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Messages By: beckycaddell

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May 30, 2007, 6:47 am CDT

Living with MS

I was diagnosed with MS in November 2005. I know what kind of a toll it takes on not only the person living with it, but also the entire family. I really sympethize with the guest and her husband and know what they are going thru. My husband and mom told me when i first started looking in to the possibility of it that I was borrowing trouble. After I was diagnosed, my mom was all about reading up on and researching this disease so she could try to understand what was happening to me and how she could best support me. My husband thought and still does, that there is a magic pill out there they just aren't giving me because I don't have insurance. If i try to tell him what is going on with me his response is usually "Well I am tired too" or "yeah well i am in pain every day but you don't hear me complaining". A few months ago I came across a post called Understanding What Having MS Means. It was a big attention getter. I also sent it to friends and family. Most of the replies i received were "thank you for sharing this with me", or "I really didn't know MS could be that bad because you don't look sick."

 There are so many resources out there for people with MS and the spouse and kids who have to live with it. I have received help for utilities and rent from the local coalition and the MS Society. A Lot of the drugs needed for symptoms can be received free of charge or low cost thru the drug companies. My best advice is research all you can. Find out what is available from coping to medication. I also visit many online MS chat rooms and have made many new wonderful friends. It makes a person who rarely goes out in public seem much less secluded and alone.

 I would be happy to post "Understanding What Having MS Means" for anyone interested. The way it is worded helps people not living with MS understand a little more what it can do and just because you are "sick" doesn't mean that you don't want your friends to come visit you or that you don't want to hang out or do things with them, it just means that sometimes you may have to cancel things last minute or when you are tired it means you are tired now, not wait 15 minutes see how you feel then. It is very powerful and encouraging.

 

Thanks,

Becky

 

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