Quote From: wildjoy1Hi again Marie,
I guess I do have a few questions for you regarding CFS -
How many hours do you typically sleep at night?
Do you ever take a nap? How does that effect your CFS?
Do you have an out-of-the-house job?
When I used to work full time (up until 4 years ago) I had to be at work by a certain time and so I would force myself to get up and get going. Once I was up and out I was able to function just fine all day (and sometimes into the night - I worked very long hours), but by the time I got home I was worthless. I often missed church on Sundays because I was so exhausted. Now I only work part time from my home and I plan a day in between workdays to recoup. And I no longer work full days. Sometimes I feel a little lazy for not pushing myself like I used to but I also really enjoy being at home and not having to work all the time. I'm finally getting back into some of the crafts and hobbies I used to enjoy before I entered the full time work force.
I have a really hard time getting to sleep at night sometimes and I often sleep 12 hours at a time. But lately I've noticed that my total hours of sleep are averaging about 9, unless I've had a day or so with less - then a recoup day can include up to 14 hours straight. I can't nap without struggling at night to get to sleep and I hate that. My first rhumatologist told me not to ever nap during the day for that reason. Anyway, you are the first person I have really communicated with who also has CFS so I'm curious if your symptoms are similar.
How much weight have you lost recently? Have you noticed any improvement in your symptoms?
I noticed a huge improvement in my fibromyalgia after loosing weight with the WLC. Now that about 20 lbs has come back (in the last 5 months) I'm needing more pain meds again. Although I'm determined to keep them at a minimum.
Well I'll let you go, Take Care,
Karen
I have a two year old and a four year old (he gets up with daddy for work most mornings). I am just starting to get on a schedule with sleep and have decided that though I can stuff done while they sleep that then the next day I am no fun to them cause I'm tired so now I sleep when they sleep (last night I was in bed at 8:30 and got up at 6 to wake hubby for work. I went to go back to sleep but it was too late our son was up and ready to face the day so I am hoping that both kids take a nap as the older ones are at their mom's this week so no break til hubby comes home. If they don't nap I think I will be sleeping early tonight too.)
I nap when I can which isn't often as my son gave up naps (except on rare occasions) when he was 2 1/2 years old. What I do on bad days or if I am just tired, I lounge around on the couch while they play on the floor in the livingroom or they sit in their chairs and watch tv.....if it is nice out I have a hard time doing this cause they wanna go for a walk or at least go in the yard...
No I don't have an out of the house job -- just in the house -- taking care of the kids and the house! ;-) I have tried to work and on good days it works fine but bad days forget it! I have to find a job in which you can either work from home (so no one sees me on bad days and so I work as I feel good through the day) or a job where you can make your own hours. I haven't found either or them yet so I spend my good hours with my family enjoying them! ;-)
I have only lost 4 pounds this time but I will say that eating healthier makes me feel better. Don't know if that is all attitude or not though! ;-)
I plan alot. What I mean is if I know a busy day is coming I don't do anything the day before (so I am not tired that day) and don't do anything the day after (cause I am shot!) Two days in a row is pushing it...I know my limitations now though so I try and work with them.
Marie