Messages By: sudsywudsy

Quote From: rlb101481

I think he needs to be on meds. When I am not on some kind of meds I can get wierd. Aspergers gives me some problems, but I prefer my problem to so called "Neurotypicals", or those with typical neurological funtions. Aspergers is what gave me my high IQ and my photographic memory. It is aslo what is giving me the analytical abiltity to become a Computer Electrical Enginer.  

Quote From: karen_kiki

We have not drummed into Alex he is broken, Alex drums into us he is broken and he wants to be Normal.  Alex is defeated because when in control he realizes he wants to be like his classmates but he knows he is compulsive, obsessive and has a need to be right and have it his way.  AND yet when in control he is loving, and enjoyed by all but at the blink of an eye he will rage and say he wants to die.  He feels incomplete, so what should a parent do....What we have done is run in circles looking for answers with no support of family or close friends.  When people have seen Alex in his downward spiral they have pulled away. 

  

Since Dr. Phil our family and many lost friends have opened their hearts to us and they now understand what our life is all about. 

  

There is a lot of wonderful moments in our life with Alex we only want them to be more for him! 

Quote From: karen_kiki

What this show did was open up a forum and let me tell you how many AS parents have children just like my Alex.  However Alex is not like this 24/7 but waiting for the next meltdown is what creates the additional anxiety.  What Brain Matters identified was a Mood Disorder with a seizure component.  Without this brain scan series we may never have gotten the diagnosis we need to truly treat Alex properly. 

  

AS is not a stand alone syndrome and because of that we need to make people aware of the many aspects it has, so maybe we can have another show that will show the milder side.  My niece has twins both with Asperger's one is much like Alex, the other is mild mannered. 

  

In a 60 minute show there is only so much one can show and we appreciate that Dr. Phil at least got the word out and is willing to help..... 

Quote From: mygirl41mk

What do you mean it cant be Asperger's because of multiple diagnosis's ...my son  has both Asperger's and ADHD so what's to say one can;t have other diagnosises;////others I know have Asperger's,ADHD and OCD....what's up with that?

Quote From: hawkscream

Reverse Magic

  

 

  

  

 

  

( ..a look at the world of the semi-disabled from the inside out. For all the other late blooming,slow-hatching ,and left on the vine  would be lover/creative geniuses yet to be discovered, I dedicate this .)

  

 

  

It’s spring- time to break forth in all my glory,too.

  

 

  

I am an egg

  

 

  

A scrambled egg? Maybe. I know that

  

 

  

During morning meditation

  

 

  

I saw myself as an egg.

  

 

  

An over old, imperfect shape, yellowed,

  

 

  

Cracked a little around the edges,

  

 

  

That got left too long in the nest..

  

 

  

And all the roosters turned their noses up at it.

  

 

  

  

 

  

  

 

  

I would have liked to be an Easter egg,

  

 

  

But if I am, I am now only pale faded pink

  

 

  

I feel faded and less than glorious.

  

 

  

Some little girl I remember well

  

 

  

Dyed me in high hopes,

  

 

  

But nobody found me in the Great Hunt

  

 

  

And so spring after spring

  

 

  

I lay waiting in the old grass patch

  

 

  

Hidden by ever taller grasses

  

 

  

And the chilly winds of time

  

 

  

A slow season

  

 

  

Blew dust over me.

  

 

  

My shell hardened.

  

 

  

  

 

  

This is all too sad.

  

 

  

Start over.

  

 

  

  

 

  

I am an egg.

  

 

  

I am emerging from an egg?

  

 

  

I am emerging from a shell too small

  

 

  

And confining and crusty

  

 

  

I’ve grown too large to shrivel there

  

 

  

And breaking out of the shell

  

 

  

To become something else

  

 

  

But who knows what?

  

 

  

When I pop out…the barn is all deserted.

  

 

  

Is there anyone to greet me as I emerge?

  

 

  

  

 

  

Lo, there, trumpeter swans!

  

 

  

Flying North to Lake Laberge

  

 

  

I hear them heralding in the sky now

  

 

  

Dropping herald notes into tourmaline air

  

 

  

Their wings beating back time, space,

  

 

  

And limitation.

  

 

  

  

 

  

If I hop up and down

  

 

  

And waggle my silly overgrown wings

  

 

  

Will they swoop me to them in an updraft

  

 

  

And carry me along with them?

  

 

  

Hitchhiker.

  

 

  

Maybe I can soar on the wings

  

 

  

Of someone else’s glory and beauty.

