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Messages By: tonilynn42

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January 17, 2006, 1:35 pm PST

aspergers

I have two sons that have Autism Spectrum Disorder. My oldest is 15 and all of his life he has been tense and worried, he even was born looking worried. He had colic, and night terrors. He didnt show any signs of PDD or any autistic tendencys what so ever. However, there was something wrong. The doctors said he was fine, so for all of his life we did nothing to really help him. He however would have outbursts we call his frothing at the mouth time. As long as I would let him alone, he got over it really quick. He controled himself at school and in social situations, no one guessed or even know now that there is anything off. My other son is 10, he was not talking and he had some frustrating behavior and some fixations so when he was 2 he was diagnosted with PDD-Nos. He has gotten help and now he is a very high IQ and strong non verbal skills. He shows now no signs of frustration or outburst behaviors. 

I was so happy to see the show today, it made me sob though just to finally see that I was not alone in this situation. 

I have always worried more about my older son with his outburst (although not as drastic as Alex) still he can become "over the top". I will be seeking neurologist to look into him. The sad thing is, is that in the health sector (insurance) PDD, Autistic and Aspergers is a behavior disorder not a physical disorder. What a problem. 

I would love to get DNA testing done, if it is a maternal problem, it would be nice to have that information. I was going to be in a testing group for research for parents with more than 1 child with Autisic Spectrum Disorder from New York University. 

Again, it was really great to watch it and it did open up a dialog with my son about the behavior. 

  

 

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