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Messages By: dianah

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January 14, 2006, 1:22 pm PST

I am a "first" timer....

 Hello. 

 

This is my "first" time on any message board. 

 

For the past hour, I have just read and felt everyone's emotions.  

 

I was injured in 2002 at work. I had a snap in my neck and right side shoulder, Both of my hands went into a craped position and had shooting pain down both arms and hands. 

 

Long story short and 7 Dr. later and 3 carpel tunnel surgerys, I still have the same problems and know one knows what or why. 

 

The only "great" thing is I have a wonderful pain managment Dr.. 

 

This also falls under Work Comp. My hearing will be in Feb.. 

 

Dose anyone have any experience with Work Comp? Also, I have not worked in a year and 3 weeks. Any advice on filing for disablity? 

 

Thank you for any advice. 

 

Diana in Windy Wyoming 

 
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January 16, 2006, 1:56 pm PST

You made my day..

  

 Thank you so much for the wonderful "Welcome". And the awsome advice and great directions for myself to travle on. 

 

I just have to smile about your trip though Wy.. My husband always says if the wind were to quit blowing, he would fall over from leaning so long. 

 

I am so blessed to live between the Bighorn Mtn's and the South Dakota Black Hills. So one hour East or West, life is Grand.. 

 

Also was so releived to read that someone else has been having a "melt-down" as I call it, I have not been out of the house in 5 days. Just no energy and "hurting" is at a higher level. I am totaly blaming it on the weather. The wind has been blowing for over a week and it has a bitter bite to it. 

 

Again, Thank you so much for the wonderful welcome and great advice. 

 

Diana 

 

 

 
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February 21, 2006, 4:59 pm PST

Hello from Wy.

Quote From: june67

I have the neurological condition: "Reflex Sympathetic Dystrophy" (RSD) which is also known as "Complex Regional Pain Syndrome" (CRPS). I was injured in June 2005 and I have developed CRPS. This neuropathic pain disorder is a progressive deterioration of the *autonomic nervous system. Early diagnosis is an important factor in managing the progression of RSD and successfully keeping it under control. This chronic neurological condition effects all age groups, it does not discriminate. It is a condition that can be complex and most difficult to treat. At this time there is no cure.  Suicide is among the concerns regarding this condition due to the chronic intense pain that overwhelms a person's physical and emotional self. This neurological condition is devastating. It can turns hopes and dreams for tomorrow upside down. It is difficult if not impossible for some sufferers to remain employed due to the *central nervous system abnormalities. Some symptoms/complications are: severe burning pain, decreased range of motion in the region of the pain, physiological tremors and muscle spasms, organ complications. There are changes in bone and skin, changes in skin blood flow = skin color changes, skin temperature changes, excessive sweating. Loud noise, vibration, and touch can cause severe pain. There can also be short-term memory loss, lack of concentration, insomnia, inability to find the right word when talking. There can even be changes to one's hair and nails. I believe the hardest part to be the sensitivity to touch. Taking a shower or shaving can be excruciating. The touch from a loved one, a hug, can cause severe pain. A child reaching out for a hug from someone with RSD does not understand that the unwillingness to reciprocate is "not about him or her". My son  sobbed. Anyone can develop RSD. I simply moved a box-injuring my back.  That is all it took for my nervous system to run a muck and devastate my family.  I have already had difficulties arise with my heart and have now developed "Secondary *Raynaud's".  I was completely ignorant when it came to RSD... The simplest injury can trigger one's nervous system to run a muck; anything-from a fall or sprain, a break or fracture, certain infections, surgery, spinal injuries/disorders, even a heart attack.    Dee  

Burr has been the word here in Windy Wy. Last week we got down to 27 below 0.. 

  

I want to pass along that I also have Raynadu's. And that I have been taking Nifedipine 30 MG for the past 2 winters. I do not take the Nifedipine in the summer months. And it as helped a bunch. I noticed a huge difference when I ran out and went a few day's without it. Also I get a newletter on Raynadu's and if I find it, I will pass along the address to you. 

  

I wanted to pass along a huge Thank you on the information on Thoracic Outlet Syndrome. I printed off some info and will be taking it with me on my next Dr's appointment. 

  

Also wanted to just remind everyone, that it seems to hit all of us really hard during the "winter" months. But remember, spring is just around the corner. Just to be able to sit outside and hear and smell all of the wonderful wonders, really helps our Mind's and Soul's. So hang tight everyone. 

  

Dianah 

 
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February 21, 2006, 6:46 pm PST

Hi there

Quote From: maggie55

hello I am new here.was just put on disability.Need some encouragement. thanks

Wanted to say hello. 

 

 

I am pretty new person also. But everyone has been really nice. And I look forward to getting on line and just checking in and reading how things are going for "others". 

