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Messages By: jwaters10

User Mood
Worried

Message Emote
hopeful
June 2, 2008, 6:37 am PDT

Epidermolysis Bullosa

I have not seen this episode yet, it doesn't air here until Wednesday, however, I wanted to comment on the condition of one of the guests and hopefully raise awareness of this horrible disease.

 

Epidermolysis Bullosa is a very painful and life threatening condition and while I applaude the topic of the show I hope that someday Dr. Phil will do a show dedicated to this disease and raising awareness.  Currently there is no treatment or cure and those of us that live with it daily are struggling for understanding.  Understanding from doctors, employers, insurance companies, the federal government and the general public. 

 

I hope this post makes its way to a producer that can see the value that such a show would bring. 

 

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