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Messages By: trie1970

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sad
April 13, 2007, 10:33 am PDT

3 pregnancy with HG and 1 living child later

I want to first thank the Dr Phil show for getting the word out about HG. I have had 3 pregnancy with it and I have 1 living child to show for it. I am going to tell a little of my story - I know there is a lot of stories on here - but feel very strong about this and getting the word out. It also is great to tell and talk about my story it’s healing for me. I will always have the pain and sadness of all of this- but it does help to tell of it. I was 25 years old when I became pregnant and thrilled as more. Then 2 - 3 weeks later I started with the non stop vomiting. My doctor and nurse told me to try this and that diet - and do this and not that. I started out going for IV’s 2 - 3 times a week - either a 3 - 4 hour visit or a over night stay. My veins are hard to find - so I was sent home with hep-locs so I could keep the IV’s in and not get poked more than need be.. From there I had 2 different pic-lines in my arms - and after awhile I had a central line put into my chest. I was put on every kind of medicine they could think of - but nothing worked. I had to switch to a specialty doctor and hospital that was over 40 minutes from my home, family and friends. To add to the depression of having HG - it was also the holiday season - winter - snow - distance - my dad turned 60 years old - loneness and thinking that everyone else thought you had lost your mind. I did lots of crying those months. I had dangerous low potassium and was hospitalize for that. I was put on TPN - Total Prenatal Nutr. - through the central line and had to check my blood sugar at 4 times a day. I was on that 12 hours a day at home. I lost a total of over 30 pounds. In April I got air into my central line - thank god - my husband was home and has asthma - so he was trying to help me on the way to the ER -- where I was rush by Ambulance with a doctor and nurse to the specialty hospital. Where I had 5 different doctors there for me and my baby - I was put through test after test and on full oxygen and in the ICU for a night. I gave birth to a healthy baby girl in July. The other 2 pregnancy -1999 and 2000, I was just as sick - and talked to the doctors before we even tried to get pregnant and they couldn’t say one way or another if it would happen again or not. We so badly wanted a bigger family we had to try more-- which a lot of our family and friends didn’t agree and didn’t come around much. I was over 10 weeks with both of the pregnancy and they were once again all over the holiday months - and during winter, plus now we had a child to worry about. The 1st one - I could not handle being away from my daughter - I got to see her 2 times a week - if I was lucky and my husband couldn’t come by as much with a daughter a home. I was very depress and felt very alone, I couldn’t handle it, they had me talk with someone to be sure I knew what I was talking about - wanting to end the pregnancy - I knew what they wanted to hear so they ever gave me any problems. I was on TPN again with that. The next pregnancy the doctors told me in plain English that it could be deadly for me and / or the baby - or I could come out of it not healthy - so that pregnancy was ended per the doctor. I was one TPN with that one also.. Only after they tried other things - because they had found out that TPN was not healthy. I was on a nose feeding tube at home 24 hours a day - I was on steroids - but the only amount that helped me was not a healthy amount. It was like everything we tried that worked was going to harm me and my baby.. One ate away at my bones and one ate away at my muscle.. There was no choice - as my husband reminds me to this day. But to this day - I am thankful for my daughter -- but it hurts to know she is alone. We have looked into adoption - and working on it -- but it is a lot harder then people let on -- I know why people don’t do it and why there are so many kids in foster care -- it is very sad to think of that. But that is a whole other story. I do have my daughter -- but I do feel so robbed of my pregnancy - the morning sickness - and pregnant belly - I never even really felt her move or kick. I since have remorse - I see pregnant women and family with lots of kids and I get so mad - life is so unfair.. I know there are still people out there that think it was in my head and I could have done something. HG is not heard of much - and you really do feel so alone going through it -- it needs more attention and needs to be talked about so those of us who dealt with it can get help and heal more… I will never be completely heal - but it does help.. Thanks again for talking of it.. Anyone going through it needs to know they are not alone and there are others. It’s not in their minds - it is real.. I only wish I could have seen this show and heard about all this ahead of time and had support for myself and for my husband - more information need to be out there … Support is something we all need - what I wouldn’t have done for someone to come and visit me in the hospital all those times just to sit in the room with me..   As for the mom in this show -- I am torn on what should happen -- with her and kids --  I see it from someone who had HG and I see it from someone who wants to adopt and know people who have..  But HG does change a person's life forever...

 
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April 13, 2007, 2:53 pm PDT

Who are the parents??

When I was watching her talk during the show --  she said she is the parent. - not the "adopted" parents - I forget how she said the exact words.   Like I said in my other posting - (pregnant with HG3 times and 1 living child) - I am torn on the subject of what should be done..  BUT --  I do believe that we have to remember being called mom and dad is not a given --  just because of who gave you life - or birth you..   Parents - mom - dad are the people who take care of you - give you shelter - food - clothing - care and love you..   But I just wanted to clear up the title of "the Parents" in this story - we need to remember that people who do adopt are the parents no matter what...  It's like that old saying - anyone can be called father or mother  - but it takes someone special to be called daddy and mommy..  Reading some of the messages make me really wonder if some of these people know anyone adopt or even had a bad family life - and need someone to be the adult...

 
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April 13, 2007, 6:50 pm PDT

I had the same stuff ==

Quote From: nrondinelli

I gave birth to a healthy son in January of 2007.  However, It was not an easy road for me.  I was extremly ill for the first four months of my pregnancy.  I lived on my bathroom floor and threw up all day long.  My mother didn't work and would come to take care of me every day. I lost close to thirty pounds.  My doctor never told me there was a name for what I had, he only would say that I had extreme morning sickness.  I was admitted into the hospital on several occassions due to dehydration.  Eventually I had a pick line put into my arm so that I could have 24 hour I.V.'s at home with home health nurse care.  Eventually my arm started to swell from the pick line and it had to be removed.  After two days without the I.V's I had to be admitted to the hospital again at which point they gave me surgery to put a groshan catheder in my chest.  I was pregnant so I had to have the surgery awake with no pain medication.  I had some local anisthetic, however, it was a horrifying experience.  With this cathedar they fed me TPN until I was able to eat on my own again.   Lucky for me after four months my symptoms subsided and I had a normal pregnancy from that point on.  Until I saw the Dr. Phil show I felt alone with my struggles.  It is nice to know that this illness has a name and that I am not the only one that has suffered with it.  Thank you Dr. Phil for bringing light to this illness. 
I had to be awake with the center line = when they put it in...  Because I was not over 20 weeks along.  It was the worst being awake in the surgery room - and being velcro down and listening  to the doctors and stuff..   And having it removed was the worst pain ever -- with it being grown into me by then and nothing to help with the pain..  I can remember being held down by the nurses as they removed it and telling them I could feel everything and crying..  I totally felt the same way as you did..  
 

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