 

I am chronic in my neck and arms and hands. Had my injury in 2002. What has kept me going is my pain managment Dr. He is so caring and understanding. And a "wonderful husband and son. They are what makes me get up every morning and put a smile on my face. And keeping me moving one foot in front of the other. I have found that I have to make myself get up and put make-up on and at least give the day a chance. 

  

 

Glad you are with us.. Diana 

 

 
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February 21, 2006, 7:13 pm PST

Lyrica

Wanted to pass along what I have experienced with this drug and what I was told. 

 

I was told that Lyrca was just like Neurontine except for one huge difference, Lyrica is made so that a person is not so "stoned". A person is to have a clearer mind. 

 

I have taken both and I have to agree that I was much more alert while taking Lyrca than I was on Neurontine. I liked it much better. 

 

But, my ins will not cover Lyrca, so back to the stoned age, ha ha ha.. 

 

Dianah 

 
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February 26, 2006, 9:32 pm PST

Just sending a hello

Today was just a wonderful day.  

 

For almost four years I have not been able to target practice. And today "I did it" and I did one heck of a great job at it also.. Yahoo. 

 

And a year ago, this was not even an option for me. 

 

But, I have learned to rest and not over due things and worked on getting my med's to work for me. And the big thing today is that I did not over do it. 

 

Just wanted to share this great day and let you all know that things can work for you, just take your time and know that good things can happen.. 

 

Hang in there "everyone".. 

 

Diana from Wy. 

 
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March 5, 2006, 7:42 am PST

Valerie

Quote From: valfarr

You are absolutely right, and thanks for bringing it up, as I did in a response, and myself just started taking narcotics again after not for many years dealing with pain 24/7..and thier are many things to consider about taking them..not abusing them.   

  I started Youth to Youth for drug free lives(with the help of 5 other people) to try to contadict the statement "everybody does it" and that program is for kids and young adults..still running strong today. I have worked with 14 other programs, and recieved awards, honorary degrees, and have been thanked by the last 4 Presidents for my work..I keep well informed on the addiction of drugs and alcohol in my community and the entire Country..and have travled the world to set up chapters of these programs. CHRONIC PAIN IS A TOTALLY DIFFERENT MATTER !!!!!! NOBODY SHOULD BE MADE TO FEEL BAD FOR TAKING NARCOTICS PRESCRIBED BY A DOCTOR, AND THANK GOD THERE ARE MORE BEING MADE THAT ARE TIME RELEASED OR NON-ADDICTIVE, AND EVEN IF THEY ARE..IF YOU ARE GOING TO BE IN PAIN THE REST OF YOUR LIFE, AND IT GETS TO THE POINT WHERE IS IS DISRUPTING THE 'QUALITY OF YOUR LIFE' DOES IT MATTER IF YOUR BODY BECOMES ADDICTED? NO!!!!!  

  At one time I was on 11 narcotics/muscle relaxers for 25 surgeries on my jaw and went off of them all, one by one, until I was drug free, after my newest jaw was put in, and the pain was bearable..only took again when had 2 c-sects, car accident, since'99. I have many diseases that cause pain, and my new jaw broke 4 yrs ago...after 3 times in hospital with COPD exasperation and most recently pneumonia..broken jaw moved. The pain is so bad, that it is making me  NOT ME. I've already lost the physical part of me, to lose the mental and emotional is too much to sacrifice!! For somebody who still fights drug ABUSE, not the taking of drugs, I want people to also understand, that there is a difference. ADDICTS ARE ADDICTS..THEY ARE TRYING TO GET A BUZZ, CHRONIC PAIN SUFFERERS ARE TRYING TO FIND A BIT OF RELIEF FROM PAIN THAT AN ADDICT CAN'T EVEN BEGIN TO UNDERSTAND!! I have watched even some of my own relatives abuse the drugs and alot of times they will even get ill, because if you are not in pain, they will make you get sick, because your body thinks it is poisen, not medication. We have often joked that some of these people who "Doctor Shop" and get 3 months worth of narcotics, muscle relaxers and nerve pills, that a Doctor should put a Duragesic Patch on a patient in the office, have them sit for 2 hrs..and if they through up, that Docter has been conned by an addict, and cut them off! It is a shame that prescription drugs replaced street drugs from 20 yrs ago, like Ludes and Sopers, and the abuse of others, keeps people who need it from taking it. If you are truley in pain, they work on the pain, and you can still function and thre is no "BUZZ"..just living the best life you can.  

 Less is Best, but if taking a pain pill allows you to do more..than for peole like us in chronic pain, it's a little bit of help, and we don't need the judgement or opinion of others to tell us whether it is okay or not!! That is a personal decision not a partying decision.  

