Quote From: kiwismommy Good morning. Today, and probably through Teusday afternoon, I will be a bundle of nerves. My daughter was born with WPW, a heart condition that causes the beat to go double-time. It happens from extra tissue in the heart. She was put on medication to regulate the heart, and has done fairly well for the last year, with only a couple trips to the ER to have her heart slowed down when she outgrew the dosage of medicine. She has had to see a pediatric cardiologist at Vanderbilt Children's Hospital, in +Nashville, TN every couple months. On the twentyfirst, they are doing a procedure on her, involving putting her to sleep and slipping this electro thing down her nose and touching it at her heart, or something like that, to see if it will go fast. It is a test to see if she has outgrown the condition. To get an accurate result, she has to be off her meds for almost a week, and took what could possibly be the last dose yesterday afternoon. Now, we have to monitor her heart with a stethoscope more often than usual, to make sure she's doing fine. I have probably checked her five times in the last couple hours, when she only needs checked about three times a day. Just figured I would get the nervousness off my chest, and ask someone to wish her luck. Not necessarily for out growing the heart thing (though that would be great), but not to go fast before her appointment. I hate having to watch them give her an IV to slow it down. I am hoping she outgrows it, but if she don't oh well. She will still be my little Kiwi either way. Oh, and happy belated Valentines day to everyone.
I pray she has outgrown the condition. What a blessing that would be. It has to be the biggest fear you can come across when your child's well being is in potential jeopardy.
My son has marfan syndrome. It's a genetic disorder that affects the connective tissue in muscles and also elongates the bones. There are man, many ways it can affect the body but the most severe obviously is when it affects the heart and lungs. He has to go to the cardiologist every 2 years for now unless something happens before then. Praise God he is fine for now. The only symptoms he has for now is having a heart murmur, very long wingspan (fingertip to fingertip), being tall, being very flexible, and having crowded teeth and palate. No biggy, I can handle that stuff. Just an interesting bit I have learned through this.... Did you know that you are the same height head to toe as your wingspan from fingertip to fingertip? Except for my son, LOL his wingspan is bigger than him. Even though he already almost 6 ft. at 13.
Marfan is what a lot of athletes dye from. The over exertion the put on their heart is more than the weekend tissue in the heart can take & it causes the aorta to rupture. That on female olympic runner (can't remember her name, think it starts with a "J") died from it. Also Abe Lincoln had it. He of course died of other unnatural causes. LOL!
Sorry....didn't mean to ramble on about my own issues. I am praying for your daughter and family and hope you get the best possible news.
Heather
