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Messages By: nomorehg

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March 6, 2007, 7:43 am PST

03/05 Anna and Britney: Behind the Headlines

I really hope Britney gets the help she needs. Thank you Dr. Phil for acknowledging the possiblity that she is struggling with PPD. I mentioned this to my hubby and his response blew me away and really upset me. He felt that PPD was not an issue and that her behavior is expected because she is so young. All along I've been worried about her and PPD, even during her second pregnancy. I hope she does receive compassion from the media and the general public. And... I hope she gets professional help for the depression.
 
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April 8, 2007, 3:02 pm PDT

Sharing the pain of HG post-partem effects

I too have survived HG twice. I love my children with all of my being, but can relate to having lapsed judgement from time to time due to the relentlessness of my illness. No one can understand a woman's heartache, physical and mental anguish, and actual torment that HG can cause, unless you have endured it.

 

Yes, Allison made a very bad decision when she violated her visitation guidelines... BUT she should have never lost her children and should have never been forced into giving them up for adoption. She needed love, support, and help in all manners during the pregnancy and afterwards. She should not be deemed a criminal, but should be granted the help that she needs to recover from her illness (physically and mentally).

 

I really feel for her children. I pray that they will know their mother throughout their childhood and that she will have the opportunity to share life with them. I pray that they will know their mother's intent and heart in this matter and others.

 

I am so thankful that Dr. Phil is addressing HG. Too many of us have suffered without the support that we need. So many in our society simply don't understand the impact this disease has on our lives. Thank you Dr. Phil.

 

And to those who have also survived HG... I will be watching the show with all of you. I suspect I will be crying the whole time. As this day approaches, I have been reliving much of the pain my family and I have endured through our pregnancies and life with HG. I'm prepared and ready to see the show, and will continue to pray for all involved with this show and for those who have or are currently suffering from HG. Blessings to all of you. You are angels.

 
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April 12, 2007, 9:46 am PDT

Thank you...

Quote From: flrat69

For those of you who have read other messages by me in regard to other topics, you may be very surprised by this one.  I have not seen the show yet, but I read the transcript.  Admittedly, I was stunned to hear of this disease for the first time.  I never had even a vague idea.  To all of you who have suffered so much due to this condition I just want to say bless every one of you.  It is beyond me to fathom the depths of this illness and all its ramifications.  Thanks to Dr. Phil for letting ignorant people such as I become more aware.  In only reading about it, I feel emotionally drained.  I don't normally do this, but all the victims of this will be prayed for by me.  It is all I can do. 

 

I will probably post my ever present opinion about the case on the program, but that is secondary to this.  Thanks for reading.

Thank you for writing this. Your very comments are exactly what us survivors have been praying for... an understanding by all of those who have never heard about our disease or have been unaware until now. Thank you, thank you. May more viewers and readers be touched by this show and our testimonies so that as a society we can reach out and help other sufferers.
 
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April 12, 2007, 10:55 am PDT

You missed the point of explaining her disease!!!!

Quote From: cheeker

I don't know everything about this woman, her disease or her circumstances but I feel she is emotionally unstable and is only thinking of herself, rather than what is truly best for her children. She was not able to answer Dr. Phil's questions as to why  she went through in-vitro only to then sign adoption papers and change her mind. Why even have in-vitro only to give the babies up for adoption???
You too missed the segment about HG. You need to read testimonies on the HER website to understand or read all of the posts on this site from women who have survived HG. Understand the realm of what you are talking about before ignorantly posting statements like this! Please, do everyone the favor of being an informed individual before you comment. Thanks.
 
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April 12, 2007, 7:00 pm PDT

You said it... people just don't know what to do

Quote From: cashee

It sounds to me that Allison has bonded with her babies. Her babies know her and have been with her; they have bonded to her also. She is their mother.

 

Clearly, you have no understanding of what it is like to have HG even after watching this show. You are not able to do anything with HG. If it is severe enough, it is hard to even hold a conversation with anyone. ... By the end of pregnancy there aren't a lot of people around you left to help. People just don't know how to help you because they do not understand.

I had countless volunteers from my local church rushing to our aid, people that didn't know me and whom I didn't know. My family felt helpless and had countless excuses as to why they couldn't help us until they realized it wasn't going to go away. And even after 16 weeks of around the clock volunteers helping us, we ran out of people willing to help and started getting comments that were very hurtful. I had countless times when I would lay helpless, very weak and unable to care for our toddler, praying that God would bring someone to our aid to help us through that night. God was amazing and He never left our side and always brought someone to our aid. Without my faith and my church, we would not have made it through our final pregnancy. Even my physician got frustrated at times with me and advised that I move back to my home state and find people there to help take care of me since my husband didn't understand and couldn't help. It was a nightmare... but God brought us through it. Now we are finally finishing our healing process. That's right, part of a HG survivor's post-partem includes healing the body and the marriage in more ways than anyone can possible realize. Dr. Phil needs to address the full realm of this disease. It doesn't entirely end with birth.
 