  There are also Doctor's who belive not taking them stessess out the body and lowers immune system, causing more pains and problems..mine do..they've gotten upset with me, some still say I'm not on enough  and I'm hurting myself by not taking them. Compulsive peronalitiessufferers become drug addicts, not sick people with chronic pain. Hope coming from someone on both sides of the fence helps anyone who is warring with this, or feels guilty in any way for taking them. Even people working to stop drug abuse, are not going to say a chronic pain sufferer should suffer more when God made most of these naturally..labs making them into pills, in order to provide comfort to sick people. And bless the scientists that have made even more (like time release)..to help us even more..so we dont have 2 hours of relief, then the need to sleep for 2 hours, than the next dose and so on, and so on....it's an awful way to live..but that is not being a drug addict, we just want t to feel like contributing people agian, or go to the grocery store by ourselved for a change, do a load of laundry, and cook our own meals for a change, or lift something over 5lbs. 

  Thanks for bringing it to peoples attention..and all those Christians out there....we are not to judge,  and we are stronger through Him if somegdy is judging us for taking them  Valerie. 

  

  

 

I just read your letter and I want to Thank You..  

 

I am so moved by what you wrote. It is so "true" and it "hit" home with myself and I am sure many other's. 

 

I have found myself "hiding" the fact that I have several chronic illness's with new people I meet. 

 

 I also have had my med's stolden from a so called friend. (who after 3 years of battling a drug and booze addiction has seeked help) 

 

I have re-read you letter 3 times now and it has really helped me "feel" so normal and not like a freak. 

 

Bless your heart... 

 

Last weekend I was excited about being able to do something I have not been able to do in years and again this weekend something again.. Having people out for an early dinner at 2.. My friend who also has chronic illness, and my husband and myself worked on cleaning house yesterday and cooking.. 

So excited about having the house full of friends and family.. 

 

It has taken me years to understand that pacing yourself is such a huge deal. Don't over do it and just work at your own pace and take those days to "rest". It's okay. And ask for extra help from friends and family.. 

And the big thing, "cheat" on things, like today, it is frozen pie's not homemade and easy one dish meals, chilli.. way easy.. 

 

And sure, it's not the old way I use to cook and entertain, but no one will even know or care. And I am okay with it, it will just be so wonderful to have this house full of some laughter. 

 

Just to let you also know, watch the movie Walk the Line last night and it is a "great" movie.. 

 

Valerie, again, thank you. 

 

Hang in there everyone.. 

 

Diana from "not windy" Wy.. today 

 

  

 

 

 

 

 
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March 10, 2006, 9:20 am PST

March 10th "hello" everyone

  

Just checking in and catching up on the messages. 

  

Mrs. Happy Diana from Wy.. is just not too happy today. 

  

I am not feeling good at all.  Wondering if the weather is playing a mean game with me or just over did it the last few days. 

  

My better half works in a coal mine here in Wy.. We have above ground mines here. And he has 7 days off in a row each month. And he only works 14 days a month. 

So, on his "days off" he loves to run 100 MPH.. and of course I try to keep up. He is good about letting me sleep- in or having a rest day with me.. BUT, there are days it just takes all I have to keep up with him and keep a "smile" on my face and say, I feel good, let's go............................ 

  

And between just "us", there are days I can't wait for him to go back to work, so I can just "rest" and not have to fake it all day.... 

And tonight is that "day".. 

  

And then of course I put the guilt on myself, I'm only 41 years old and I feel much older and wore out. And today is just one of those days I feel "BAD".. my body hurts and my heart hurts.............. And I just wonder "how can he put up with me?" what kind of life is this for him?? 

  

And I have so much guilt about how this chronic mess I am in, effects my sex drive. It is horrible. The med's just kick me to "no drive". 

And I can't even count the time's I tell myself, okay, tonight you are going to "make fireworks" and  guess what, I am just a fizzle.. a dud.. a punk.. NO Sparks on my end..................................... 

  

Is this a problem for anyone else?? I am feeling like a "freak" about this. I know I have read how med's effect this and I know this is what has to be my problem. I never had this situation before my accident.. 

  

And so far, I have not read anything on here about it... oh, leave it to me to be the big mouth, but it is a huge issue to me.. and I feel so bad about it.. 

  

And again, between "us".. I have had more night mare's about my husband "leaving me for another women" had one last night.. he was packing up his things and she was in MY TRUCK waiting for him.. I have at least 3 of these kind of dreams a month.. 

And I always telling him, no divorce, I HAVE TO HAVE YOU HEALTH INSURANCE, yep, that's my big deal...  

  

Okay, I know you are thinking I need to get a hold of myself here.. 

  

But, dose this effect anyone else? And how do you get things "going"??  

  

I hope I have not offended anyone, but this is a problem for me, and not that I wish it on anyone else, BUT is this a problem for anyone else?? 

