06/05 Surviving the Worst

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    My disability also has affected our home life and
    Posted by: rfen50
    Posted on: 2003-06-05 08:50:15


    On Oct. 26th, 1996 @ 9:15 AM while at work, I collapsed. I was eventually diagnosed with a brain aneurysm.
    I can relate to your guests on today's show. My wife and I would be delighted to be on your show, not just to be on TV, but we need your help. Please Dr. Phil is there anything you can do to help me feel as though I have the right to feel worthy of just existing. I have almost no short term memory, I tir so easily, and feel depressed all the time because I feel I'm not contributinh what I should.

    Help me please:

    Ron Fenlason
      I Understand Ron
      Posted by: tramar47
      Posted on: 2003-06-05 15:51:37


      Ron on June 6,l992 I to had a brain anurysum and my life as I knew it changed forever. I understand your guilt and pain and feeling, but I finally made up my mind that God put me where he wanted me to be and have to accept what Im left with. Im so happy for you that your wife has stood by you as my wonderful husband has with me. Sure it gets hard sometimes but I cant give into this pain and be so depressed I cant function to the level I can. You know your the only person I have found that has been thru what we have been thru. Please let me know how things are going for you and your wife and if you have had any more problems.
      Chronic Pain Issues
      Posted by: sajo56
      Posted on: 2003-06-05 18:45:13


      Dr Phil
      As I see the show in progress at this moment, I was compelled to write. I too have had chronic pain for over 6 years now. This issue and subject has been hidden for way to long, through the medical profession, congress, as well as Socil Security. I happen to be a strong willed person who has search for additional help along with medication, Self Behaviorial Management has helped alot aswell.Please Dr Phil...Do More subjects on this matter, for I feel this is an uneducated area in need. Thanks Sincerely. S.Jo
        chronic pain
        Posted by: bfdonnelly
        Posted on: 2003-06-06 11:31:42


        Dr Phil, thank you for your show yesterday. I've had chronic sciatic and back pain for 15 years and have been disabled by it. (injured sciatic nerve) I have to lie down many hours a day just to get through each day. I'm on many medications and do physical therapy. I could relate to your first couple. Please do more shows on chronic pain to educate the public and the medical profession. there are many pain specialists which may help in this education effort. My husband left me after 20 years of marriage, 15 of which i've been disabled with chronic pain. we had been in thereapy on and off for years, i was totally shocked by his decision to leave(a few weeks before we were talking about our retirement plans) . When he left, He said he hadn't been in love with me for over 5 years (that was a major betrayal in itself). He left me to pursue a relationship with another woman he worked with. Once i became disabled with chronic pain, my husband's personality changed. He was indifferent, mean spirited, angry, resentful, critical of me, passive aggressive (would insult me then say he was only kidding and that i was paranoid, for example), among other things. His outside demeanor is one of Mr. Nice guy (he's a school psychologist), people would be shocked if they knew how he treated me. i brought in money to our marriage through SS and a private disability, plus i managed all the financial aspects of the home, made dinner, did light shopping, was home when my son got home fr
        To: Sajo56
        Posted by: pattiramey
        Posted on: 2003-06-08 17:33:40


        I agree completely with your post and wanted to make sure you knew about a bill introduced into the House that requires our support. It is H.R. 1863 National Pain Care Policy Act of 2003, and we need to contact our reps and educate them about the need for the bill. Please email me at pattil007@earthlink.net and I will gladly send you some information on the bill as well as ways in which you can support it. You are correct; we have to educate everyone about the need for change in this area, and it begins with us.

        Thank you for your time and consideration,

        Patti
      DEAR RON - Our Prayers Are With You
      Posted by: angels_ink
      Posted on: 2003-06-09 10:32:18


      Dear Ron:

      I just read, with tears in my eyes, your post RE: your aneurysm...My heart goes out to you. When you asked if there was some way you could feel 'worthy' just existing, it tore my heart out. I know the feeling all too well. With chronic illness goes so much else...depression from feelings of being a non-productive member of society..(the 3 s's of chronic illness - sadness, sleeplessness, suffering). I've been doing it for 3 years now..I have to force myself to even spend time on this computer -- but it's my sanity. DON'T give up, whatever you do. There's a way out. Dr. Phil will have the answer..Meantime, if you want to talk, E-mail me at angelsink_jana@yahoo.com. God bless you and your family..PEACE, JC
      my disability also had affected our home life
      Posted by: vojtash
      Posted on: 2003-06-12 04:18:35


      hi rfen50!
      so you think you have a disablilty?
      You are able to post a messaage online.
      my husband cannot see that well.
      He loves to read, but his macular degeneration stops him. we recently bought new glasses, which help somewhat, but he still can't read large type Bible.
      He had his leg amputated this past month. so he can't move around much...
      His other leg is weak because we've been nursing his foot ulcers ( on the leg he lost) since November.