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April 12, 2007, 7:32 pm PDT

It is hard to do...

Quote From: lmcizha

About 2 years ago my wife and I went through a HG pregnancy.   My wife was in the hospital for 2 months with IV, and once released, was taking 17 pills per day (every 2 hours or less, 24 hours per day) to control the disease.  She was continuously told by nurses that this was in her head.  Taking a shower was a hell of a challenge for my wife.

 

From a husband's prospective, you feel totally helpless seeing your wife in a hospital bed with an IV, for nothing more than being pregnant.  I was the lucky one who was not suffering with the disease, but emotionally and physically this was a real drain, as I also had to ensure that I was able keep my work and take care of our dog.  I was lucky as my employer was flexible and ensured that I did not have to travel for the time my wife was pregnant.

 

Watching this show has brought all those memories flying back.  Not sure how we will sleep tonight.  

 

We have discussed having a second child.  But have come to the realization that going through IVF, and most likely HG again, this would not be possible as we now have a young toddler as well.

 

Dr. Phil, thank you very much for airing a show on this.  I truly hope that more people out there will realize that this is not in the mothers heads.  Would you vomit 30 times per day for the fun of it?

Trust me, it is so hard to care for a marriage, let alone a toddler while trying to survive a HG pregnancy that requires constant fluids. If I had been properly diagnosed with HG during my first pregnancy, I would have never wanted to have a second child through my own pregnancy. We are now talking about adoption down the road as our desire to have a larger family remains with us but we know that we simply could not manage another HG pregnancy.

 

I'm sorry you and your wife wish for more children but fear HG. All I can say is that there are so many others out here that feel the same way.

 

Blessings to you and your wife.

 
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April 12, 2007, 7:37 pm PDT

You poor, poor friend

Quote From: lillian352

 In 1957, I became pregnant after 10 years of trying.  We were overjoyed, and even though  I began throwing up I wasn't worried.  I had a famous OB-GYN whose textbooks were required in all the best medical schools. 

However, when the vomiting continued and got worse with each passing month, I asked my doctor if there was something he could prescribe for it.  He said, no, that it was undoubtedly fear of the actual childbirth and there was nothing to be done.  By the time I entered the 8th month I was no longer able to sleep or eat or even keep water down.  The doctor was unmoved, still
convinced it was fear and nothing more.  Finally, he offered to induce labor and I gladly accepted because by the 9th month I had 24/7  headaches no over the counter meds could touch. 

My son was born the next morning after a long hard delivery, weighing only 5 pounds.  Because of the inability to eat or drink I was suffering from malnutrition and had to remain in the hospital for 10 days to be treated.  Instead of gaining during my pregnany, I had lost 25 pounds.  I'm sad that hyperemesis was unknown at the time, and that I had to suffer the stigma of being called a coward by my own doctor. 

I am so very sad for today's guest, and hope and pray that she'll be reunited with her babies very soon.   
 

I'm so sorry to hear this. I have read that back 40+ years treatment was unknown other than to rehydrate with IVs. I'm so sorry to read that your doctor did nothing to help you. My first pregnancy was very similar. I was told to "suck it up and move on with life; life is not fair," by my doctor. Needless to say, I found a new doctor for my second pregnancy, but still didn't know what HG was until my disability form were being filled out.

 

I'm thankful that you survived your experience. I would not have lived through my pregnancies without IV fluids.

 
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April 12, 2007, 7:46 pm PDT

Thank you Gator Mom...

Quote From: gatormomm

I had HG with all 3 of my pregnancies.  The first was while my husband was in medical school.  One of the other student's wives was a little further along than I was, and she had HG.  She had a catheter placed for meds/IV's that became infected, she became septic and died.  I was scared to death, losing weight like crazy, and questioning whether I could continue the pregnancy.  Through trial and error(and everyday was different), I learned to time my vomiting around small amounts of food and liquids, in order to maximize absorption. I found that if I vomited before small meals, I was able to keep them down longer.  You learn what things hurt coming back up, because you know you're going to see it again.  Seafood chowder? Same going in and coming back up-LOL! Watermelon is great for hydration. Crunchy things like carrots and pretzels are good, too.  I never found alot of support from my OB's or their nurses, so I just learned to handle it as best I could. 