  

  

  

  

  

  

  

 
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March 10, 2006, 12:33 pm PST

Thank you......

Quote From: msandrea

Diana, 

  

You are not alone. Sex can be quiet the touchy subject to talk about. I have mixed feelings about it myself. 

  

I always tell myself "tonight will be the night" but then I'm also a punk about it. I don't know if it's the pain meds I'm on or the stress the chronic pain has caused in my life and my relationship or not. My husband, who was also in the MVA accident with my is on pain meds as well. Our sex life has is practically non-existent and we are both very young. I'm suppose to be in my "prime". There are days when I become bitter about it and when I just want that intimacy and I'll approach my husband about it, but then later that night, I'm turning him down. And there are days when it's reversed. We can't seem to get in sync with one another. He moreso than I, however. I have much of a sex drive than he has. We were told the medication he is on will decrease his sex drive, but I didn't think that would throw him nonexistent land.  

  

I guess at this point, I'm not afraid of him going elsewhere because he seems to be in the same boat as I, but as Dr. Phil alwasy says, it isn't the frequency of your sex, it's the intimacy and in a good relationship it just happens, everyone needs that closeness. But unfortunately, with those of us struggling with chronic pain, it isn't that easy.  

  

I'm at a loss here, but I just wanted you to know that you are not alone whatsoever.  

  

As far as "getting things going"....that isn't so much my husband's problem, that's mine. If I were to approach him a sexy manner, he just needs the right "mindset", doesn't take him long. But for me, a little "groping" doesn't do it anylonger...a little sexy talk doesn't either. I need much more stimulation than that. We've tried numerous things (and I hope this doesn't offend anyone either), but we've tried sex toys, we've tried pornography, we've tried longer periods of foreplay....and when women aren't in the mood (or myself rather, I shouldn't classify everyone here), the more you touch me, the more I become "ticklish" and simply ruins the mood.  

  

So if anyone has any advice, I'll love to hear it myself. 

  

  

  

Good afternoon 

  

Thank you so much for talking about this. 

  

 And I never thought about "stress" that we live with on a day to day bases, then to add just the chronic pain on it's own level and all that follows this. Duh, stress can do so many things to our minds and body's.  

  

And how true about "frequency and intimacy". When you said this, it was like a light turned on in my head. 

  

  

When I was a working Mom and Wife, I always went with the thought that there was a huge difference with my "time". That is was not about how much time I spent with my family, it was the quality of the time that I spent with my family. 

  

And again, thank you for being so "open" about different approaches. I had a friend who told me that when she got married, her Mother told her.. "what goes on behind close doors, the sky can be the limit, as long as both of you are holding hands while you are flying together and hurt is never involved".. And how true. 

  

And to be funny here, a few years back, a group of my friends were having /toy party's and I always use to tell the hostess of these parties, "this is one time I can blow as much money as I want and my husband never complains about these parties and the amount I write the check for" and all of us girls would just crack up laughing... But is was a true statement.. He was always up waiting for me to get home to see what I bought.  

 

 

 

I think I need to put in some extra time on "effort"..  

  

 

I know that I have said before, that I try to make the effort everyday to get up and put on make-up and get dressed. (lol, it's not happening today) but, I need to make it a priority more offent than trying to clean or laundry or not letting the dishes "sit" over night.. 

 

Wow, I feel much clearer in my thoughts now.. 

 

 

Thank you again.. 

  

 

 

I am feeling so much better now than this morning.. THANK YOU.. 

  

 

Diana 

 

 

 
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March 10, 2006, 1:22 pm PST

Bridgette needs to get

  

I am really up-set over the fact that Bridgette sits there and is totally wasting precious time and energy with all involved. 

  

There are other family's that could be using this time and effort and would be willing to be honest. 

  

I also am confused by the fact that Dr. Phil has not called her on this and has let this "drag on". 

  

Those young adult children are not lying about what has taken place. 

  

And I feel it is a total waste of time trying to deal with Bridgette. She is not telling the truth and I say do a lie detector test on her about the pornography. Call her on it. 

 

 

 

 

Also, Dad is trying and has made some huge leaps, but he just sits there and allows his wife to lie about their children and I am not sure who is more to blame on this. But he needs to stand up and be a total Man in this situation and this includes telling the "truth" 

. 

 

 

 

And 'hello", okay, we are about to loose our home, but we together buy a $2400.00 dog. 

I think you both need to watch Oprah and learn about the dept diet. 

  

 

AGAIN, I SAY DO A LIE DETECTOR ON BRIDGETTE OVER THE PORNOGRAPHY . 

 

DR.PHIL, YOU ALWAY SAY YOU ARE IN THIS FOR THE CHILDREN. AND THESE THREE NEED SOMEONE TO STAND BY THEM AND HAVE THE TRUTH TOLD. 

 

  

 

 

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