      Still... He thinks he has the will to try.
      (TOO MUCH sometimes!) lol
      He hasn't given up hope, nor have I .
      in fact, he has fallen several times in an effort to move.
      Please!!! let your wife help you improve.
      She loves you.
      Don't feel sorry for yourself.
      My husband sometimes doesn't know who I am , or where he is.
      but sometimes he does *smile*
    this is my life
    Posted by: stasny
    Posted on: 2003-06-05 09:43:20


    Novemebr 2002 I was diagnosised with Interstitial Cystitis, a severe bladder disease, that has constent pelvis, pain, back pain, bladder spasms, frequency and urgency, up to 50-60 times a day, a fatigue. many days I spend ont he couch, and afraid to tell my husband how bad things have been for the day. We are newly married and this has ruined my life as well as his. I feel like at times I need to let him go on without me. He isn't real reassuring on how this is affecting him, and makes me walk on eggshells never knowing how he is feeling. I am unable to work due to this disease, and I feel he hates me for that. I have no life, and when I try to put on a brave face and not complain about my pain, he complains because I haven't told him this is going on. I feel just like the first interview on todays show. I understand fully what she is going through.
      From another IC sufferer
      Posted by: pauladuroc
      Posted on: 2003-06-05 14:57:38


      stasny: I too have IC, (most likely- it's a long story) and can sympathize completely. It is a frustrating, demeaning condition. I have not worked for 4 years and I know how you feel in regards to your husband. They try to be understanding but it is difficult for them. I have said many times to my husband that I wished he could notice the positive things about me and the things that I CAN do. Not just focus on what I can't do. I have also had anxiety/panic disorder for half of my life (I'm 43) and this condition just makes it worse. I feel like such a freak at times because I can't go places and do things that normal people do. Riding in a car had become so impossible that we now own a small camper van (with a toilet) that is my only way to get out of the house. Freakish, huh? I would like to make a couple of suggestions if you don't mind. First you might want to look into a set of 3 books written by Catherine M. Simone. She has the disease and the books are written from her experiences and how she found some of her own natural treatments. You can find them on amazon.com. Also, did you know that Social Security has added IC to their list of disabilites? Some people have gotten disability benefits because they can't hold down a job - although it is a long tedious process to apply and be approved. Good luck and hope you get better...........
        SOCIAL SECURITY DISABILITY
        Posted by: sipa_11957
        Posted on: 2003-06-05 16:29:15


        YES SOCIAL SECURITY DISABILITY HAS HELPED ALOT OF PEOPLE I HAVE BEEN FIGHTING TO GET DISABILITY FROM SOCIAL SECURITY FOR OVER 2 YEARS NOW. IF YOU START DON'T QUIT APPEAL APPEAL APPEAL. I AM IN THE APPEAL COUCILS HANDS RIGHT NOW. I HAVE A ATTORNEY THROUGH SOUTH DAKOTA ADVOCACY. EVERY STATE HAS A ADVOCACY PROGRAM WITH WONDERFUL ATTORNEYS. IF AND WHEN YOU START THE SOCIAL SECURITY DISABILITY PROCESS MAKE SURE YOU HAVE A ATTORNEY OR YOU WILL NEVER GET IT!!!!!!! IT IS A VERY LONG DRUG OUT PROCESS AND MAKE SURE YOU HAVE SPECIALISTS BEHIND YOU 100% ALL THE WAY ALSO. THE LAW JUDGES HAVE NO MEDICAL TRAINING LIKE A SPECIALIST DOES. OVER 50 % OF A SPECIALISTS STATEMENTS AND LETTERS MAKE THE DECISION. GOOD LUCK TO ALL!!!!
          SS
          Posted by: mommo1953
          Posted on: 2003-06-05 16:50:22