  

 

  

But whose?

  

 

  

  

 

  

I  choking croak to them,

  

 

  

“If I pretend to be a swan,

  

 

  

may I come with you?“

  

 

  

Echoing swims the answer

  

 

  

Flowing back over their beating shoulders

  

 

  

“You always were…

  

 

  

you weren’t supposed to be left behind!

  

 

  

You’re supposed to soar higher..

  

 

  

To be a creature of light and air.

  

 

  

You were laid where you were

  

 

  

Never intended to be.

  

 

  

But now you can CHOOSE to be a swan!”

  

 

  

  

 

  

I look. Is there not the odd bit of

  

 

  

White fluff in my tail ailerons?

  

 

  

I hear the clarion whisper

  

 

  

Deep within.

  

 

  

Eagle will lend you grace!

  

 

  

Just map a flight in your dreams

  

 

  

And you will find us by your spirit!

  

 

  

So shall You navigate

  

 

  

And shatter all the barriers.

  

 

  

  

 

  

  

 

  

And so shall you.

  

 

  

  

 

  

  

 

  

  

 

  

  

 

  

  

 

  

Quote From: dissedmom

Yes, I too have tried to do the daily rule thing, to no avail.  His Dad and I just came from his child's school. I was called this morning(again) because even though he got spanked for his behavior yesterday, he decided to keep it up today.  His teacher then informed me, that his behavior, according to this child, is MY fault.  I'm making him act out because he's mad at me.  He told his teachers at school that he doesn't respect me, treats me bad, and that I spank him and he hates this world and his life and it's my fault he does.  He also told them that we moved because something bad happened where we used to live (a lie) and that he wants to move to be with his REAL Mom (which he's never met)!   

I'm TOTALLY at my wit's end and I"m sick and tired of being this  child's scapegoat.  That's all I hear it' HER fault!!!!   I 'm the primary caregiver for this child and have been for the past 5 years!!!!! He just gives me evil looks all the time and does things just to be mean and vile.  He 'll grin and laugh when he knows i'm hurting.  He just acts evil all the time.  I'm tried of crying over this.  My own children never brought out as many tears and aggravations as this child has. I love his Father but, I just dont know how much more I can physically and mentally take.  I think he needs to find out just HOW rough he has it at home by placing him in a special camp, foster home ,,, something drastic to change his thinking .... Any thoughts out there???? 

Quote From: natraymom

Karen - I have a 10 yr old son who has Asperger's and was diagnosed at 5 yrs old. I wanted to tell you that we sympathize with you and your family. Nick's AS pretty much destroyed my marriage to his dad and we divorced when he was 5. I remarried and my husband does a great job dealing with all this. I wanted to tell you that one thing we did that helped SO MUCH was that we got a blood test done on him, done by Immunolabs. Please check out their website to find a dr. in your area that has the test kit. It is a simple blood test and my insurance covered most of it, as it wasn't cheap. But it has made the most difference in our lives. Nick is by no means home free with AS. He is still on medication and still has meltdowns on occasion. But knowing what foods he is sensitive to has made all the difference. When we got the results back, we found out that he was allergic/sensitive to most of the foods we were feeding him! He is sensitive to peanuts, wheat, garlic, and worst of all: DAIRY! He cannot have cheese (so no pizza), no ice cream, no milk, no yogurt, no eggs...it's been so hard on him. He goes to birthday parties and feels different because he can't eat what they are having. He cheats sometimes and it is very evident that he has because we see the results within 24-48 hours of his eating the offending foods. Please go to IMMUNOLABS.COM and check this out, it may save your family. I know it has ours. We have not been able to remove all wheat from his diet; wheat is in every baked good. With most cookies and cakes, there are eggs too, which he really shouldn't have. But he would only be able to eat fruits, vegetables and meat if I really stuck to it and it's hard. He is one of 4 children and as you can imagine, the roller coaster ride he puts all of us on is scarey sometimes. Because we have not removed all of the offending foods from his diet, he is not completely meds-free, but it has made such a difference. His body simply cannot break down these foods, it takes way more effort and energy for him to process these foods. This is energy that he needs for basic social survival, and therefore, will really lose control if he doesn't have enough tolerance to go around. I am hoping the brain scan shows how to help Alex so that we can find help for all the other AS folks, including Nick! Thanks for letting a million people come into your home and ignore the criticism. You are doing the best you can with the hand you have been dealt. God bless your family, Nick's Mom