all answer for everything.....it's a cop out on behalf of the Dr.  I am on a medication "cocktail", that is finally actually starting to do some good, to be honest, it has been miraculous.  I am not by any means back to normal, whatever that is.  I doubt I ever will be to be honest, but at least now I can walk on my own, without a wheelchair or walker.  I can get out of bed even on my worst days, instead of not even being able to feed myself.  I could go on and on, but I won't bore you with all the details.

 

Thanks for responding, it is such a relief to finally talk to others that "get it".

Tammy

 

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