          Yes, fight for SS if you are disabled. My husband has a Pituitary Tumor & it took my husband 2 1/2 years, out of work, & the hearing was about 15 minutes long. SS is looking for physical stuff in my husbands case his brain was affected. They said he could physically work. But he could not work mentally he could not open stamp & sort mail properly & that they can only see from talking to him.
          yep!
          Posted by: kelliebeau
          Posted on: 2003-06-05 16:55:11


          I just got ssdi in North Dakota. You are right APPEAL! It seems that if you get a attorney that usually you will eventually get the social sucurity. It took me getting to the hearing and chickening out and then starting all over with an attorney. I finally made it though:) They won't take the case if they don't think they will get your $
          I was approved right away
          Posted by: jerseybred
          Posted on: 2003-06-05 19:34:36


          I was dx with MS in July of 2001 I became totally disabled in March of 2002 and applied right away, I was approved and started to recieve my checks in 6 months.... but I had no lawyer I do now because the I was not eligable for SSI due to my husbsnds income and my SSDI was also based on his income NOT mine so I was basically screwed as well in away
            Chronic Illness
            Posted by: debfrench
            Posted on: 2003-06-10 11:07:36


            Dr. Phil -
            Thank you for your recent episode dealing with chronic pain. As a person dealing with Lupus, Fibromylasia, Degenerative Disc Disease, and other disorders, I realize how important it is to educate the public. While I am blessed with a very supportive husband, I realize that many others out there are not in the same situation. As my husband says, "we" have these diseases. While they have completely changed our lives, we have adapted, and now have a "different", but in many ways "better" relationship. Communication has been our best friend. We admit our anger at the diseases, and have learned to separate the disease from "us". It is not always easy, and I am not trying to sound like a martyr, and I still have my share of "pity parties", which only my dogs are allowed to attend.
            I would like to believe that before I was affected by these diseases, I would have understood the "invisible diseases", and not questioned others about there limitations. I was in my early 30's when I was diagnosed (I am now 48), and I must admit I did a double take when I saw someone using a handicap spot, and they "appeared" to be normal.
            Chronic Illness
            Posted by: debfrench
            Posted on: 2003-06-10 11:21:02


            Dr. Phil -
            Thank you for your recent episode dealing with chronic pain. As a person dealing with Lupus, Fibromylasia, Degenerative Disc Disease, and other disorders, I realize how important it is to educate the public. While I am blessed with a very supportive husband, I realize that many others out there are not in the same situation. As my husband says, "we" have these diseases. While they have completely changed our lives, we have adapted, and now have a "different", but in many ways "better" relationship. Communication has been our best friend. We admit our anger at the diseases, and have learned to separate the disease from "us". It is not always easy, and I am not trying to sound like a martyr, and I still have my share of "pity parties", which only my dogs are allowed to attend.
            I would like to believe that before I was affected by these diseases, I would have understood the "invisible diseases", and not questioned others about there limitations. I was in my early 30's when I was diagnosed (I am now 48), and I must admit I did a double take when I saw someone using a handicap spot, and they "appeared" to be normal. I now realize that all pain is not seen, and you truly cannot judge the book by its cover. I try very hard to "look" good, and after so many years of practicing, I am very good at "pretending" that I feel good, when I hurt like heck! I could write a book - so I'll close for now. Thank you Dr. Phil
          YES!! APPEAL
          Posted by: angels_ink
          Posted on: 2003-06-09 10:51:00


          To all trying to obtain SSDI -- I appealed and was turned down twice, even with a good lawyer, and was about to give up too, when a friend advised me to go through the US Senator from my state (no names, please), but this man and his staff are saints, and after two appeals, and many letters that I composed, I received FULL approval without even going through the courts. My lawyer even refunded the fee the government paid him for my defense, because I did all my own leg work...I strongly advise going through the US Senator in your state and good luck and God speed. Not only is it demeaning having to admit that you can't contribute in the work force, but to have to grovel to prove your injuries or illness, is the last straw, and one that sometimes drives a person to suicide. I know from experience..Thanks, Dr. Phil for the opportunity to speak out...Jana Christian
          still fighting the system
          Posted by: lade50
          Posted on: 2004-12-31 15:35:06