     There are no pictures of me during any of my pregnancies.  I wouldn't allow them-because

I looked too scary--cachectic, pale with deep undereye circles.  My gums were in horrible shape

from all the vomiting.  Not the "pregnancy glow" that most people enjoy.  My body just didn't do

pregnancy well--at all.

     After my third child, I became an RN and I'm a mother/baby nurse.  Whenever we get an HG

admission, I usually get them.  I love that I can give them the attention/sympathy/care that never

was available to me.  I also try to empower them with many different methods to "hang in there"

and survive HG.  I always tell them the "door prize" at the end of this ordeal is SO worth it!

  

I wonder if by chance you were my nurse at all during my hospitalizations... Too bad this board doesn't allow us to IM eachother. Thanks for being a supporter and helper with other HG moms! I volunteer around town when I learn of others struggling as well. Thank you, thank you, thank you!!

- From another Gator Mommy.

 
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April 13, 2007, 5:03 am PDT

Dr. Phil, there's so much more to HG

Dr. Phil,

 

Thank you so much for addressing HG and for assisting Allison with addressing her medical condition so that the nation can begin to understand her story and not miss the 'duress' portion.

 

Please consider taping and airing an entire show or a series of shows addressing all of HG. There is so much more to this disease and clearly many whom have not suffered from it still do not get the full picture (based on your message board) and those of us who have dealt with it could really use your help. Here are some suggested topics to think about covering withing HG:

 

1. Telling the story of the countless women who had HG 10-50 years ago who never had help because OBs didn't know what to do. (There are still women today that deal with this even though it's more widely discussed among OB professionals.)

2. Addressing how family members don't know who to cope with it. This disease hits really hard when family members (parents, spouses, etc.) tell the woman "it's all in their head" or "to just get up and do something, don't just lie there," etc.  Additionally, these family members can get very frustrated, thus verbal abuse and potentially physical abuse (through denial of help) can easily take place.

3. Addressing the children and their needs while they wait for mommy to give birth.

4. Addressing the pain endured by the marriage while everyone waits for HG to end. This is the big ticket!! Marriages suffer, hurt and they simply are on hold while the wife is very ill and nearly non-existant in the marriage relationship and the husband is left to tend to his wife's every need, hold his job to financially support the family, accept that there will be no physical contact and intimacy until the wife heals from the pregnancy, and in many cases can't even be in the same room as his wife because his smell will make her vomit. This is so distructive and yet we HG survivors have endured it, are dealing with it and no one knows how to help. Then, once the pregnancy is over, if the marriage is still in existance, both have to some how adjust to life with a new baby (if all goes well with the pregnancy) while spending a significant amount of time trying to heal the marriage and repair all of the damage from the pregnancy. My husband and I actually devoted an entire year to this healing process. This means I planned not to work and instead spend time at home to help our older child heal from missing me so much through pregnancy and help our marriage heal. Intimacy is the hardest obstical to over come for a HG mom.

5. Finally, helping the HG mother heal emotionally. We moms feel robbed of so many joys as our pregnancies are nightmares. We are damaged and have a hard time looking at food for several weeks post-partem and live with fear that we might get sick again. We never want to be pregnant again, and thus deal with the loss of knowing we can't have more kids unless we are blessed through adoption. It's a rough rollercoaster. We are also so scared of intimacy for several reasons and we often times can't stand the our home. I actually repainted our house and got all new furniture during my healing process because I couldn't stand being in the bedroom that I spent countless hours getting sick in.

 

This disease is so hard to over come. So much more needs to be addressed. And yes, so many health care professionals don't get it! I had great treatment during my last pregnancies, but when I went to tell them about the show... it fell on death ears and I left the conversation feeling as though they look at me as a wack-o. Very sad. It's not just morning sickness or a bad case of the ickies (as I commonly heard)... it's so much more.

 

Thanks again Dr. Phil.

 
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April 13, 2007, 5:31 am PDT

Our nation needs to address FMLA...

Women suffering with HG often times lose their jobs because our FMLA law only covers 12 weeks of missed work. Thus, if a HG woman can actually drag themselves into work before FMLA allows the employer to 'let her go' then she still cannot perform all of her normal activities as she is too sick to be there in the first place... still putting her in a position to be 'let go' or fired. There is little to no protection for a HG woman in the work place. Many of us survivors will be happy to tell the nation and the world that we are violated with this issue and are left unemployed. And without employment, who pays for the medical bills when insurance is lost? Who can afford Cobra insurance when you're unemployed? Disability insurance??? Well, only if you are lucky enough for them to cover you. HG is a huge financial loss for all involved. Our FMLA laws need to be addressed as well.
 

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