          Hi I read your post and it is so true I had back surgery and and lost my mom, my 20yr old son in the marines, and my husband all in a span of 2 years after I was life flighted to a hospital for my lung problems. I filed for disbility because my doctors told me I would never be able to drive a school bus (which is what I loved to do) or lift and a lot of othewr things.because of my husband's death I receive ss for myself and my 13 yr old son. I am only 50 but when he turns 16 I guess ss thinks he doesn't need me at home any more so I lose my ss until I turn 65. I have been fighting my diability claim now for almost 2 years i have already been refused once but am on an appeal now.Why is it when my husband and myself work hard all our lives then when we look to the goverment for help we have to jump through hoops for them. Didn't we pay all that money into social security for something . My huisband worked 31 years for a company and paid ss taxes all that time and he passed away 4 yrs. after he retired, so tell me the judgust that I am not intitled to that. I would love to work but when your body refuses to do what it used to and you have several doctor's saying you cannot work and when I even tried to fill out app. as soon as they knew I had back surgery (because that is one of the questions they all ask you) no one wants to hire you. I refuse to be on welfare I feel there are people out there that have no other choice but that, I agree that some things need to change and that I am still proud to be in a free country. But I even lost a son serving his country. Boy I never expected to write this much but the socisl security issue I am dealing with made me stop and read ur post. Thanks for letting me sound off
        SOCIAL SECURITY DISABILITY
        Posted by: sipa_11957
        Posted on: 2003-06-05 16:52:04


        YES SOCIAL SECURITY DISABILITY HAS HELPED ALOT OF PEOPLE I HAVE BEEN FIGHTING TO GET DISABILITY FROM SOCIAL SECURITY FOR OVER 2 YEARS NOW. IF YOU START DON'T QUIT APPEAL APPEAL APPEAL. I AM IN THE APPEAL COUCILS HANDS RIGHT NOW. I HAVE A ATTORNEY THROUGH SOUTH DAKOTA ADVOCACY. EVERY STATE HAS A ADVOCACY PROGRAM WITH WONDERFUL ATTORNEYS. IF AND WHEN YOU START THE SOCIAL SECURITY DISABILITY PROCESS MAKE SURE YOU HAVE A ATTORNEY OR YOU WILL NEVER GET IT!!!!!!! IT IS A VERY LONG DRUG OUT PROCESS AND MAKE SURE YOU HAVE SPECIALISTS BEHIND YOU 100% ALL THE WAY ALSO. THE LAW JUDGES HAVE NO MEDICAL TRAINING LIKE A SPECIALIST DOES. OVER 50 % OF A SPECIALISTS STATEMENTS AND LETTERS MAKE THE DECISION. GOOD LUCK TO ALL!!!!
        Chronic Illnesses
        Posted by: rbwiese
        Posted on: 2003-06-05 16:54:13


        I have multiple autoimmune illnesses, starting with lupus, and including IC. All are incurable and medicine is given to help with the pain and to try to slow the destruction these diseases cause. I too wish there had been more focus on getting families to understand that their role has changed. Just taking care of myself is almost a full time job, especially when I am back on the nebulizer alternating medicines every two hours. I wish Dr Phil had told the first husband, when they were backstage talking, that just because his wife can do "this something today" doesn't mean she can do it tomorrow. It is not laziness that tommorrow she can't do what she has been doing, but rather pain, fatigue or depression, which was not touched on much at all. When one is hit with chronic illnesses there is a period of depression and grief - for the old person inside of you will never be the same again. A part of your life is lost. And even more, with progressive chronic illnesses, many times when I go to the doctor, a new disease is added to my list. Rena in Chattanooga
          I Agree
          Posted by: danne5
          Posted on: 2003-06-05 18:22:38


          From someone who suffers from chronic illness myself, I agree that the woman on the show was not totally being heard. The show seemed more focused on the husband and his wants than the wife and her needs and ability. I have been married twice and divorced twice. Let me tell you, being on my own now is WAY EASIER than being married to someone who is not supportive. I don't have to explain myself to anyone if I don't get something done on a certain day. That daily pressure of having someone question what you accomplished with a ridiculing type of attitude makes the situation much worse.
          What ever happened to "...in sickness and in health..."? I wonder how many people TRULY mean those vows when they say them.